Peningkatan functional oral intake scale dan kualitas hidup pada miastenia gravis pasca rehabilitasi menelan

2016 ◽  
Vol 46 (1) ◽  
pp. 79
Author(s):  
Erlina Julianti ◽  
Teti Madiadipoera ◽  
Ratna Anggraeni ◽  
Bambang Purwanto ◽  
Sinta Sari Ratunanda
Keyword(s):  
Quality Of Life ◽  
Oropharyngeal Dysphagia ◽  
Oral Intake ◽  
Rehabilitation Program ◽  
Test Design ◽  
Open Label ◽  
Swallowing Rehabilitation ◽  
Quasi Experimental ◽  
Functional Oral Intake Scale

Latar belakang: Miastenia gravis (MG) merupakan penyakit autoimun yang mengganggu transmisineuromuskular karena berkurangnya reseptor asetilkolin di tautan saraf otot sehingga dapat menyebabkandisfagia orofaring. Disfagia pada MG dapat menyebabkan aspirasi yang meningkatkan morbiditas,mortalitas, dan menurunnya kualitas hidup.Tujuan: Menganalisis perbaikan disfagia orofaring padapasien MG dengan melihat peningkatan functional oral intake scale (FOIS) pada pemeriksaan fiberopticendoscopic evaluation of swallowing (FEES) dan untuk mengetahui perbaikan kualitas hidup denganmenggunakan swallowing quality of life (SWAL-QoL) pasca program rehabilitasi menelan.Metode:Penelitian ini merupakan quasi experimental open label pre and post-test design dan data dianalisisdengan menggunakan uji Wilcoxon. Penelitian berlangsung di Poliklinik Ilmu Kesehatan Telinga HidungTenggorok Bedah Kepala Leher Rumah Sakit Dr. Hasan Sadikin Bandung sejak Januari − April 2013 pada10 subjek penelitian. Diagnosis dibuat berdasarkan anamnesis, pemeriksaan fisik, penilaian FOIS denganmelihat konsistensi makanan yang aman ditelan berdasarkan temuan pemeriksaan FEES sebelum dansesudah mengikuti program rehabilitasi menelan selama 6 minggu dan penilaian kualitas hidup dengankuesioner SWAL-QoL.Hasil: Didapatkan perbedaan bermakna (p=0,002) pada hasil FOIS dan perbedaanbermakna pada seluruh domain kuesioner SWAL-QoL setelah program rehabilitasi menelan (p<0,05).Kesimpulan: Terdapat peningkatan FOIS sebagai perbaikan disfagia orofaring, serta peningkatan kualitashidup pada pasien MG sesudah program rehabilitasi menelan. Kata kunci: Disfagia, miastenia gravis (MG), functional oral intake scale (FOIS), fiberoptic endoscopicevaluation of swallowing (FEES), kualitas hidup ABSTRACTBackground: Myasthenia gravis (MG) is an autoimmune disorder of neuromuscular transmissionassociated with acetylcholine receptor deficiency at the neuromuscular junction which may causeoropharyngeal dysphagia. Oropharyngeal dysphagia in MG patients can cause aspiration which result inmorbidity, mortality, and decreased quality of life. Objective: To analyze the improvement of oropharyngealdysphagia in MG patients by evaluating the functional oral intake scale (FOIS) on fiberoptic endoscopicevaluation of swallowing (FEES) examination and to determine the improvement of quality of life byswallowing quality of life (SWAL-QoL). Method: This study was an open label quasi experimental pre andpost-test design and the data was analyzed using the Wilcoxon statistical test. This study was conductedin Otorhinolaryngology-Head and Neck Surgery Department Dr. Hasan Sadikin General Hospital duringJanuary until April 2013 towards 10 subjects. Diagnosis based on anamnesis, physical examination,FOIS assessment in order to describe the consistency of safe food ingested during FEES examinationand SWAL-QoL questionnaire assessment before and after swallowing rehabilitation programme for 6weeks. Results: There were significant differences (p=0.002) in FOIS result and significant differencesin all domains SWAL-QoL questionnaire after swallowing rehabilitation program (p<0.05). Conclusion:There was an improvement of oropharyngeal dysphagia as seen in increased FOIS score and improvementof quality of life after swallowing rehabilitation program. Keywords: Dysphagia, myasthenia gravis (MG), functional oral intake scale (FOIS), fiberoptic endoscopyevaluation of swallowing (FEES), quality of life Alamat korespondensi: Dr. Erlina Julianti, Sp.THT-KL.,M.Kes. RSUD Kabupaten Bekasi, CibitungBekasi. Email: [email protected].

