scholarly journals Parents’ lived experience of providing kangaroo care to their preterm infants

2008 ◽  
Vol 13 (4) ◽  
pp. 16-28 ◽  
Author(s):  
Angela Leonard ◽  
Pat Mayers
Keyword(s):  
Lived Experience ◽  
Preterm Infants ◽  
Health Care Providers ◽  
Low Birthweight ◽  
Phenomenological Study ◽  
Good Evidence ◽  
Western Cape ◽  
Care Providers ◽  
Kangaroo Care ◽  
Care And Support

Premature and low birthweight infants pose particular challenges to health services in South Africa. While there is good evidence to demonstrate the benefits of kangaroo care in low birthweight infants, limited research has been conducted locally on the experiences of parents who provide kangaroo care to their preterm infants. This phenomenological study explores the lived experience of parents who provided their preterm infants with kangaroo care at a tertiary-level maternity centre in the Western Cape. In-depth interviews were conducted with six parents: four mothers and two fathers. Data was analysed using an adaptation of the approaches described by Colaizzi (1978:48-71) and Hycner (1985:280-294). To ensure trustworthiness, the trustworthiness criteria described by Guba and Lincoln (1989:242-243) were applied. Kangaroo care is a phased process, each phase bringing a unique set of experiences. The eight themes that emerged are described: unforeseen, unprepared and uncertain - the experience of birth; anxiety and barriers; an intimate connection; adjustments, roles and responsibilities; measuring success; a network of encouragement and support; living-in challenges; and living with the infant outside of hospital. Challenges facing health care providers are described and recommendations for information about kangaroo care and support for parents are made. Opsomming Vroeggebore babas en babas met ’n lae geboortegewig stel besondere uitdagings vir Suid-Afrikaanse gesondhiedsdienste. Daar bestaan goeie bewyse dat die kangaroesorgmetode voordelig is vir babas met ’n laegeboortegewig, dog is minimale plaaslike navorsing gedoen oor die ondervindinge van ouers wat hierdie metode gebruik om vir hul vroeggebore babas te sorg. Hierdie fenomenologiese studie verken die geleefde ervaringe van ouers wat vir hulle vroeggebore babas deur middel van die kangaroesorgmetode in ’n tersiêre kraamsentrum in die Weskaap gesorg het. Data is ingesamel deur in-diepte onderhoude met ses ouers te voer: vier moeders and twee vaders van vroeggebore babas. Data is ontleed volgens ’n verwerking van die metodes soos deur Colaizzi (1978:48-71) en Hycner (1985:280-294) beskryf. Om betroubaarheid te verseker, is die betroubaarheidskriteria van Guba en Lincoln (1989:242-243) toegepas. Kangaroesorg is ’n geleidelike proses; elke fase lei tot ‘n unieke stel ondervindinge. Agt temas is uit die data geïdentifiseer: Onverwags, onvoorbereid en onseker - die geboorte-ervaring; angstigheid and hindernisse; ’n intieme verband; aanpassings, rolle en verantwoordelikhede; die meting van sukses; ’n netwerk van aanmoediging en ondersteuning; die uitdagings van binne die hospitaal leef; saamleef met die baba buite die hospital. Uitdagings wat gesondheidspersonnel te voorstaan kom en aanbevelings oor inligting met betrekking tot kangaroesorg en ondersteuning aan ouers word voorgestel.

Having a Sibling With Schizophrenia: A Phenomenological Study

2006 ◽  
Vol 20 (3) ◽  
pp. 247-264 ◽  
Author(s):  
Alexia Barnable ◽  
Alice Gaudine ◽  
Lorna Bennett ◽  
Robert Meadus
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Providers ◽  
Phenomenological Study ◽  
Hermeneutic Phenomenology ◽  
Limited Attention ◽  
Care Providers ◽  
The Impact

Limited attention has been paid to experiences of individuals with siblings diagnosed with schizophrenia. The purpose of this article is to address this gap by exploring the impact of having a brother or sister with schizophrenia. The lived experience of 6 individuals with a sibling with schizophrenia was explored using van Manen’s (1997) Hermeneutic Phenomenology. Four themes were identified: struggling to understand, struggling with the system, caring for the sibling, and seeing beyond the illness. Health care providers need to re-evaluate current approaches for assisting individuals to cope with having a sibling with schizophrenia. Inclusion in the plan of care and recognition of their struggle is essential for individuals having a sibling with schizophrenia.

