scholarly journals A look back on the Prairie: the Manitoba Health Libraries Association / Manitoba Association of Health Information Providers (MHLA / MAHIP) chapter history project

Author(s):  
Christine Shaw-Daigle ◽  
Lisa Demczuk ◽  
Angela Osterreicher ◽  
Melissa Raynard
Author(s):  
Venkata Shravan Ramayanam ◽  
Leona Star

IntroductionFirst Nation peoples (FNs) were unable to track their own health care trends due to limitations in datasets. The key linked file enables FNs to identify themselves within administrative datasets and work with Crown governments to bring equity in all services and departments to support FNs understanding of wellness. Objectives and ApproachFirst Nations Health and Social Secretariat of Manitoba (FNHSSM) was established by 2013 resolution of Assembly of Manitoba Chiefs (AMC) and incorporated in 2014. FNHSSM leads and supports research according to FNs criteria approved by the Chiefs in Assembly. Information Sharing Agreements (ISA) have been developed with federal and provincial governments to mandate the processes for data linkage. The ISA allows Indian Status Register (ISR) data of Department of Indigenous Services Canada (DISC) to be transferred to FNHSSM to provide oversight, and link to Provincial Personal Health Information Numbers (PHINs) to create the de-identified, scrambled, and encrypted Key Linked file. ResultsPrevious linkages were done in early 2000s with FNs approval and oversight. The 2018 linkage is the first time that ISAs have been formally developed. ISA-1 is between FNHSSM and Manitoba Health Seniors and Active Living (MHSAL) to create Key Linked file. ISA-2 is between FNHSSM, MHSAL and Manitoba Centre for Health Policy (MCHP) at University of Manitoba, to create the FNs Research File. This research file can only be accessed with application to and approval by the MFNs Health Information Research Governance Committee. This key linked file allows FNHSSM to prepare community health profiles specifically and only for each FN, to respect FNs Data Governance under Chief and Council. A regional report on Manitoba FNs will be created for all MFNs, FNHSSM and MHSAL. Conclusion/ImplicationsLinking datasets helps to strengthen FNs data governance in re-building nations, recognizing FNs inherent right to self-determination. Linking files help to provide meaningful data to advocate for FNs rights and access to the resources and social determinants of health needed to achieve equity in Manitoba.


Author(s):  
Helen King ◽  
Darina M. Slattery

In 2014, the UK National Health Service (NHS) ‘Five Year Forward View' plan set out key objectives to reform the NHS, which included empowering the population as a whole (particularly those with long-term health conditions) to take more responsibility for managing their own healthcare and introducing initiatives to use technology to improve services and reduce costs. The “Long Term Plan” explains how the 2014 initiatives will be further developed. This chapter presents a review of literature on digital health information and information usability. It presents the key findings from a mixed methods study that explored how people with MS (PwMS) access and use health digital information when trying to manage their MS. While the study found that there is much good quality digital health information available for PwMS, and that this facilitates shared decisions, some necessary information is still missing. The chapter concludes with recommendations for digital health information providers.


2018 ◽  
Vol 14 (18) ◽  
pp. 65
Author(s):  
Reuben Solomon Mumba

Background: Hospital discharge information is a critical component of preparation to facilitate patient transition from hospital to home. Numerous studies elsewhere provide evidence that patients and families encounter a variety of problems after discharge from hospital such as difficulties with functional abilities and carrying out personal care. These problems are often attributed to having unmet informational needs at discharge. Objective: The main objective of the study was to assess patients’ perceptions of the health information provided by nurses and clinicians at discharge. Methods: The study was conducted at Chiradzulu District Hospital in Malawi. A qualitative method of data collection (in-depth interviews) was used. Convenience sampling method was used to select patients into the study. Data was analyzed using Nvivo 9 software. Findings: The study found that most patients were given information by nurses and clinicians on how to perform self-care at home on discharge from hospital. The study revealed that most patients perceived the discharge information as relevant in assisting them with home care. In addition, the study found that most patients perceived it as inadequate. The study also found that the factors that facilitated patients understanding of information were clear explanation of information and use of understandable language by information providers. Barriers included lack of encouragement from information providers to make patients speak, incomprehensive information provided to the patients and patients fear of asking information providers’ questions. Conclusion: Nurses and clinicians should make sure that all patients are given some discharge information to help them to manage their self care at home. Those patients who are at high risk for readmission should be given detailed information.


Author(s):  
Helen King ◽  
Darina M. Slattery

In 2014, the UK National Health Service (NHS) ‘Five Year Forward View' plan set out key objectives to reform the NHS, which included empowering the population as a whole (particularly those with long-term health conditions) to take more responsibility for managing their own healthcare and introducing initiatives to use technology to improve services and reduce costs. The “Long Term Plan” explains how the 2014 initiatives will be further developed. This chapter presents a review of literature on digital health information and information usability. It presents the key findings from a mixed methods study that explored how people with MS (PwMS) access and use health digital information when trying to manage their MS. While the study found that there is much good quality digital health information available for PwMS, and that this facilitates shared decisions, some necessary information is still missing. The chapter concludes with recommendations for digital health information providers.


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