scholarly journals Parenting Stress in Families of Children With Autism Spectrum Disorder: The Roles of the Extended Family

2019 ◽  
Vol 11 (8) ◽  
pp. 51 ◽  
Author(s):  
Joy I. Anyanwu ◽  
Liziana N. Onuigbo ◽  
Ngozi O. Obiyo ◽  
Uchenna N. Eze ◽  
Immaculata N. Akaneme ◽  
...  

OBJECTIVE: This study focused on the role of extended family in mitigating the stress experienced by parents of children with autism and the possible challenges of involving them, especially in modern Nigerian society. The study identified the sources of stress for parents of children with autism, and considered location and family size factors in stress experienced by parents, the role of the extended family in mitigating the stress and the challenges that may inhibit the involvement of the extended family.  METHOD: The study adopted a descriptive survey research design and was carried out in South East, Nigeria. All parents and guardians of children with autism in the three special needs schools that cater for children with autism in the two selected states were used for the study. Data was collected using a self-report questionnaire with 36 items to elicit information on the sources of stress for parents and the role of the extended family in mitigating the stress. A semi-structured 26 items interview schedule adapted from Smithfield’s (2011) parents of children with autism questions covering the child's behaviour, parent's feelings, and role of the extended family was also used to generate firsthand information on the issues raised and to complement data collected through the self-report questionnaire. There was a researcher observation guide for monitoring progress in the study. Mean and standard deviation was used to answer the research questions while regression analysis, t-test and Analysis of variance were used to test the null hypotheses at 0.05 level of significance. RESULTS: The findings revealed that parents of children with autism experience stress that is hinged basically on the behaviour of the children. Family size does not influence parents’ stress experience but location does.  Some parents receive child care and/or financial help sometimes from extended family members. CONCLUSION: Parents of children with autism face a lot of stress that is hinged basically on the behaviour of the children. Some of the rural parents, however, have the opportunity of getting help sometimes from extended family members since special need schools are not located in their area or even nearby. The extended family relations sometimes offer financial help but from all indications, the modern urbanization has really eroded their help. Family size does not influence parents’ stress experience and role of extended family but location does.

2021 ◽  
pp. 105413732110346
Author(s):  
Betül Tanacıoğlu-Aydın ◽  
Sibel Akmehmet-Şekerler ◽  
Deniz Albayrak-Kaymak ◽  
Ayten Zara

The loss of the mother leads to many changes in the family. The loss might have negative effects on the ones that are left behind. However, some family members do not show pathological symptoms; rather, they have healthy functioning despite their sad loss. Guided by the resilience perspective, this study illuminates the case of a Turkish family after the mother dies due to stomach cancer. The whole picture of a family after this loss was examined through using various data sources. Transcribed interviews with family members and teachers of two children in the family were investigated through thematic analysis, and five major themes were identified. Extended family relations and rituals, such as funeral services, meals after the funeral, or visiting the grave of the lost one, were found to be helpful toward positive grief experiences and resilience of the family members in the aftermath of the loss. This study was important in the sense that it gave an in-depth perspective of a Muslim family who lost the maternal parent, which is considered a person's most important attachment figure.


2008 ◽  
Vol 15 (2) ◽  
pp. 50-59 ◽  
Author(s):  
Amy Philofsky

AbstractRecent prevalence estimates for autism have been alarming as a function of the notable increase. Speech-language pathologists play a critical role in screening, assessment and intervention for children with autism. This article reviews signs that may be indicative of autism at different stages of language development, and discusses the importance of several psychometric properties—sensitivity and specificity—in utilizing screening measures for children with autism. Critical components of assessment for children with autism are reviewed. This article concludes with examples of intervention targets for children with ASD at various levels of language development.


2018 ◽  
Vol 17 (4) ◽  
pp. 281-286 ◽  
Author(s):  
Olga V. Kostina

The review presents an analysis of the mechanisms of iron effect on the brain development. The importance of iron deficiency in the perinatal period is considered as a risk factor for the development of neuropsychiatric disorders in children with autism spectrum disorders (ASDs). Possible causes of sideropenia are discussed; data on haematological and biochemical parameters characterizing iron metabolism in children with ASDs are presented. The demand for studying the role of iron metabolism imbalance in the development of neuropsychiatric disorders in order to clarify pathogenetic mechanisms of ASDs and to determine methods for their correction is emphasized.


2020 ◽  
pp. 1-6
Author(s):  
Samuel Ojima Adejoh ◽  
Adetayo Olorunlana ◽  
Adeola Adejayan

Abstract Objective The objectives of this study are to describe patients’ experiences of family members’ reactions to diagnosis of breast cancer and investigate the role of family support in the management of breast cancer. Method The study used the descriptive qualitative method in data collection and analysis. Fifteen participants, who were undergoing either radiotherapy or chemotherapy treatment at a private hospital, consented and participated in the study. Data were content analyzed under two specific themes on family members’ reactions and family support received. Findings The findings show that some participants reported negative reactions of some family members, and this affected them negatively. While some participants received support from their families, others did not. Significance of findings The findings of our study show the critical role of family support in the management of breast cancer; therefore, family members should be encouraged to give breast cancer patient the necessary support to help them manage their sick role behavior since their illness has no cure.


2020 ◽  
Vol 32 (4) ◽  
pp. 1230-1239 ◽  
Author(s):  
Meghan R. Swanson

AbstractParents play an essential role in supporting child development by providing a safe home, proper nutrition, and rich educational opportunities. In this article we focus on the role of caregiver speech in supporting development of young children with autism spectrum disorder (ASD). We review studies from typically developing children and children with autism showing that rich and responsive caregiver speech supports language development. Autism intervention studies that target caregiver speech are reviewed as are recent scientific advances from studies of typical development. The strengths and weakness of different techniques for collecting language data from caregivers and children are reviewed, and natural language samples are recommended as best practice for language research in autism. We conclude that caregivers play a powerful role in shaping their children's development and encourage researchers to adapt parent-mediated intervention studies to acknowledge individual differences in parents by using a personalized medicine approach.


2018 ◽  
Vol 73 ◽  
pp. 31-39 ◽  
Author(s):  
Yagmur Ozturk ◽  
Andrea Bizzego ◽  
Gianluca Esposito ◽  
Cesare Furlanello ◽  
Paola Venuti

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