scholarly journals Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians

Children ◽  
2022 ◽  
Vol 9 (1) ◽  
pp. 82
Author(s):  
Sven Kernebeck ◽  
Chantal Jux ◽  
Theresa Sophie Busse ◽  
Dorothee Meyer ◽  
Larissa Alice Dreier ◽  
...  
Keyword(s):  
Palliative Care ◽  
Participatory Design ◽  
Development Process ◽  
Qualitative Content Analysis ◽  
Qualitative Interviews ◽  
Think Aloud ◽  
Paediatric Palliative Care ◽  
Use Of Technology ◽  
Actual Use ◽  
High Level

Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user’s perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories “performance expectancies” and “effort expectancies”. Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.

scholarly journals Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians

Children ◽  
2021 ◽  
Vol 8 (8) ◽  
pp. 695
Author(s):  
Sven Kernebeck ◽  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Dorothee Meyer ◽  
Larissa Alice Dreier ◽  
...  
Keyword(s):  
Palliative Care ◽  
Participatory Design ◽  
Positive Influence ◽  
Unintended Consequences ◽  
Think Aloud ◽  
Structured Interviews ◽  
Paediatric Palliative Care ◽  
Complex Information ◽  
Use Of Technology ◽  
Facilitating Conditions

Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.

scholarly journals Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study

Children ◽  
2021 ◽  
Vol 8 (10) ◽  
pp. 839
Author(s):  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Sven Kernebeck ◽  
Larissa Alice Dreier ◽  
Dorothee Meyer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Participatory Design ◽  
Point Of View ◽  
Pediatric Palliative Care ◽  
Health Record ◽  
Think Aloud ◽  
Information Communication ◽  
System A ◽  
Available Information ◽  
Patients Experience

Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user’s point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.

scholarly journals What Drives Senegalese SMEs to Adopt Renewable Energy Technologies? Applying an Extended UTAUT2 Model to a Developing Economy

2021 ◽  
Vol 13 (16) ◽  
pp. 9332
Author(s):  
Dorothee Apfel ◽  
Carsten Herbes
Keyword(s):  
Renewable Energy ◽  
Customer Service ◽  
Developing Economies ◽  
Small And Medium Enterprises ◽  
Qualitative Content Analysis ◽  
Qualitative Interviews ◽  
Government Support ◽  
Adoption Process ◽  
Use Of Technology ◽  
Medium Enterprises

Renewable energy technology (RET) can help small and medium enterprises (SMEs) in developing economies to both meet the need for a stable energy supply and contribute to the fight against climate change. In Senegal, SMEs have the opportunity through RET to become electricity prosumers. Whether it works as such in Senegalese SMEs is one of the questions we were able to address through qualitative interviews with 23 SMEs and 13 experts. Using qualitative content analysis, we examined what factors promote the adoption of RET by these SMEs. We also examined how well the established Unified Theory of Acceptance and Use of Technology model (UTAUT2) can serve as a guiding framework for this type of investigation. We find that effort expectancy is generally underestimated. Performance expectancy, when high, may influence the adoption process positively, while social influence does not seem to play a role. Both SMEs and experts point to customer service and government support for SMEs adopting RET as important facilitating conditions. The cost of RET is another factor influencing the adoption of these technologies. However, we regard the UTAUT2 as only partially helpful for the Senegalese context, due to the informal sector economy in Senegal. This leads us to add the factors knowledge, communication channels and entrepreneurial orientation. Moreover, we question the unequivocally positive notion of prosumerism for African contexts, as the idea draws its motivating power from a Western mindset.

scholarly journals The role of digital user feedback in a user-centred development process in citizen science

2019 ◽  
Vol 18 (01) ◽  
pp. A03 ◽  
Author(s):  
Ulrike Sturm ◽  
Martin Tscholl
Keyword(s):  
Content Analysis ◽  
Citizen Science ◽  
Participatory Design ◽  
Development Process ◽  
Qualitative Content Analysis ◽  
User Feedback ◽  
Mobile App ◽  
User Centred Design ◽  
General User

In citizen science, user-centred development is often emphasised for its potential to involve participants in the development of technology. We describe the development process of the mobile app “Naturblick” as an example of a user-centred design in citizen science and discuss digital user feedback with regard to the users' involvement. We have identified three types of digital user feedback using qualitative content analysis: general user feedback, contributory user feedback and co-creational user feedback. The results indicate that digital user feedback can link UCD techniques with more participatory design approaches.

scholarly journals Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach

Children ◽  
2021 ◽  
Vol 8 (7) ◽  
pp. 602
Author(s):  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Sven Kernebeck ◽  
Larissa Alice Dreier ◽  
Dorothee Meyer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Design Thinking ◽  
Quality Care ◽  
Qualitative Interviews ◽  
Pediatric Palliative Care ◽  
Time Data ◽  
Basic Model ◽  
Use Of Technology ◽  
Current Medication ◽  
Core Components

Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.

scholarly journals AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative Care

2021 ◽  
Vol 3 ◽  
Author(s):  
Stefan Hoffmann ◽  
Robert Schraut ◽  
Thomas Kröll ◽  
Wiebke Scholz ◽  
Tatiana Belova ◽  
...  
Keyword(s):  
Palliative Care ◽  
Participatory Design ◽  
Digital Health ◽  
Patient Reported Outcome ◽  
Serious Game ◽  
Psychological Burden ◽  
User Input ◽  
Patients With Cancer ◽  
Patient Reported ◽  
High Level

MyPal is a European initiative focusing on the use of the electronic patient reported outcome (ePRO) measures to enhance patient engagement in palliative cancer care via digital self-reporting palliative care for patients with cancer. As a part of its approach, MyPal also focuses on pediatric patients, implementing a specific digital health platform including a serious game to facilitate the reporting of the symptoms and overall status regarding their quality of life (QoL). To this end, the reduction of psychological burden related to frequent reporting, a.k.a. as “reporting fatigue” has been identified as a priority. In this study, we present the MyPal-CHILD platform, emphasizing on the serious game named AquaScouts and its key design decisions, while also emphasizing on the respective challenges. More specifically, we provide insights on the participatory design approach applied during the design of the platform and the high-level goals defined based on end-user input. In addition, the validation process applied before the use of the platform under real-world conditions is also presented. Finally, we discuss a number of challenges and the prospects of deploying eHealth interventions to support palliative care.

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