scholarly journals Risk and protective factors affecting the quality of life of family carers of people with dementia

2020 ◽  
Vol 16 (S7) ◽  
Author(s):  
Milena L Contreras ◽  
Eneida Mioshi ◽  
Naoko Kishita
Keyword(s):  
Quality Of Life ◽  
Protective Factors ◽  
Risk And Protective Factors ◽  
Family Carers ◽  
Factors Affecting ◽  
People With Dementia

scholarly journals Individual cognitive stimulation therapy for dementia: a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial

2015 ◽  
Vol 19 (64) ◽  
pp. 1-108 ◽  
Author(s):  
Vasiliki Orgeta ◽  
Phuong Leung ◽  
Lauren Yates ◽  
Sujin Kang ◽  
Zoe Hoare ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Relationship Quality ◽  
Clinical Effectiveness ◽  
Cognitive Stimulation ◽  
Health Related Quality ◽  
Family Carers ◽  
People With Dementia ◽  
Related Quality ◽  
Health Related

BackgroundGroup cognitive stimulation therapy programmes can benefit cognition and quality of life for people with dementia. Evidence for home-based, carer-led cognitive stimulation interventions is limited.ObjectivesTo evaluate the clinical effectiveness and cost-effectiveness of carer-delivered individual cognitive stimulation therapy (iCST) for people with dementia and their family carers, compared with treatment as usual (TAU).DesignA multicentre, single-blind, randomised controlled trial assessing clinical effectiveness and cost-effectiveness. Assessments were at baseline, 13 weeks and 26 weeks (primary end point).SettingParticipants were recruited through Memory Clinics and Community Mental Health Teams for older people.ParticipantsA total of 356 caregiving dyads were recruited and 273 completed the trial.InterventioniCST consisted of structured cognitive stimulation sessions for people with dementia, completed up to three times weekly over 25 weeks. Family carers were supported to deliver the sessions at home.Main outcome measuresPrimary outcomes for the person with dementia were cognition and quality of life. Secondary outcomes included behavioural and psychological symptoms, activities of daily living, depressive symptoms and relationship quality. The primary outcome for the family carers was mental/physical health (Short Form questionnaire-12 items). Health-related quality of life (European Quality of Life-5 Dimensions), mood symptoms, resilience and relationship quality comprised the secondary outcomes. Costs were estimated from health and social care and societal perspectives.ResultsThere were no differences in any of the primary outcomes for people with dementia between intervention and TAU [cognition: mean difference –0.55, 95% confidence interval (CI) –2.00 to 0.90;p-value = 0.45; self-reported quality of life: mean difference –0.02, 95% CI –1.22 to 0.82;p-value = 0.97 at the 6-month follow-up]. iCST did not improve mental/physical health for carers. People with dementia in the iCST group experienced better relationship quality with their carer, but there was no evidence that iCST improved their activities of daily living, depression or behavioural and psychological symptoms. iCST seemed to improve health-related quality of life for carers but did not benefit carers’ resilience or their relationship quality with their relative. Carers conducting more sessions had fewer depressive symptoms. Qualitative data suggested that people with dementia and their carers experienced better communication owing to iCST. Adjusted mean costs were not significantly different between the groups. From the societal perspective, both health gains and cost savings were observed.ConclusionsiCST did not improve cognition or quality of life for people with dementia, or carers’ physical and mental health. Costs of the intervention were offset by some reductions in social care and other services. Although there was some evidence of improvement in terms of the caregiving relationship and carers’ health-related quality of life, iCST does not appear to deliver clinical benefits for cognition and quality of life for people with dementia. Most people received fewer than the recommended number of iCST sessions. Further research is needed to ascertain the clinical effectiveness of carer-led cognitive stimulation interventions for people with dementia.Trial registrationCurrent Controlled Trials ISRCTN65945963.FundingThis project was funded by the National Institute of Health Research (NIHR) Health Technology Assessment (HTA) programme and will be published in full inHealth Technology Assessment; Vol. 19, No. 64. See the NIHR Journals Library website for further information.

