scholarly journals Wearing the Label of Mental Illness: Community-Based Participatory Action Research of Mental Illness Stigma

2015 ◽  
Author(s):  
Jean Theurer ◽  
Nicole Jean-Paul ◽  
Kristi Cheyney ◽  
Mirka Koro-Ljungberg ◽  
Bruce Stevens
Keyword(s):  
Mental Illness ◽  
Action Research ◽  
Participatory Action Research ◽  
Local Community ◽  
Research Question ◽  
Mental Illness Stigma ◽  
Structured Interviews ◽  
Participatory Action ◽  
Community Members ◽  
Community Based

Stigma remains an impediment to seeking and receiving the requisite care for mental illness. To enhance a local National Alliance for Mental Illness (NAMI) affiliate’s understanding of community members’ perceptions of mental illness and its associated stigma, a community-based participatory action research study was conducted. The study addressed the following research question: how do community members understand and experience the stigma associated with mental illness? Twenty-two participant-researchers wore mental illness labeled T-shirts around the local community, recorded their observations and reflections of this experience and recruited twenty-two community members for semi-structured interviews about mental illness stigma. Domain analysis of the interviews revealed community members’ understandings of (1) sources of stigma, (2) impacts of stigma, (3) conceptualizations of stigma and (4) pathways to change stigma. Findings were presented to members of the local NAMI affiliate as well as other community members. Practical implications, specific to the community of interest, are discussed.

scholarly journals Adapting the Community-based Health Planning and Services (CHPS) to engage poor urban communities in Ghana: protocol for a participatory action research study

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e049564
Author(s):  
Mary Abboah-Offei ◽  
Akosua Gyasi Darkwa ◽  
Andrews Ayim ◽  
Adelaide Maria Ansah-Ofei ◽  
Delanyo Dovlo ◽  
...  
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Urban Communities ◽  
Low Income ◽  
Urban Areas ◽  
Health Planning ◽  
Phase 1 ◽  
Participatory Action ◽  
Community Based ◽  
Key Stakeholders

IntroductionWith rapid urbanisation in low-income and middle-income countries, health systems are struggling to meet the needs of their growing populations. Community-based Health Planning and Services (CHPS) in Ghana have been effective in improving maternal and child health in rural areas; however, implementation in urban areas has proven challenging. This study aims to engage key stakeholders in urban communities to understand how the CHPS model can be adapted to reach poor urban communities.Methods and analysisA Participatory Action Research (PAR) will be used to develop an urban CHPS model with stakeholders in three selected CHPS zones: (a) Old Fadama (Yam and Onion Market community), (b) Adedenkpo and (c) Adotrom 2, representing three categories of poor urban neighbourhoods in Accra, Ghana. Two phases will be implemented: phase 1 (‘reconnaissance phase) will engage and establish PAR research groups in the selected zones, conduct focus groups and individual interviews with urban residents, households vulnerable to ill-health and CHPS staff and key stakeholders. A desk review of preceding efforts to implement CHPS will be conducted to understand what worked (or not), how and why. Findings from phase 1 will be used to inform and co-create an urban CHPS model in phase 2, where PAR groups will be involved in multiple recurrent stages (cycles) of community-based planning, observation, action and reflection to develop and refine the urban CHPS model. Data will be managed using NVivo software and coded using the domains of community engagement as a framework to understand community assets and potential for engagement.Ethics and disseminationThis study has been approved by the University of York’s Health Sciences Research Governance Committee and the Ghana Health Service Ethics Review Committee. The results of this study will guide the scale-up of CHPS across urban areas in Ghana, which will be disseminated through journal publications, community and government stakeholder workshops, policy briefs and social media content. This study is also funded by the Medical Research Council, UK.

scholarly journals A Participatory Action Research Method in a Rural Community of Mexico

2016 ◽  
Vol 14 (4) ◽  
pp. 1197 ◽  
Author(s):  
Rubi Arellano ◽  
Fabricio Balcazar ◽  
Sergio Suarez ◽  
Francisco Alvarado
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Social Services ◽  
Community Interventions ◽  
Participatory Action ◽  
Community Members ◽  
Need To Evaluate ◽  
Community Issues ◽  
To Come

