scholarly journals Use of mHealth Technology for Patient-Reported Outcomes in Community-Dwelling Adults with Acquired Brain Injuries: A Scoping Review

2021 ◽  
Vol 18 (4) ◽  
pp. 2173
Author(s):  
Shannon B. Juengst ◽  
Lauren Terhorst ◽  
Andrew Nabasny ◽  
Tracey Wallace ◽  
Jennifer A. Weaver ◽  
...  
Keyword(s):  
Brain Injury ◽  
Scoping Review ◽  
Patient Reported Outcomes ◽  
Brain Injuries ◽  
Community Dwelling ◽  
Ovid Medline ◽  
Affective Symptoms ◽  
Patient Reported ◽  
Mhealth Technology ◽  
Ecological Momentary

The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015–2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, stroke risk factors, and cognitive exertion. Overall, collecting patient-reported outcomes via mHealth was feasible and acceptable in the chronic ABI population. Studies consistently showed advantage for using EMA despite variability in EMA timing/schedules. To ensure best clinical measurement, research on post-ABI outcomes should consider EMA designs (versus single time-point assessments) that provide the best timing schedules for their respective aims and outcomes and that leverage mHealth for data collection.

Patient-Reported Outcomes in Sarcoma: A scoping review

2021 ◽  
Vol 50 ◽  
pp. 101897
Author(s):  
Ana Almeida ◽  
Teresa Martins ◽  
Lígia Lima
Keyword(s):  
Scoping Review ◽  
Patient Reported Outcomes ◽  
Patient Reported

A-111 Ecological Momentary Assessment of Mood after Moderate to Severe Traumatic Brain Injury

2021 ◽  
Vol 36 (6) ◽  
pp. 1160-1160
Author(s):  
Julianne Wilson ◽  
Amanda R Rabinowitz ◽  
Tessa Hart
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Negative Affect ◽  
Severe Traumatic Brain Injury ◽  
Ecological Momentary Assessment ◽  
Community Dwelling ◽  
Positive And Negative Affect ◽  
Environmental Reward ◽  
Ecological Momentary ◽  
Momentary Assessment

Abstract Objective In persons with moderate–severe traumatic brain injury (msTBI), we compared traditional measures of mood with dynamic measures of affect derived from ecological momentary assessment (EMA), for the purpose of validating the EMA indices and exploring their unique contributions to emotional assessment. Method 23 community-dwelling participants with chronic msTBI were enrolled in a treatment trial for anxiety and/ or depression. At baseline, participants completed the Brief Symptom Inventory-18 Depression and Anxiety subscales (BSI-D, BSI-A) and the Environmental Reward Observation Scale (EROS), a measure of everyday pleasure and reward. EMA data, including the Positive and Negative Affect Scale (PANAS), were collected via smartphone 5 times daily for 7–14 days prior to treatment (M = 8.65; SD = 1.87). Spearman correlations tested associations between baseline BSI-D, BSI-A, and EROS scores with both overall means and temporal variability measures for positive and negative affect (PA, NA). Results Mean PA was significantly correlated with BSI-D (rho −0.60, p &lt; 0.05) and EROS (rho 0.72, p &lt; 0.01). Mean NA and affect variability measures were uncorrelated with baseline scores. NA mean and variability were intercorrelated (rho 0.87, p &lt; 0.001), but this was not the case for PA. Conclusion EMA measures of averaged positive affect showed robust relationships with retrospective measures of depression and environmental reward, providing support for the validity of EMA measures of PA, and for use of the EROS in msTBI. While negative findings must be interpreted with caution, the lack of association of affective variability with retrospective measures suggest a unique role for EMA in examining temporal dynamics of affect.

The role of exercise in improving patient‐reported outcomes in individuals on dialysis: A scoping review

2019 ◽  
Vol 32 (4) ◽  
pp. 336-350 ◽  
Author(s):  
Clara Bohm ◽  
Kara Schick‐Makaroff ◽  
Jennifer M. MacRae ◽  
Maria Tan ◽  
Stephanie Thompson
Keyword(s):  
Scoping Review ◽  
Patient Reported Outcomes ◽  
Patient Reported

Quality of patient-reported outcomes used for quality of life, physical function, and functional capacity in trials of childhood fractures

2020 ◽  
Vol 102-B (12) ◽  
pp. 1599-1607
Author(s):  
Ben A. Marson ◽  
Simon Craxford ◽  
Sandeep R. Deshmukh ◽  
Douglas J. C. Grindlay ◽  
Joseph C. Manning ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Function ◽  
Upper Extremity ◽  
Validation Studies ◽  
Patient Reported Outcomes ◽  
Development Studies ◽  
Ovid Medline ◽  
Patient Reported ◽  
Childhood Fractures