scholarly journals Quality of Life on the Views of Older Family Carers of People with Dementia

Dementia ◽  
2017 ◽  
Vol 18 (3) ◽  
pp. 990-1009 ◽  
Author(s):  
Deborah Oliveira ◽  
Catherine Vass ◽  
Aimee Aubeeluck
Keyword(s):  
Quality Of Life ◽  
Family Carers ◽  
People With Dementia

scholarly journals Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL

2019 ◽  
Vol 28 (8) ◽  
pp. 2299-2310 ◽  
Author(s):  
Anna Brown ◽  
Thomas E. Page ◽  
Stephanie Daley ◽  
Nicolas Farina ◽  
Thurstine Basset ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Carers ◽  
People With Dementia ◽  
Development And Validation

[P3-497]: FACTORS INFLUENCING QUALITY OF LIFE IN FAMILY CARERS OF PEOPLE WITH DEMENTIA

2017 ◽  
Vol 13 (7S_Part_24) ◽  
pp. P1167-P1167
Author(s):  
Stephanie Daley ◽  
Nicolas Farina ◽  
Gill Livingston ◽  
Anna Brown ◽  
Thomas Page ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Carers ◽  
Factors Influencing ◽  
People With Dementia

[P2-517]: A SYSTEMATIC REVIEW OF FACTORS ASSOCIATED WITH QUALITY OF LIFE OF FAMILY CARERS OF PEOPLE WITH DEMENTIA: AN INTERNATIONAL PERSPECTIVE

2017 ◽  
Vol 13 (7S_Part_17) ◽  
pp. P838-P839
Author(s):  
Nicolas Farina ◽  
Thomas Page ◽  
Stephanie Daley ◽  
Anna Brown ◽  
Ann Bowling ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
International Perspective ◽  
Family Carers ◽  
Factors Associated ◽  
People With Dementia

scholarly journals Health-Related Quality of Life Among Homeless Smokers: Risk and Protective Factors of Latent Class Membership

2018 ◽  
Vol 45 (1) ◽  
pp. 40-51 ◽  
Author(s):  
Lorra Garey ◽  
Lorraine R. Reitzel ◽  
Julie Neisler ◽  
Darla E. Kendzor ◽  
Michael J. Zvolensky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Protective Factors ◽  
Latent Class ◽  
Risk And Protective Factors ◽  
Health Related Quality ◽  
Class Membership ◽  
Related Quality ◽  
Health Related

scholarly journals Quality of Life of Preterm Children: Risk and Protective Factors

2016 ◽  
Vol 26 (65) ◽  
pp. 325-332
Author(s):  
Juliana Aparecida Martini ◽  
Flávia Helena Pereira Padovani ◽  
Gimol Benzaquen Perosa
Keyword(s):  
Quality Of Life ◽  
Protective Factors ◽  
Behavioral Problems ◽  
Survival Rates ◽  
Risk And Protective Factors ◽  
Cognitive Test ◽  
Older Children ◽  
High Prevalence ◽  
Intellectual Level

Abstract Given the significant increase in survival rates of prematurely born children, this study assessed their quality of life at school age and identified potential risk and protective factors. We included 57 children with premature birth aged 5 to 8 years. Participants completed a cognitive test, and their parents assessed their behavior and quality of life. Most children presented an average or high intellectual level. Despite the mildly compromised quality of life, we observed a high prevalence of behavioral problems in older children. Male participants and behavioral problems were identified as risk factors for lower quality of life; this finding indicates the need to implement systematic monitoring services to facilitate adaptation of premature born children when entering in the school.

scholarly journals How do people with dementia and family carers value dementia‐specific quality of life states? An explorative “Think Aloud” study

2019 ◽  
Vol 38 (S2) ◽  
pp. 75-82 ◽  
Author(s):  
Julie Ratcliffe ◽  
Claire Hutchinson ◽  
Rachel Milte ◽  
Kim‐Huong Nguyen ◽  
Alyssa Welch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Think Aloud ◽  
Family Carers ◽  
People With Dementia
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