scholarly journals Impacts of chronic illness on families; Experiences of Iranian family of patients with Multiple Sclerosis; A Qualitative Study

2017 ◽  
Vol 5 (1) ◽  
pp. 13
Author(s):  
Hossein Ebrahimi ◽  
Hadi Hasankhani ◽  
Hossein Namdar ◽  
Esmail Khodadadi ◽  
Marjaneh Fooladi
2017 ◽  
Vol 5 (1) ◽  
pp. 13
Author(s):  
Hossein Ebrahimi ◽  
Hadi Hasankhani ◽  
Hossein Namdar ◽  
Esmail Khodadadi ◽  
Marjaneh Fooladi

2017 ◽  
Vol 2017 ◽  
pp. 1-8 ◽  
Author(s):  
Hossein Ebrahimi ◽  
Hadi Hasankhani ◽  
Hossein Namdar ◽  
Esmail Khodadadi ◽  
Marjaneh Fooladi

Background. Today family members are providing care and support to each other during illness. In particular, in chronic illness, such as multiple sclerosis, the families are more involved in caring for and supporting their patients, so they use several strategies to cope with this situation. The purpose of this study was to explore the coping strategies in family caregivers of persons with multiple sclerosis in Iran. Methods. This is a qualitative study that was conducted through 18 family caregivers of persons with multiple sclerosis. A purposeful sampling method was used. Data were collected through semistructured and in-depth interviews conducted in Multiple Sclerosis Society and hospitals of Tabriz in Iran. The collected data was analyzed according to qualitative content analysis. Results. Five main categories were elicited from interviews: “using spirituality,” “living with hope,” “experiencing persistence and stability,” “seeking support,” and “seeking alternative treatments.” Conclusion. The study findings can help to inform the support given to families to help them cope with the effects of caring for someone with multiple sclerosis. Health system managers and professionals by using these results are able to support patients and their families appropriately in order to improve their quality of life and alleviate the complications of disease.


2014 ◽  
pp. 1205 ◽  
Author(s):  
Michelle Ploughman ◽  
Chelsea Harris ◽  
Stephen Hogan ◽  
Cynthia Murray ◽  
Michelle Murdoch ◽  
...  

2012 ◽  
Vol 64 (1) ◽  
pp. 6-17 ◽  
Author(s):  
Michelle Ploughman ◽  
Mark W. Austin ◽  
Michelle Murdoch ◽  
Anne Kearney ◽  
Marshall Godwin ◽  
...  

2020 ◽  
pp. 135910532096224
Author(s):  
Roberta Lynn Woodgate ◽  
Pauline Tennent ◽  
Sarah Barriage ◽  
Nicole Legras

The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth’s involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth’s perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others’ reactions to disclosure. The findings reinforce that more emphasis on decisions related to disclosing illness in research and clinical care for youth with chronic conditions is warranted.


2019 ◽  
Vol 45 (5) ◽  
pp. 660-669 ◽  
Author(s):  
Judith Sligo ◽  
Bernadette Jones ◽  
Cheryl Davies ◽  
Richard Egan ◽  
Tristram Ingham ◽  
...  

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