Doula Support During Childbearing—Aiming for the Best Birthing Experience: A Phenomenological Study

2017 ◽  
Vol 7 (3) ◽  
pp. 139-151 ◽  
Author(s):  
C. Michelle Brisco ◽  
Sandra P. Small
Keyword(s):  
Lived Experience ◽  
Health Care Providers ◽  
Phenomenological Study ◽  
Hermeneutic Phenomenology ◽  
Care Providers ◽  
Peace Of Mind ◽  
Growing Body ◽  
The Right ◽  
Depth Interviews ◽  
Childbirth Experiences

A growing body of evidence indicates that doula support improves childbirth outcomes. The purpose of this study was to examine women’s lived experience of such support. Hermeneutic phenomenology was used to carry out and analyze in-depth interviews with 14 women who had doulas for support during pregnancy, childbirth, and the immediate postpartum period. Six main themes were revealed. The women were aiming for the best birthing experience, and they believed to achieve this they needed extra support and to have a full say in their childbirth experiences. The doulas helped the women to have peace of mind prenatally, and all but one woman had an overall satisfying experience with their doulas. Whether satisfied or dissatisfied with their personal doulas, all the women believed that having a doula is valuable. However, choosing the right doula matters because a comfortable relationship between a woman and her doula is essential to achieving the best birthing experience. Health care providers and policymakers must recognize the importance women place on constant and personalized support during childbirth and endeavor to provide such care.

The Lived Experience of Informal African American Male Caregivers

2007 ◽  
Vol 3 (1) ◽  
pp. 16-24 ◽  
Author(s):  
Jo Ann Weinland
Keyword(s):  
African American ◽  
Lived Experience ◽  
Health Care Providers ◽  
Phenomenological Study ◽  
African American Men ◽  
Demographic Data ◽  
Informal Caregivers ◽  
Care Recipient ◽  
Financial Strain ◽  
Care Providers

Informal caregivers play a major role in providing care to loved ones within the home and demands for dependent care are likely to increase. Informal caregivers are likely to continue to be responsible for the majority of care for loved ones living well into late stages of life. This article describes the lived experience of African American men providing care to a relative within the home and explores their definition of caregiver distress. The phenomenological study was conducted using face-to-face interviews with 10 Christian African American men. Demographic data about the caregiver and the care recipient were collected. Common themes included: commitment, support (family support and formal health-related support), spirituality, and caregiver burden (stress, time strain and financial strain). Implications include the need for health care providers to expand their knowledge related to the diversity of caregivers and to use culturally relevant comprehensive assessments of caregivers and recipients, discharge planning tools, and community resources.

scholarly journals The lived experience of people with obesity: study protocol for a systematic review and synthesis of qualitative studies

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Emma Farrell ◽  
Marta Bustillo ◽  
Carel W. le Roux ◽  
Joe Nadglowski ◽  
Eva Hollmann ◽  
...  
Keyword(s):  
Systematic Review ◽  
Lived Experience ◽  
Health Care Providers ◽  
Evidence Synthesis ◽  
Qualitative Studies ◽  
Qualitative Evidence Synthesis ◽  
Care Providers ◽  
Critical Appraisal Skills ◽  
Health Complications

Abstract Background Obesity is a prevalent, complex, progressive and relapsing chronic disease characterised by abnormal or excessive body fat that impairs health and quality of life. It affects more than 650 million adults worldwide and is associated with a range of health complications. Qualitative research plays a key role in understanding patient experiences and the factors that facilitate or hinder the effectiveness of health interventions. This review aims to systematically locate, assess and synthesise qualitative studies in order to develop a more comprehensive understanding of the lived experience of people with obesity. Methods This is a protocol for a qualitative evidence synthesis of the lived experience of people with obesity. A defined search strategy will be employed in conducting a comprehensive literature search of the following databases: PubMed, Embase, PsycInfo, PsycArticles and Dimensions (from 2011 onwards). Qualitative studies focusing on the lived experience of adults with obesity (BMI >30) will be included. Two reviewers will independently screen all citations, abstracts and full-text articles and abstract data. The quality of included studies will be appraised using the critical appraisal skills programme (CASP) criteria. Thematic synthesis will be conducted on all of the included studies. Confidence in the review findings will be assessed using GRADE CERQual. Discussion The findings from this synthesis will be used to inform the EU Innovative Medicines Initiative (IMI)-funded SOPHIA (Stratification of Obesity Phenotypes to Optimize Future Obesity Therapy) study. The objective of SOPHIA is to optimise future obesity treatment and stimulate a new narrative, understanding and vocabulary around obesity as a set of complex and chronic diseases. The findings will also be useful to health care providers and policy makers who seek to understand the experience of those with obesity. Systematic review registration PROSPERO CRD42020214560.