scholarly journals Quality of Life And Gerontology: Description of a Research Line

2014 ◽  
Vol 4 (3) ◽  
pp. 301-308
Author(s):  
Bernat-Carles Serdà Ferrer
Keyword(s):  
Quality Of Life ◽  
Therapeutic Option ◽  
Rehabilitation Program ◽  
Muscular Fitness ◽  
Psychological Mechanisms ◽  
Modular Concept ◽  
Specific Objective ◽  
Quasi Experimental ◽  
The Continuum

The Quality of Life (QoL) is a multidimensional, dynamic and modular concept. QoL is influenced by psychological mechanisms related to the adaptation disease. The aim of this paper is to describe the research line on QoL and chronic disease. The specific objective is to determine the mechanisms involved in the change of QoL in a group of elderly people with cancer. Method. The study is prospective quasi-experimental. With a sample of 130 participants with cancer. Results. The rehabilitation program improves muscular fitness, cardiovascular efficiency, (at rest and effort) and reduces the continued decline related to treatment. We have observed a significant increase in QoL in the period evaluated. This result confirms that QoL at baseline of the disease is low. Adherence to the program achieved is 93%. Conclusions. We confirm the effectiveness of a rehabilitation program tailored to the symptoms generated by the disease and cancer treatment in improving QoL of older people. The program is a therapeutic option to preserve the QoL of the patient in the continuum of the disease. Now we are studying the timing where the implementation of the program is most effective.

Quality of life improvement after hospital- based rehabilitation or home-based physical training in intermittent claudication

VASA ◽  
2006 ◽  
Vol 35 (3) ◽  
pp. 178-184 ◽  
Author(s):  
Imfeld ◽  
Singer ◽  
Degischer ◽  
Aschwanden ◽  
Thalhammer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Study Groups ◽  
Arterial Disease ◽  
Rehabilitation Program ◽  
Open Label ◽  
Home Based ◽  
Group 2 ◽  
Peripheral Arterial

Background: The magnitude of potential changes in Quality-of-Life (QoL) after structured institution-based or home-based peripheral arterial disease (PAD) rehabilitation programs are largely unknown at present. This pilot study provides first QoL data after PAD rehabilitation or a home-based PAD training. Patients and methods: In a non-randomized, open-label pilot study three groups of out-patients were compared: group 1 (n = 18) PAD rehabilitation; group 2 (n = 17) PAD rehabilitation + clopidogrel 75 mg once daily; group 3 (n = 20) home-based training. The training period was 3 months, which was followed by a 3-month observation phase (without prescribed training). The institution-based rehabilitation program consisted of 3 training hours per week whereas patients training at home were instructed to walk for 1 hour per day on an outdoor track. QoL assessment was performed using MOS SF-36, PAVK-86 and PAD-WIQ questionnaires. Results: At baseline background variables, demographics and claudication distances were comparable between groups. After three months of training the percentage changes for the initial and the absolute claudication distance (ICD, ACD) for groups 1, 2, and 3 amounted to 164%, 201%, 44% (ICD) and 83%, 131%, 5% (ACD), respectively. Statistically significant QoL improvements were recorded for physical functions, pain and disease related anxiety in all three study groups; statistically significant inter-group differences were not found. Conclusions: In sharp contrast to the development of the claudication distances the improvement in QoL, found after 3months of training, was comparable and not consistently different between the groups.

