illness narratives
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2021 ◽  
Vol 26 (26) ◽  
pp. 013-030
Author(s):  
林宜蓉 林宜蓉

<p>東尼、克許納的普立茲得獎作品《美國天使,國家議題的同志幻想》探討同性戀、宗教、政治、同志恐懼症、和身份等重大議題,亦激發意識型態、畏懼、及焦慮等種種意見衝突。然而,探討本劇的學術研究,無論為關於政治、宗教、或文化的意識型態戰爭,都不經意地透露出某方面的忽略或迴避──肉體。肉體在本劇中不僅舉足輕重且一再地帶給觀眾深痛的衝擊。《美國天使》中無所不在的肉體展現,尤其是感染愛滋病的男同志病體,在在證實了劇中具強烈身體感官的言語、意象、和行動的重要性。本文深究《美國天使》中運用肉體的意識型態和䇿略意涵,並論述克許納將肉體政治化,透過展現怪誕醜陋的男同志愛滋病體、疾病敍述、及性暴露的方式,為男同性戀者和愛滋病患爭取平權,並激發同情心與善解的人性光輝。</p> <p>&nbsp;</p><p>Tony Kushner’s Pulitzer Prize-winning Angels in America, A Gay Fantasia on National Themes (1992) brings ponderous issues such as homosexuality, religion, politics, homophobia, and identity together in a fascinating and profound clash of warring beliefs, ideologies, fears, and anxiety. However, the plethora of scholarship which the play has inspired on the wars of ideology, be they political, religious, or cultural, has betrayed an unwitting negligence or avoidance in one regard&mdash;corporeality, which not only abounds in the play but also insistently makes poignant impressions on the audience. The pervasiveness of corporeality in Angels in America, specifically the AIDS-infected male homosexual body, attests to the centrality of visceral language, imagery, and action in the play. This study delves into the ideological and strategic implications of corporeality in Angels in America and postulates that Kushner politicizes corporeality to strive for equity for homosexual males and AIDS patients and to inspire sympathy and understanding humanity through the AIDS-infected male homosexual grotesquery, illness narratives, and sexual explicitness.</p> <p>&nbsp;</p>


2021 ◽  
pp. 105-134
Author(s):  
Peter C. Little

This chapter introduces the ways in which e-pyropolitics are embodied by exploring the illness narratives and bodily distress experiences of several copper burners. The author draws on ethnographic narratives to explore how Agbogbloshie workers narrate, understand, and refer to their own bodily distress to make sense of the toxic exposures and environmental health risks they face. In addition to exploring how toxic embodiment and experience break down or reconfigure demarcations of body and environment, the author highlights the ways in which toxicity and corporality become the site of laudable environmental health risk mitigation efforts that ironically fail to transform or reduce toxic corporality in an enduring postcolonial context. In this way, the author explores how a solutions-based intervention in Agbogbloshie overlooks the complexity and diversity of eco-corporeal relations in a tech metal extraction zone where bodies, toxins, and economies intersect.


2021 ◽  
pp. 28-45
Author(s):  
Sweetha Saji ◽  
Sathyaraj Venkatesan
Keyword(s):  

2021 ◽  
pp. 104973232110444
Author(s):  
Stefanie Plage ◽  
Rebecca E. Olson

Emotions, like joy and sorrow, feature in illness narratives, dramatizing stories of becoming: sick, well, controlled, in control. However, brief emotions, such as surprise, have received limited analytic attention in cancer illness narratives. Drawing on 20 interviews with 11 participants with diverse cancer diagnoses, along with the 455 photographs they produced for this study, we address the complex interactions between discourse, societal expectations, and perceptions in moral-affective economies. Tracing the emergence, deployment, and silencing of surprise provided an avenue to explore connections between affect, morality, advocacy, and philanthropy. We show how surprise works to deny uncertainties couched in individual risk, and situate cancer causation within the logics of anticipation, (re)producing socio-cultural etiology narratives. Attending to surprise reveals how some cancers are situated as individual responsibilities, with restricted access to compassion and collective resources. Thus, we interrogate the affective-moral economy underpinning cancer illness narratives, and surprise’s pivotal role in its analysis.


2021 ◽  
Vol 10 (2) ◽  
pp. 27-42
Author(s):  
Darian Goldin Stahl

This paper is a deep investigation into one art installation, Healing House I, which materializes the lived experience of being diagnosed with a chronic illness. This artwork is part of a collaborative project between artist Darian Goldin Stahl and her sister, Devan Stahl, who was diagnosed with multiple sclerosis. Together, they use a phenomenological methodology to express the disconnections between the lived body and the body object that can occur after a diagnosis, as well as the conditions necessary to mend this separation. Joining fleshy material, sound, vibration, and scent in this artwork, Goldin Stahl analyses how a multi-sensory and artistic interpretation of her sister’s illness narratives can tacitly communicate one experience of living with MS. In sharing this artwork with others in a disability arts exhibition, the sisters aim towards fostering a collective, intercorporeal understanding and empathy for the ill body.


Author(s):  
Richard P McQuellon

Nell M. came to her therapist with an unusual problem: She was disappointed that her metastatic breast cancer, with the promise of ending her life, was not progressing on her hoped-for schedule. She had hoped her death would prevent her from witnessing her spouse’s mental deterioration from Alzheimer’s disease. This is how Nell’s story began and proceeded for a period of 40 weeks of counseling meetings, including 12 recorded sessions. This book consists of 12 illness narratives created in the presence of her therapist. These dialogues explore the challenges of managing the physical and emotional demands of cancer, relationship issues with family and healthcare professionals, and disturbing, anxiety-provoking thoughts and the mourning that accompanies the end of life. Nell’s vibrant voice is a beacon throughout the narratives, sometimes sad, yet always hopeful for a good death. Her ability to navigate the difficult territory of mortal time and dying informs readers about how they might approach their own ending with grace and dignity.


2021 ◽  
pp. 1-16
Author(s):  
Richard P. McQuellon

This book tells the story of Nell M. and the author, her therapist, as they encounter mortal time. When Nell was diagnosed with metastatic breast cancer, she sought counseling because she wasn’t dying soon enough. The text consists of a compilation of 12 illness narratives in conversation with the author. Nell was disappointed that her breast cancer would not prevent her from seeing her husband deteriorate due to Alzheimer’s disease. She had hoped breast cancer would give her an easy exit. Her journey was guided by conversation in psychotherapy, a circle of family and friends, as well as her spiritual community, where she gained strength and sustenance. The narratives include commentary and reflections by the author/therapist as well as a section on coping with three important areas of a patient’s life: the disease of cancer and treatment-related symptoms, personal and professional relationships, and intrusive thoughts and troubling feelings. The therapeutic approach is supportive-expressive counseling with deep empathic listening and compassionate responding at its core. The dialogues include poetry readings and use of music, both comforting elements that inform the art of dying.


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