scholarly journals Health-Related Quality of Life of Mothers of Children With Phenylketonuria

2020 ◽  
Vol 6 (3) ◽  
pp. 156-163
Author(s):  
Zahra Mortazavi ◽  
◽  
Leili Tapak ◽  
Saideh Sadat Mortazavi ◽  
Minoo Dabiri Golchin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Univariate Analysis ◽  
World Health ◽  
Treatment Programs ◽  
Normal Children ◽  
World Health Organization Quality ◽  
Study Results ◽  
The World ◽  
Health Organization

Background: Quality of life is one of the pivotal notions of the World Health Organization’s perspective. Regarding the complications of Phenylketonuria (PKU) disease in children, it seems that this disease affects the quality of life of these mothers. Objectives: Investigating the quality of life of mothers with PKU children and to compare it with that of mothers of normal children. Materials & Methods: This case-control study was conducted on 65 mothers with PKU children and 122 mothers with normal children in Hamadan City, Iran, in 2018 (selected randomly from the general population). For data collection, mothers filled a demographic profile questionnaire and the Iranian version of the World Health Organization Quality of Life-Brief. The obtained data were analyzed using the independent t test and univariate analysis of variance (α=0.05) in SPSS V. 16. Results: The Mean±SD total scores of quality of life of mothers with PKU children and mothers with normal children were 11.74±1.91 and 14.37±1.58, respectively and the difference between the two groups was statistically significant (P<0.001). There was also a significant relationship between the quality of life of mothers with PKU children and the age of the child at the onset of treatment (P<0.05). Conclusion: According to the current study results that indicated the low quality of life of the mothers of PKU children, it is recommended that rehabilitation and psychological interventions be included in pediatric treatment programs to improve the quality of life of mothers.

Re: Caron et al., 2021, sociocultural context and autistics quality of life: A comparison between Quebec and France

Autism ◽  
2021 ◽  
pp. 136236132110518
Author(s):  
Jacqui Rodgers
Keyword(s):  
Quality Of Life ◽  
World Health Organization ◽  
World Health ◽  
World Health Organization Quality ◽  
Life Measure ◽  
The World ◽  
Organization Quality ◽  
Autistic Adults ◽  
Health Organization

The purpose of this letter to the editors is to highlight to the readership of Autism the recommended use of the Autism Quality of Life measure (ASQoL) for research with autistic adults. The ASQoL was developed for use alongside the World Health Organization Quality of Life – Bref (WHOQOL-Bref) and the World Health Organization disabilities module. The letter raises some concerns about the use of the ASQoL as a standalone measure in a recent study by Caron et al. published in Autism. Lay abstract This letter to the editors discusses the use of the ASQoL for research with autistic adults. The autism quality of life measure was developed for use alongside two existing measures of quality of life developed by the World Health Organization. It was not developed as a questionnaire to be used in its own. The letter raises some concerns about the use of the autism quality of life measure as a standalone measure in a recent study by Caron et al., published in Autism.

scholarly journals The Quality of Life of Older Individuals Following the World Health Organization Assessment Criteria

Geriatrics ◽  
2020 ◽  
Vol 5 (4) ◽  
pp. 102
Author(s):  
Margarida Goes ◽  
Manuel José Lopes ◽  
João Marôco ◽  
Henrique Oliveira ◽  
César Fonseca ◽  
...  
Keyword(s):  
Quality Of Life ◽  
World Health Organization ◽  
Factor Score ◽  
Life Assessment ◽  
World Health ◽  
World Health Organization Quality ◽  
Translation Validation ◽  
The World ◽  
Health Organization

The aim of this study was to evaluate the psychometric qualities of the WHOQOL-BREF(PT) (the questionnaire developed by the World Health Organization Quality of Life Grpup for quality of life assessment), when applied to Portuguese elderly people residing in a community setting. The psychometric qualities were assessed by confirmatory factor analysis. A hierarchical second-order model and a third model were performed, and all three models presented similar and reasonable adjustment indexes. The data analysis showed that the construct failed only regarding discriminant validity because the correlations between the first-order factors were higher, associated with lower values of average variance extracted. The psychometric qualities found in the original translation/validation of the WHOQOL-BREF(PT) were compared with those found in this study; this study found higher correlations between domains but a similar level of factor reliability. The findings of this study lead to three recommendations: (i) to compute each factor score for each participant using the factor score weights obtained from confirmatory analysis models instead of adopting a unitary weight for each item, as proposed by the authors of the original translation/validation of the WHOQOL-BREF(PT); (ii) to compute a QOL score, which is not included in the original translation/validation; and (iii) to analyze differences between individual scores for each participants, which should be done by a group of health experts.

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