scholarly journals Quality of Life And Gerontology: Description of a Research Line

2014 ◽  
Vol 4 (3) ◽  
pp. 301-308
Author(s):  
Bernat-Carles Serdà Ferrer
Keyword(s):  
Quality Of Life ◽  
Therapeutic Option ◽  
Rehabilitation Program ◽  
Muscular Fitness ◽  
Psychological Mechanisms ◽  
Modular Concept ◽  
Specific Objective ◽  
Quasi Experimental ◽  
The Continuum

The Quality of Life (QoL) is a multidimensional, dynamic and modular concept. QoL is influenced by psychological mechanisms related to the adaptation disease. The aim of this paper is to describe the research line on QoL and chronic disease. The specific objective is to determine the mechanisms involved in the change of QoL in a group of elderly people with cancer. Method. The study is prospective quasi-experimental. With a sample of 130 participants with cancer. Results. The rehabilitation program improves muscular fitness, cardiovascular efficiency, (at rest and effort) and reduces the continued decline related to treatment. We have observed a significant increase in QoL in the period evaluated. This result confirms that QoL at baseline of the disease is low. Adherence to the program achieved is 93%. Conclusions. We confirm the effectiveness of a rehabilitation program tailored to the symptoms generated by the disease and cancer treatment in improving QoL of older people. The program is a therapeutic option to preserve the QoL of the patient in the continuum of the disease. Now we are studying the timing where the implementation of the program is most effective.

Improving the Quality of Life of Patients With Severe Dysphagia by Surgically Closing the Larynx

2018 ◽  
Vol 128 (2) ◽  
pp. 96-103 ◽  
Author(s):  
Yurika Kimura ◽  
Seiji Kishimoto ◽  
Takuro Sumi ◽  
Mio Uchiyama ◽  
Keiko Ohno ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Barthel Index ◽  
Cricoid Cartilage ◽  
Oral Intake ◽  
Vocal Function ◽  
Severe Dysphagia ◽  
Surgical Closure ◽  
Functional Oral Intake Scale

Objectives: The aim of this study was to elucidate the utility of the Kano method with surgical closure of the larynx by cricoid cartilage removal in improving quality of life in patients with severe dysphagia and their caregivers. Methods: Nine patients with severe dysphagia who underwent the Kano method were evaluated for oral intake and activities of daily living using the functional oral intake scale and the Barthel index, respectively, as indices of quality of life. Additionally, nutritional status, inflammation, and postoperative complications were assessed. Furthermore, 7 family caregivers were queried regarding frequency of sputum suction, mood of family caregivers, and postoperative satisfaction. Results: Functional oral intake scale and Barthel index scores as well as inflammation improved significantly after surgery ( P < .05). There were no severe complications or other complications requiring surgical intervention. The frequency of sputum suction was reduced postoperatively ( P < .05). The mood of family caregivers was significantly improved and satisfaction level was high postoperatively. Conclusions: Surgical closure of the larynx is an appropriate choice for patients with irreversible severe dysphagia and impaired articulation or vocal function because quality of life is improved for both patients and family caregivers and the satisfaction of family caregivers is sufficient.

scholarly journals Prediction of aspiration in dysphagia using logistic regression: oral intake and self-evaluation

2019 ◽  
Vol 277 (1) ◽  
pp. 197-205 ◽  
Author(s):  
Bas J. Heijnen ◽  
Stefan Böhringer ◽  
Renée Speyer
Keyword(s):  
Quality Of Life ◽  
Logistic Regression ◽  
Gold Standard ◽  
Oropharyngeal Dysphagia ◽  
Oral Intake ◽  
Self Report ◽  
Life Questionnaire ◽  
Assessment Protocol ◽  
Self Evaluation

