scholarly journals Partnering For Pain: a Priority Setting Partnership to identify patient-oriented research priorities for pediatric chronic pain in Canada

CMAJ Open ◽  
2019 ◽  
Vol 7 (4) ◽  
pp. E654-E664 ◽  
Author(s):  
Kathryn A. Birnie ◽  
Katherine Dib ◽  
Carley Ouellette ◽  
Mary Anne Dib ◽  
Kimberly Nelson ◽  
...  
2018 ◽  
Vol 2 (1) ◽  
pp. 191-204 ◽  
Author(s):  
Patricia Poulin ◽  
Yaadwinder Shergill ◽  
Heather Romanow ◽  
Jason W. Busse ◽  
Christine T. Chambers ◽  
...  

2018 ◽  
Vol 21 (6) ◽  
pp. 1142-1149 ◽  
Author(s):  
Meghan J. Elliott ◽  
Joanna E. M. Sale ◽  
Zahra Goodarzi ◽  
Linda Wilhelm ◽  
Andreas Laupacis ◽  
...  

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044207
Author(s):  
Alexia Karantana ◽  
Tim Davis ◽  
Donna Kennedy ◽  
Debbie Larson ◽  
Dominic Furniss ◽  
...  

ObjectivePrioritisation of important treatment uncertainties for ‘Common Conditions Affecting the Hand and Wrist’ via a UK-based James Lind Alliance Priority Setting Partnership.SettingThis process was funded by a national charitable organisation and based in the UK.ParticipantsAnyone with experience of common conditions affecting the adult hand and wrist, including patients, carers and healthcare professionals. All treatment modalities delivered by a hand specialist, including therapists, surgeons or other allied professionals, were considered.InterventionsEstablished James Lind Alliance Priority Setting Partnership methods were employed.Electronic and paper questionnaires identified potential uncertainties. These were subsequently confirmed using relevant, up-to-date systematic reviews. A final list of top 10 research uncertainties was developed via a face-to-face workshop with representation from patients and clinicians. Impact of research was sought by surveying hand clinicians electronically.Outcome measuresThe survey responses and prioritisation—both survey and workshop based.ResultsThere were 889 individually submitted questions from the initial survey, refined to 59 uncertainties across 32 themes. Eight additional uncertainties were added from published literature before prioritisation by 261 participants and the workshop allowed the final top 10 list to be finalised. The top 10 has so far contributed to the award of over £3.8 million of competitively awarded funding.ConclusionsThe Common Conditions in the Hand and Wrist Priority Setting Partnership identified important research questions and has allowed research funders to identify grant applications which are important to both patients and clinicians


2017 ◽  
Vol 11 (12) ◽  
pp. 379-87 ◽  
Author(s):  
Jennifer Jones ◽  
Jaimin Bhatt ◽  
Jonathan Avery ◽  
Andreas Laupacis ◽  
Katherine Cowan ◽  
...  

It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.


2015 ◽  
Vol 173 (5) ◽  
pp. 1280-1283 ◽  
Author(s):  
A. Hernández-Martín ◽  
P. Dávila-Seijo ◽  
R. de Lucas ◽  
E. Baselga ◽  
P. Redondo ◽  
...  

2019 ◽  
Vol 181 (4) ◽  
pp. 871-873 ◽  
Author(s):  
R. Majeed‐Ariss ◽  
M. McPhee ◽  
H. McAteer ◽  
C.E.M. Griffiths ◽  
H. Young

Head & Neck ◽  
2017 ◽  
Vol 40 (3) ◽  
pp. 544-554 ◽  
Author(s):  
Leah A. Lechelt ◽  
Jana M. Rieger ◽  
Katherine Cowan ◽  
Brock J. Debenham ◽  
Bernie Krewski ◽  
...  

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