Chapter 7 introduces the author’s sudden personal immersion into the world of negotiating life-threatening illness. When Amanda Gengler’s father was diagnosed with a terminal brain tumor, the significant advantages of care-captaining and the potential consequences of care-entrusting were brought into even sharper relief. By living an experience somewhat parallel to that of the families she was studying, she found the emotional dynamics at the root of these illness management strategies crystalizing in her own daily life. She also learned intimately that hope can ultimately serve as both a stepping stone and a stumbling block as illness unfolds.
Emotional Dynamics in Integrated Care