For several decades, community interventions have promoted community development with strategies involving capacity building, advocacy, social change, and empowerment. Although community interventions intend to ameliorate social and economic inequalities, there is still a need to evaluate the outcomes of Participatory Action Research (PAR). PAR approaches have demonstrated to be a helpful tool for addressing and identifying community issues and strengths, while leading community members into action. The PAR approach described in this case study of “Ciudad Renace” (Town Reborn)—the Concerns Report Method (CRM)—provided a process for the community to come together and identify main issues, organize, and take actions. The findings suggest multiple activities and outcomes in areas like environmental contamination, social services, and education. Participatory methodologies like the Concerns report Method provided opportunities for community members to become engaged in pursing issues and addressing their own needs. The implications for community psychology research and practice are discussed.

scholarly journals Supporting institution-to-community transitions for people with psychiatric disabilities: Findings and implications from a participatory action research project

2014 ◽  
Vol 34 (4) ◽  
Author(s):  
Andrea Gossett Zakrajsek ◽  
Mansha Mirza ◽  
Nathan Kai-Cheong Chan ◽  
Tom Wilson ◽  
Mark Karner ◽  
...  
Keyword(s):  
Action Research ◽  
Nursing Homes ◽  
Participatory Action Research ◽  
Virtual Communities ◽  
Psychiatric Disabilities ◽  
Second Phase ◽  
Participatory Action ◽  
Action Research Project ◽  
Community Based ◽  
Research Project

<p><span>Despite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the second phase of a participatory action research project jointly developed by university-based researchers and two Centers for Independent Living. A qualitative case study methodology was used to understand the experiences of three individuals with psychiatric disabilities reintegrating into the community from nursing homes. Findings revealed themes of social isolation, participation in virtual communities, variability of impairment experiences and unmet needs for community supports. In addition to thematic findings, action products were generated for the benefit of community partners. These products included national best practice resources and a needs assessment survey tool. Study findings and products point to specific systems change and policy recommendations to better support community reintegration for this population. These recommendations are discussed in light of U.S. healthcare reform and broader disability advocacy efforts.</span></p>

scholarly journals A framework for entry: PAR values and engagement strategies in community research

2010 ◽  
Vol 3 ◽  
pp. 1-19 ◽  
Author(s):  
Joanna Ochocka ◽  
Elin Moorlag ◽  
Rich Janzen
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Research Study ◽  
Community Research ◽  
Participatory Action ◽  
Community Based ◽  
Community Based Research ◽  
Engagement Strategies ◽  
Sensitive Topics ◽  
Collaborative Community

The purpose of this article is twofold: to explore the entry process in community-based research when researching sensitive topics; and to suggest a framework for entry that utilises the values of participatory action research (PAR). The article draws on a collaborative community-university research study that took place in the Waterloo and Toronto regions of Ontario, Canada, from 2005–2010. The article emphasises that community entry is not only about recruitment strategies for research participants or research access to community but it is also concerned with the ongoing engagement with communities during various stages of the research study. The indicator of success is a well established and trusted community-researcher relationship. This article first examines this broader understanding of entry, then looks at how community research entry can be shaped by an illustrative framework, or guide, that uses a combination of participatory action research (PAR) values and engagement strategies. Key words: research entry, community engagement, participatory action research, mental health and cultural diversity

Spaces and places for popular education and participatory action research

2020 ◽  
pp. 41-56
Author(s):  
Marjorie Mayo
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Lifelong Learning ◽  
Public Services ◽  
Popular Education ◽  
Participatory Action ◽  
Community Based ◽  
Community Based Education ◽  
The Impact ◽  
Informal Settings

Governments have supported popular education initiatives in the past. And so have community organisations and social movements. But the spaces for popular education have been shrinking in recent times, as part of the impact of neo-liberal globalisation. Public services have been increasingly subjected to pressures from market forces, pressures that have impacted on community-based education and lifelong learning. Despite these wider pressures, educators have continued to find spaces and places for popular education and participatory action research, however, working across sectors in a variety of contexts. The chapter includes examples of innovatory approaches in both formal settings and informal settings (such as libraries and community centres) including examples from both Northern and Southern American contexts.

A resilient research approach: Using community‐based participatory action research in a rural area of India

2020 ◽  
Vol 48 (8) ◽  
pp. 2491-2503
Author(s):  
Noel L. Shadowen ◽  
Nancy G. Guerra ◽  
Ryan Beveridge ◽  
Elizabeth K. McCoy
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Rural Area ◽  
Research Approach ◽  
Participatory Action ◽  
Community Based
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