scholarly journals The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors

2020 ◽  
Vol 9 (5) ◽  
pp. 1444
Author(s):  
Jennifer M Jones ◽  
Margaret Fitch ◽  
Jared Bongard ◽  
Manjula Maganti ◽  
Abha Gupta ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Emotional Health ◽  
Treatment Phase ◽  
Post Treatment ◽  
Adolescent And Young Adult ◽  
High Rate ◽  
Young Adult Cancer Survivors ◽  
Healthcare Needs ◽  
Adult Cancer Survivors ◽  
Emotional Concern

(1) Background: Adolescents and young adults (AYAs) who have been diagnosed with and treated for cancer have unique healthcare needs, but more research is needed to inform developmentally targeted cancer care for this population. The purpose of the current analyses was to describe the physical and psychosocial concerns and experiences of AYA cancer survivors during the post-treatment phase. (2) Methods: A national survey was conducted by the Canadian Partnership Against Cancer to evaluate the experiences and unmet needs of cancer survivors (≥18 years) within the first 5 years following cancer treatment. The current analyses were conducted on the AYA survivor population (18–34 years). (3) Results: A total of 575 surveys were completed by AYAs. Of these, 61% were female, 51% were married/partnered, and 52% were 1–3 years post treatment. Approximately three-quarters report their physical or emotional health as good/very good. Overall, 88% reported at least one physical concern [mean of 3.98+2.11 physical concerns (range 0–9)], 90% reported at least one emotional concern [mean of 3.77+1.75 emotional concern (range 0–6)], and 79% reported at least one practical challenge [mean of 2.39+1.28 practical concerns (range 0–5)]. The most common concerns were anxiety/worry about cancer returning (83%), fatigue/tiredness (78%), and depression/loss of interest in daily activities (66%). On average, 43% of those reporting a concern sought help. Common reasons for not seeking help included not wanting to ask, being told that it was normal to feel the way they did, or embarrassment. Of those who did seek help, 37% encountered difficulty obtaining assistance. (4) Conclusions: These results suggest that post-treatment AYA cancer survivors have a high rate and number of physical, psychosocial, and practical concerns and are often not seeking or receiving help to address these. Proactive approaches to characterizing and eliminating barriers to obtaining appropriate care are needed.

scholarly journals Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care

2017 ◽  
Vol 6 (1) ◽  
pp. 127-133 ◽  
Author(s):  
Sapna Kaul ◽  
Rochelle R. Smits-Seemann ◽  
Eduardo R. Zamora ◽  
Holly Spraker-Perlman ◽  
Kevin J. Boyle ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Post Treatment ◽  
Adolescent And Young Adult ◽  
Recommended Care ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

scholarly journals Lasting effects of cancer and its treatment on employment and finances in adolescent and young adult cancer survivors

Cancer ◽  
2019 ◽  
Vol 125 (11) ◽  
pp. 1908-1917 ◽  
Author(s):  
Tyler G. Ketterl ◽  
Karen L. Syrjala ◽  
Jacqueline Casillas ◽  
Linda A. Jacobs ◽  
Steven C. Palmer ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

scholarly journals Accelerated aging among childhood, adolescent, and young adult cancer survivors is evidenced by increased expression of p16 INK4a and frailty

Cancer ◽  
2020 ◽  
Vol 126 (22) ◽  
pp. 4975-4983
Author(s):  
Andrew B. Smitherman ◽  
William A. Wood ◽  
Natalia Mitin ◽  
Vanessa L. Ayer Miller ◽  
Allison M. Deal ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Accelerated Aging ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
P16 Ink4a ◽  
Young Adult Cancer

Pain and Intolerance of Uncertainty among Adolescent and Young Adult Cancer Survivors

2021 ◽  
Vol 22 (5) ◽  
pp. 611
Author(s):  
Vivek Tanna ◽  
Sarah J. Cunningham ◽  
Pamela Simon ◽  
Sheri L. Spunt ◽  
Lidia Schapira ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Intolerance Of Uncertainty ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

Bounce Back Study Protocol: Randomized Waitlist-Control Trial of a Web-Based Stress-Management and Resiliency Program for Adolescent and Young Adult Cancer Survivors (Preprint)

2021 ◽  
Author(s):  
Helen Mizrach ◽  
Brett Goshe ◽  
Elyse R. Park ◽  
Christopher Recklitis ◽  
Joseph A. Greer ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Stress Management ◽  
Adolescent And Young Adult ◽  
Evidence Based ◽  
Stress Coping ◽  
Waitlist Control ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer ◽  
Bounce Back

BACKGROUND The emotional health of adolescent and young adult cancer survivors (AYAs) is compromised both during and after cancer treatment. Targeted programs designed to support AYAs’ ability to cope with stress in the years following treatment completion are lacking. Mind-body programs may ameliorate the negative psychological and emotional effects of stress and assist AYAs with managing the psychosocial challenges of early survivorship. OBJECTIVE Our randomized waitlist-control trial aims to assess the feasibility, acceptability, and preliminary efficacy of a virtual group program (Bounce Back) to promote stress management and resiliency among post-treatment AYAs. METHODS Bounce Back is a stress management and resiliency program delivered via videoconference by a trained mental health clinician. Sessions were adapted from an evidence-based mind-body program (SMART-3RP) grounded in relaxation response elicitation, mindfulness, cognitive behavioral therapy, and positive psychology. Seventy-two AYAs (diagnosed with cancer between ages 14-29 and had completed cancer treatment within the last five years) were randomly assigned to the Bounce Back program or waitlist control group and completed assessments at baseline, three months, and six months post-baseline. The primary aim of the study is to determine the feasibility and acceptability of the Bounce Back program. Descriptive statistics, including means, frequencies, and ranges supplemented by qualitative exit interview feedback will be used to characterize the sample and to summarize feasibility and acceptability. The exploratory aims are to evaluate the preliminary effects of the program on stress coping and psychosocial outcome measures (i.e., anxiety, depression) collected across the three timepoints. RESULTS This study was funded by the National Cancer Institute in July, 2017. Study procedures were approved by the Dana Farber Harvard Cancer Center IRB in October, 2018 (Protocol 18-428). The randomized trial was conducted from July 2019- March of 2021. Quantitative data collection is complete and qualitative exit interview data collection is ongoing. Results are expected to be published in peer-reviewed journals and presented at local, national, and/or international meetings in the coming years. CONCLUSIONS Few evidence-based programs exist that tackle the key transitional issues faced by AYA cancer survivors. Future analyses will help us determine the feasibility and acceptability of the Bounce Back program and its impact on AYA stress coping and psychological well-being. CLINICALTRIAL Clinicaltrials.gov NCT03768336

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