scholarly journals Effects of Perinatal Testosterone on Infant Health, Mother–Infant Interactions, and Infant Development

2013 ◽  
Vol 16 (2) ◽  
pp. 228-236 ◽  
Author(s):  
June Cho ◽  
Diane Holditch-Davis
Keyword(s):  
Gender Differences ◽  
Conceptual Framework ◽  
Preterm Infants ◽  
Health Care Providers ◽  
Infant Development ◽  
Infant Health ◽  
Very Low Birth Weight ◽  
Nursing Interventions ◽  
Care Providers ◽  
Health And Development

Objective: Many researchers and health care providers have noticed male vulnerability in infant health, mother–infant interactions, and some infant cognitive development, especially among very low birth weight (VLBW) preterm infants. However, factors beyond gender that could explain these observed differences have not been clear. The purpose of this article is to review the literature on the subject and to introduce a conceptual framework relating these factors. Discussion: According to gender-difference theories, prenatal exposure to high levels of testosterone may influence infant health and mother–infant interactions by negatively affecting infant cognitive/motor/language development. We constructed a conceptual framework based on the associations among biological (perinatal testosterone), stress-related (perinatal and maternal cortisol), and developmental (infant cognitive/motor/language skills) factors. If research establishes these biological, environmental, and developmental associations in mother–VLBW preterm pairs, the results will highlight the importance of addressing gender differences in nursing research and encourage the development of nursing interventions designed to reduce stress among mothers of VLBW preterm infants, particularly male infants. Conclusion: From a psychobiosocial perspective, combining biophysiological factors such as perinatal testosterone and cortisol with socioenvironmental factors such as the quality of mother–infant interactions and infant temperament may provide a broader view of gender differences in infant health and development.

scholarly journals Perinatal health of refugee and asylum-seeking women in Sweden 2014–17: a register-based cohort study

2019 ◽  
Vol 29 (6) ◽  
pp. 1048-1055 ◽  
Author(s):  
Can Liu ◽  
Mia Ahlberg ◽  
Anders Hjern ◽  
Olof Stephansson
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Asylum Seekers ◽  
Low Birthweight ◽  
Perinatal Care ◽  
Perinatal Health ◽  
Undocumented Migrants ◽  
Migrant Women ◽  
Care Providers ◽  
Self Rated Health

Abstract Background An increasing number of migrants have fled armed conflict, persecution and deteriorating living conditions, many of whom have also endured risky migration journeys to reach Europe. Despite this, little is known about the perinatal health of migrant women who are particularly vulnerable, such as refugees, asylum-seekers, and undocumented migrants, and their access to perinatal care in the host country. Methods Using the Swedish Pregnancy Register, we analyzed indicators of perinatal health and health care usage in 31 897 migrant women from the top five refugee countries of origin between 2014 and 2017. We also compared them to native-born Swedish women. Results Compared to Swedish-born women, migrant women from Syria, Iraq, Somali, Eritrea and Afghanistan had higher risks of poor self-rated health, gestational diabetes, stillbirth and infants with low birthweight. Within the migrant population, asylum-seekers and undocumented migrants had a higher risk of poor maternal self-rated health than refugee women with residency, with an adjusted risk ratio (RR) of 1.84 and 95% confidence interval (95% CI) of 1.72–1.97. They also had a higher risk of preterm birth (RR 1.47, 95% CI 1.21–1.79), inadequate antenatal care (RR 2.56, 95% CI 2.27–2.89) and missed postpartum care visits (RR 1.15, 95% CI 1.10–1.22). Conclusion Refugee, asylum-seeking and undocumented migrant women were vulnerable during pregnancy and childbirth. Living without residence permits negatively affected self-rated health, pregnancy and birth outcomes in asylum-seekers and undocumented migrants. Pregnant migrant women’s special needs should be addressed by those involved in the asylum reception process and by health care providers.

