Patient-Reported Outcomes in Sarcoma: A scoping review

2021 ◽  
Vol 50 ◽  
pp. 101897
Author(s):  
Ana Almeida ◽  
Teresa Martins ◽  
Lígia Lima
Author(s):  
Shannon B. Juengst ◽  
Lauren Terhorst ◽  
Andrew Nabasny ◽  
Tracey Wallace ◽  
Jennifer A. Weaver ◽  
...  

The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015–2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, stroke risk factors, and cognitive exertion. Overall, collecting patient-reported outcomes via mHealth was feasible and acceptable in the chronic ABI population. Studies consistently showed advantage for using EMA despite variability in EMA timing/schedules. To ensure best clinical measurement, research on post-ABI outcomes should consider EMA designs (versus single time-point assessments) that provide the best timing schedules for their respective aims and outcomes and that leverage mHealth for data collection.


2019 ◽  
Vol 32 (4) ◽  
pp. 336-350 ◽  
Author(s):  
Clara Bohm ◽  
Kara Schick‐Makaroff ◽  
Jennifer M. MacRae ◽  
Maria Tan ◽  
Stephanie Thompson

2019 ◽  
Vol Volume 10 ◽  
pp. 117-127 ◽  
Author(s):  
Cathrine Lundgaard Riis ◽  
Troels Bechmann ◽  
Pernille Tine Jensen ◽  
Angela Coulter ◽  
Karina Dahl Steffensen

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24107-e24107
Author(s):  
Julie R Bloom ◽  
Deborah Catherine Marshall ◽  
Carlos Rodriguez-Russo ◽  
Emily J Martin ◽  
Joshua Adam Jones ◽  
...  

e24107 Background: Prognostic disclosure is essential to informed decision making in oncology, yet many oncologists are unsure how to successfully facilitate this discussion. This scoping review determines what prognostic communication guidelines exist, compares and contrasts these guidelines and explores the supporting evidence. Methods: A protocol was created using the Preferred Reporting Items for Systematic Reviews and Meta-analysis Protocols extension for Scoping Reviews. Comprehensive literature searches of MEDLINE, EMBASE, PsychINFO, and Cochrane CENTRAL were performed to identify relevant publications between 1971 and 2020. Results: In total, 1532 articles were identified, of which 78 met inclusion criteria and contained 5 communication guidelines. Three guidelines have been validated in randomized control trials (Serious Illness Conversation Guide (SICG), The Four Habits Model and ADAPT) and demonstrated improved patient reported outcomes and objective communication measures. Among guidelines’ core principles, 3 concepts are common to all: patient’s understanding and preference, prognosis, and responding to emotion. Conclusions: Communicating prognosis is a core competency skill in cancer care, yet remains underprioritized in training and practice. This review highlights available models and acknowledges areas in need of further understanding including how to maintain learned communication skills for lifelong practice.[Table: see text]


Hepatology ◽  
2018 ◽  
Vol 67 (6) ◽  
pp. 2375-2383 ◽  
Author(s):  
Elliot B. Tapper ◽  
Fasiha Kanwal ◽  
Sumeet K. Asrani ◽  
Chanda Ho ◽  
Nadia Ovchinsky ◽  
...  

2014 ◽  
Vol 2014 ◽  
pp. 1-14 ◽  
Author(s):  
Adel Almangoush ◽  
Lee Herrington

Objective. A systematic scoping review of the literature to identify functional performance tests and patient reported outcomes for patients who undergo anterior cruciate ligament (ACL) reconstruction and rehabilitation that are used in clinical practice and research during the last decade. Methods. A literature search was conducted. Electronic databases used included Medline, PubMed, Cochrane Library, EMBASE, CINAHL, SPORTDiscus, PEDro, and AMED. The inclusion criteria were English language, publication between April 2004 and April 2014, and primary ACL reconstruction with objective and/or subjective outcomes used. Two authors screened the selected papers for title, abstract, and full-text in accordance with predefined inclusion and exclusion criteria. The methodological quality of all papers was assessed by a checklist of the Critical Appraisal Skills Programme (CASP). Results. A total of 16 papers were included with full-text. Different authors used different study designs for functional performance testing which led to different outcomes that could not be compared. All papers used a measurement for quantity of functional performance except one study which used both quantity and quality outcomes. Several functional performance tests and patient reported outcomes were identified in this review. Conclusion. No extensive research has been carried out over the past 10 years to measure the quality of functional performance testing and control stability of patients following ACL reconstruction. However this study found that the measurement of functional performance following ACL reconstruction consisting of a one-leg hop for a set distance or a combination of different hops using limb symmetry index (LSI) was a main outcome parameter of several studies. A more extensive series of tests is suggested to measure both the quantitative and qualitative aspects of functional performance after the ACL reconstruction. The KOOS and the IKDC questionnaires are both measures that are increasingly being used for ACL reconstruction throughout the last decade.


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