Abstract Objectives Oropharyngeal dysphagia (OD) has a major influence on health in general and health-related quality of life (HR-QoL) in particular. The gold standard assessments for OD, especially for aspiration in OD, are fiberoptic endoscopic evaluation of swallowing (FEES) and videofluoroscopy (VFSS), but not all patients have access to such procedures. Therefore, the current study built a prediction model to forecast aspiration in patients with OD on the basis of common self-evaluation questionnaires and oral intake status. Methods A consecutive series of 111 patients with confirmed diagnosis of OD was measured according to a standardised protocol using the following tools: the Swallowing Quality of Life Questionnaire (SWAL-QOL), the Dysphagia Handicap Index (DHI), two self-report visual analogue scales which measure the Severity and the Impairment of the swallowing problem on everyday social life as experienced by the patient, the Eating Assessment Tool 10 (EAT-10), the Functional Oral Intake Scale (FOIS) and subsequently FEES (the gold standard). Penalised logistic regression was carried out to predict aspiration. The performance of the resulting models was evaluated by constructing receiver operating characteristics (ROC) curves and computing areas under the curve (AUC). Results The final model showed an AUC of 0.92, indicating excellent performance. Conclusion This study shows that it may be possible to accurately predict aspiration in oropharyngeal dysphagia by a non-invasive and non-instrumental assessment protocol including oral intake status and self-report questionnaires on functional health status and HR-QoL.

scholarly journals Therapist-Assisted Rehabilitation of Visual Function and Hemianopia after Brain Injury: Intervention Study on the Effect of the Neuro Vision Technology Rehabilitation Program (Preprint)

2017 ◽  
Author(s):  
Rune Skovgaard Rasmussen ◽  
Anne Marie Heltoft Schaarup ◽  
Karsten Overgaard
Keyword(s):  
Quality Of Life ◽  
Brain Injury ◽  
Visual Field ◽  
Time Window ◽  
Personal Data ◽  
Rehabilitation Program ◽  
Open Label ◽  
Before And After ◽  
Vision Rehabilitation

BACKGROUND Serious and often lasting vision impairments affect 30% to 35% of people following stroke. Vision may be considered the most important sense in humans, and even smaller permanent injuries can drastically reduce quality of life. Restoration of visual field impairments occur only to a small extent during the first month after brain damage, and therefore the time window for spontaneous improvements is limited. One month after brain injury causing visual impairment, patients usually will experience chronically impaired vision and the need for compensatory vision rehabilitation is substantial. OBJECTIVE The purpose of this study is to investigate whether rehabilitation with Neuro Vision Technology will result in a significant and lasting improvement in functional capacity in persons with chronic visual impairments after brain injury. Improving eyesight is expected to increase both physical and mental functioning, thus improving the quality of life. METHODS This is a prospective open label trial in which participants with chronic visual field impairments are examined before and after the intervention. Participants typically suffer from stroke or traumatic brain injury and will be recruited from hospitals and The Institute for the Blind and Partially Sighted. Treatment is based on Neuro Vision Technology, which is a supervised training course, where participants are trained in compensatory techniques using specially designed equipment. Through the Neuro Vision Technology procedure, the vision problems of each individual are carefully investigated, and personal data is used to organize individual training sessions. Cognitive face-to-face assessments and self-assessed questionnaires about both life and vision quality are also applied before and after the training. RESULTS Funding was provided in June 2017. Results are expected to be available in 2020. Sample size is calculated to 23 participants. Due to age, difficulty in transport, and the time-consuming intervention, up to 25% dropouts are expected; thus, we aim to include at least 29 participants. CONCLUSIONS This investigation will evaluate the effects of Neuro Vision Technology therapy on compensatory vision rehabilitation. Additionally, quality of life and cognitive improvements associated to increased quality of life will be explored. CLINICALTRIAL ClinicalTrials.gov NCT03160131; https://clinicaltrials.gov/ct2/show/NCT03160131 (Archived by WebCite at http://www.webcitation.org/6x3f5HnCv)

scholarly journals What’s going on following acute covid-19? Clinical characteristics of patients in an out-patient rehabilitation program