Dancing With Death in the Dust of Coronavirus: The Lived Experience of Iranian Nurses

2020 ◽  
Vol 26 (4) ◽  
pp. e82-e89
Author(s):  
Fatemeh Bahramnezhad ◽  
Parvaneh Asgari
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Providers ◽  
Health Care Systems ◽  
Phenomenological Approach ◽  
Care Providers ◽  
Care Systems ◽  
Interpretative Phenomenological Approach ◽  
Communication Challenges ◽  
Novel Coronavirus

The novel coronavirus disease (COVID-19) pandemic as a public health emergency poses dramatic challenges for health-care systems. The experiences of health-care workers are important in planning for future outbreaks of infectious diseases. This study explored the lived experiences of 14 nurses in Tehran, Iran caring for coronavirus patients using an interpretative phenomenological approach as described by Van Manen. In-depth interviews were audio-recorded between March 10 and May 5, 2020. The essence of the nurses' experiences caring for patients with COVID-19 was categorized as three themes and eight subthemes: (a) Strong pressure because of coronavirus: initial fear, loneliness, communication challenges, exhaustion. (b) Turn threats into opportunities: improvement of nursing image, professional development. (c) Nurses' expectations: expectations of people, expectations of government. The findings of this study showed that identifying the challenges and needs of health-care providers is necessary to create a safe health-care system and to prepare nurses and expand their knowledge and attitudes to care for patients in new crises in the future.

Designing Health Information Delivery Systems for Puerto Rican Women

2001 ◽  
Vol 28 (6) ◽  
pp. 680-695 ◽  
Author(s):  
Ruth E. Davis ◽  
Daniele D. Flannery
Keyword(s):  
Puerto Rican ◽  
Cultural Values ◽  
Health Information ◽  
Health Care Providers ◽  
Information Needs ◽  
Information Sources ◽  
Phenomenological Study ◽  
Care Providers ◽  
Puerto Rican Women ◽  
Health Information Sources

Although health information is important to the prevention of much illness, the health information needs of Puerto Rican women remain unaddressed, according to the results of this phenomenological study. Through audiotaped interviews, 21women evaluated various sources of health information. Analysis of the data revealed which health information sources they considered trustworthy and nontrustworthy. Health care providers were found to be one of the least helpful sources, as personal interactions were often hurried and inattentive to women’s needs. Yet, the women were able to present a vivid portrait of a culturally sensitive community environment conducive to the presentation of health information. Implications include the importance of including cultural values in any health information setting, as well as the importance of building cultural bridges between health educators and Puerto Rican women. More research is needed to examine community efforts to enhance health information sources for this population of women.

scholarly journals A life uncertain – My baby’s vulnerability: Mothers’ lived experience of connection with their preterm infants in a Botswana neonatal intensive care unit

Curationis ◽  
2016 ◽  
Vol 39 (1) ◽  
Author(s):  
Rosinah K. Ncube ◽  
Hilary Barlow ◽  
Pat M. Mayers
Keyword(s):  
Lived Experience ◽  
Preterm Infants ◽  
Neonatal Intensive Care ◽  
Phenomenological Study ◽  
Neonatal Unit ◽  
Supportive Communication ◽  
Low Birth Weight Infants ◽  
Infant Attachment ◽  
Technological Support ◽  
Fear And Anxiety

Background: Preterm and low–birth weight infants are often separated from their mothers when admitted to neonatal units for stabilisation of body temperature and technological support. Objectives: The aim of the study was to explore and describe the lived experiences of mothers regarding care of their hospitalised preterm infants in a neonatal unit in a public hospital in Gaborone, Botswana. Method: This study utilised a qualitative exploratory and descriptive phenomenological study design. Mothers of hospitalised preterm infants were purposefully selected, with whom there was extensive engagement. Two in-depth interviews were conducted with each participant (P). Results: Mothers were shocked by the sudden birth of a preterm infant and found the neonatal environment intimidating. This increased their fear and anxiety and delayed development of a relationship with their infants. Support from staff, other mothers in the neonatal unit and family members enabled the mothers to overcome their fear and to develop an emotional connection with their infants. Conclusion: On-going supportive communication with the mothers by healthcare professionals promotes their confidence and competence in caring for their preterm infants, which in turn promotes mother–infant attachment.

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