Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study

Background: History has recorded the tremendous concerns and apprehension expressed by African Americans about participating in research studies. This review enumerates the collaborative techniques that were utilized by the Jackson State University (JSU) Jackson Heart Study (JHS) community-focused team to facilitate recruitment and retention of the JHS cohort and to implement health education and health promotion in the JHS communities. Methods: This review describes the evolution of the JSU JHS community initiatives, an innovative community-driven operation, during the period 1999–2018. Results: JSU JHS community-focused investigators published approximately 20 manuscripts, including community-led research and publications with community lead authors and co-authors, research and publications in collaboration with other JHS staff, through other JSU-funded projects. The JSU JHS community-focused unit also initiated the JHS Community Training Activities, developed the Community Health Advisory Network (CHAN), and trained and certified 137 Community Health Advisors. In addition, the JSU JHS community-focused unit developed the Collaborative Community Science Model (CCSM) that symbolized its approach to community engagement and outreach, and a Trust Scale for ascertaining African Americans’ willingness to engage in biomedical research collaborations. Conclusion: This review offers educators, public health professionals, and research investigators a useful starting point for the development, selection, or improvement of techniques to motivate, inspire, and engage community residents in a community–academia partnership that yielded maximum benefits in the areas of health education, health promotion and interventions, and biomedical research. Substantial, meaningful community engagement is possible when prioritizing elimination of health disparities and long-term improvement in health care access in the target populations.

Trouble in My Way

This chapter examines the strained history of Jackson State University during the aftermath of World War II and leading up to the modern civil rights movement. Located in the heart of Mississippi, Jackson State students carved out space to express their militancy as the war came to a close. However, they quickly felt that space collapse around them as segregationists tightened their grip on the Magnolia State as the burgeoning movement for black liberation challenged the oppressive traditions of the most socially and politically closed state in the country. Administrators such as Jackson State University president Jacob Reddix quickly fell in line with the expectations of his immediate supervisors and squared off against outspoken scholar-activists such as famed poet and novelist Margaret Walker. The standoff resulted in a campus environment fraught with tension yet still producing students and faculty determined to undermine Jim Crow.

Administrative Response to Activism

College student activism can cripple a campus for decades, as evidenced by the tragedies of Kent State University and Jackson State University. To prepare for the engagement of students, college administrators must prepare themselves, both in plans and in mindset, for the possibility of disruptive activism, and this begins with the identification of what acceptable activism can and should include. Building on the mindset that activism can indeed be a good thing, for both students and the institution, administrators must create priorities that protect the welfare of all involved, including the institution's brand and student learning. Subsequent thinking by campus leaders must maintain a humane and liberating response for students, and ultimately, although prepared, campus leaders must have a set of priorities planned that can incorporate and ultimately value the process of students speaking out on campus.