2021 ◽  
pp. 1-12
Author(s):  
Sergiu Albu ◽  
Nicolas Rivas Zozaya ◽  
Narda Murillo ◽  
Alberto Garcia-Molina ◽  
Cristian Andres Figueroa Chacón ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Acute Infection ◽  
Rehabilitation Program ◽  
Neuropsychological Impairment ◽  
Outpatient Rehabilitation ◽  
Screening Process ◽  
Icu Patients ◽  
Persistent Symptoms

BACKGROUND: Coronavirus disease 2019 (COVID-19) patients present long-lasting physical and neuropsychological impairment, which may require rehabilitation. OBJECTIVES: The current cross-sectional study characterizes post COVID-19 sequelae and persistent symptoms in patients in an outpatient rehabilitation program. METHODS: Thirty patients [16 post-ICU and 14 non-ICU; median age = 54(43.8–62) years; 19 men] presenting sequelae and/or persistent symptoms (>3 months after acute COVID-19) were selected of 41 patients referred for neurorehabilitation. Patients underwent physical, neuropsychological and respiratory evaluation and assessment of impact of fatigue and quality of life. RESULTS: The main reasons for referral to rehabilitation were: fatigue (86.6%), dyspnea (66.7%), subjective cognitive impairment (46.7%) and neurological sequelae (33.3%). Post-ICU patient presented sequelae of critical illness myopathy and polyneuropathy, stroke and encephalopathy and lower forced vital capacity compared to non-ICU patients. Cognitive impairment was found in 63.3% of patients, with a similar profile in both sub-groups. Increased physical fatigue, anxiety and depression and low quality of life were prevalent irrespective of acute COVID-19 severity. CONCLUSIONS: The variability of post COVID-19 physical and neuropsychological impairment requires a complex screening process both in ICU and non-ICU patients. The high impact of persistent symptoms on daily life activities and quality of life, regardless of acute infection severity, indicate need for rehabilitation.

The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis

2021 ◽  
pp. 026921632199472
Author(s):  
Natalia Salamanca-Balen ◽  
Thomas V Merluzzi ◽  
Man Chen
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Palliative Care ◽  
Meta Analysis ◽  
Symptom Burden ◽  
Well Being ◽  
Medium Effect ◽  
Spiritual Well Being ◽  
Quasi Experimental

Background: The concept of hope is an important theme in chronic illness and palliative care and has been associated with increased psycho-spiritual well-being and quality of life. Psycho-spiritual interventions have been described in this population, but no systematic review of hope-enhancing interventions or hopelessness-reducing interventions has been conducted for persons with palliative care diseases. Aim: To describe and assess the effectiveness of interventions in palliative care that measure hope and/or hopelessness as an outcome. Design: This systematic review and meta-analysis was pre-registered (Prospero ID: CRD42019119956). Data sources: Electronic databases, journals, and references were searched. We used the Cochrane criteria to assess the risk of bias within studies. Results: Thirty-five studies (24 randomized controlled trials, 5 quasi-experimental, 6 pre-post studies) involving a total of 3296 palliative care patients were included. Compared with usual/standard cancer care alone, interventions significantly increased hope levels at a medium effect size ( g = 0.61, 95% confidence interval (CI) = 0.28–0.93) but did not significantly reduce hopelessness ( g = −0.08, 95% CI = −0.18 to 0.02). It was found that interventions significantly increase spirituality ( g = 0.70, 95% CI = 0.02–1.37) and decrease depression ( g = −0.29, 95% CI = −0.51 to −0.07), but had no significant effect over anxiety, quality of life, and symptom burden. Overall, quality of evidence across the included studies was rated as low. Conclusions: Evidence suggests that interventions can be effective in increasing hope in palliative care patients.

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