Aims This study evaluates the quality of patient-reported outcome measures (PROMs) reported in childhood fracture trials and recommends outcome measures to assess and report physical function, functional capacity, and quality of life using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) standards. Methods A Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA)-compliant systematic review of OVID Medline, Embase, and Cochrane CENTRAL was performed to identify all PROMs reported in trials. A search of OVID Medline, Embase, and PsycINFO was performed to identify all PROMs with validation studies in childhood fractures. Development studies were identified through hand-searching. Data extraction was undertaken by two reviewers. Study quality and risk of bias was evaluated by COSMIN guidelines and recorded on standardized checklists. Results Searches yielded 13,672 studies, which were screened to identify 124 trials and two validation studies. Review of the 124 trials identified 16 reported PROMs, of which two had validation studies. The development papers were retrieved for all PROMs. The quality of the original development studies was adequate for Patient-Reported Outcomes Measurement Information System (PROMIS) Mobility and Upper Extremity and doubtful for the EuroQol Five Dimension Youth questionnaire (EQ-5D-Y). All other PROMs were found to have inadequate development studies. No content validity studies were identified. Reviewer-rated content validity was acceptable for six PROMs: Activity Scale for Kids (ASK), Childhood Health Assessment Questionnaire, PROMIS Upper Extremity, PROMIS Mobility, EQ-5D-Y, and Pediatric Quality of Life Inventory (PedsQL4.0). The Modified Disabilities of the Arm, Shoulder, and Hand (DASH) questionnaire was shown to have indeterminate reliability and convergence validity in one study and PROMIS Upper Extremity had insufficient convergence validity in one study. Conclusion There is insufficient evidence to recommend strongly the use of any single PROM to assess and report physical function or quality of life following childhood fractures. There is a need to conduct validation studies for PROMs. In the absence of these studies, we cautiously recommend the use of the PROMIS or ASK-P for physical function and the PedsQL4.0 or EQ-5D-Y for quality of life. Cite this article: Bone Joint J 2020;102-B(12):1599–1607.

Ecological momentary assessments (EMAs) did not improve responsiveness of patient-reported outcomes on quality of life

2020 ◽  
Vol 125 ◽  
pp. 138-147
Author(s):  
Victor Brun Boesen ◽  
Jakob Bue Bjorner ◽  
Morgens Groenvold ◽  
Per Karkov Cramon ◽  
Aase Krogh Rasmussen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcomes ◽  
Patient Reported ◽  
Ecological Momentary Assessments ◽  
Ecological Momentary

scholarly journals Sensorimotor conflict tests in an immersive virtual environment reveal subclinical impairments in mild traumatic brain injury

2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Hrishikesh M. Rao ◽  
Tanya Talkar ◽  
Gregory Ciccarelli ◽  
Michael Nolan ◽  
Anne O’Brien ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Virtual Environment ◽  
Mild Traumatic Brain Injury ◽  
Brain Injuries ◽  
Clinical Tests ◽  
Immersive Virtual Environment ◽  
Average Accuracy ◽  
Patient Reported ◽  
Huge Impact

Abstract Current clinical tests lack the sensitivity needed for detecting subtle balance impairments associated with mild traumatic brain injury (mTBI). Patient-reported symptoms can be significant and have a huge impact on daily life, but impairments may remain undetected or poorly quantified using clinical measures. Our central hypothesis was that provocative sensorimotor perturbations, delivered in a highly instrumented, immersive virtual environment, would challenge sensory subsystems recruited for balance through conflicting multi-sensory evidence, and therefore reveal that not all subsystems are performing optimally. The results show that, as compared to standard clinical tests, the provocative perturbations illuminate balance impairments in subjects who have had mild traumatic brain injuries. Perturbations delivered while subjects were walking provided greater discriminability (average accuracy ≈ 0.90) than those delivered during standing (average accuracy ≈ 0.65) between mTBI subjects and healthy controls. Of the categories of features extracted to characterize balance, the lower limb accelerometry-based metrics proved to be most informative. Further, in response to perturbations, subjects with an mTBI utilized hip strategies more than ankle strategies to prevent loss of balance and also showed less variability in gait patterns. We have shown that sensorimotor conflicts illuminate otherwise-hidden balance impairments, which can be used to increase the sensitivity of current clinical procedures. This augmentation is vital in order to robustly detect the presence of balance impairments after mTBI and potentially define a phenotype of balance dysfunction that enhances risk of injury.

scholarly journals Evaluation of the Preliminary Validity of Misuse of Prescription Pain Medication Items from the Patient-Reported Outcomes Measurement Information System (PROMIS)®

Pain Medicine ◽  
2019 ◽  
Vol 20 (10) ◽  
pp. 1925-1933 ◽  
Author(s):  
Dokyoung Sophia You ◽  
Jennifer M Hah ◽  
Sophie Collins ◽  
Maisa S Ziadni ◽  
Ben W Domingue ◽  
...  
Keyword(s):  
Information System ◽  
Patient Reported Outcomes ◽  
Pain Medication ◽  
Item Bank ◽  
Community Dwelling ◽  
Pain Clinic ◽  
Measurement Information ◽  
Outcomes Measurement ◽  
Patient Reported ◽  
Measurement Information System

Abstract Objective The National Institutes of Health’s Patient-Reported Outcomes Measurement Information System (PROMIS)® includes an item bank for measuring misuse of prescription pain medication (PROMIS-Rx Misuse). The bank was developed and its validity evaluated in samples of community-dwelling adults and patients in addiction treatment programs. The goal of the current study was to investigate the validity of the item bank among patients with mixed-etiology chronic pain conditions. Method A consecutive sample of 288 patients who presented for initial medical evaluations at a tertiary pain clinic completed questionnaires using the open-source Collaborative Health Outcomes Information Registry. Participants were predominantly middle-aged (M [SD] = 51.6 [15.5] years), female (62.2%), and white/non-Hispanic (51.7%). Validity was evaluated by estimating the association between PROMIS-Rx Misuse scores and scores on other measures and testing the ability of scores to distinguish among risk factor subgroups expected to have different levels of prescription pain medicine misuse (known groups analyses). Results Overall, score associations with other measures were as expected and scores effectively distinguished among patients with and without relevant risk factors. Conclusion The study results supported the preliminary validity of PROMIS-Rx Misuse item bank scores for the assessment of prescription opioid misuse in patients visiting an outpatient pain clinic.

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