scholarly journals iSupport‐Portugal: Adapting an evidence‐based online intervention for dementia caregivers to a different culture

2020 ◽  
Vol 16 (S11) ◽  
Author(s):  
Soraia Teles ◽  
Maria do Rosário Zincke ◽  
Milaydis Sosa‐Napolskij ◽  
Ana Ferreira ◽  
Constança Paúl
2020 ◽  
Vol 16 (S8) ◽  
Author(s):  
Soraia Teles ◽  
Maria do Rosário Zincke ◽  
Milaydis Sosa‐Napolskij ◽  
Ana Ferreira ◽  
Constança Paúl

2021 ◽  
Author(s):  
Nicole R DeTore ◽  
Louisa Sylvia ◽  
Elyse R Park ◽  
Anne Burke ◽  
Julie H Levison ◽  
...  

Introduction: The psychological wellbeing of healthcare workers has been impacted by the high levels of stress many have experienced during the COVID-19 pandemic. This study aimed to examine the feasibility and acceptability of a brief online course focused on introducing skills that could increase resilience and decreases emotional distress in healthcare workers during the pandemic. Materials and Methods: Employees of a large healthcare system completed a survey at baseline, one month, and two months later. The online course, called Resilience Training for Healthcare Workers, consists of three 12-20 minute videos focused on evidence-based skills that support aspects of emotional resilience: mindfulness, mentalization, and self-compassion. Results: A total of 554 participants completed the baseline survey, endorsing moderate to high levels of emotional distress. Of those who completed all three assessments and participated in the course (n = 38), significant improvements in resilience and reductions in emotional distress were found across two months, in comparison to those who did not participate in the course. Discussion: These findings suggest that a brief, online intervention can improve the mental health of healthcare workers during a crisis such as the COVID-19 pandemic.


2020 ◽  
pp. 136346152097074
Author(s):  
Kate Ellis ◽  
Laura E. Miller-Graff

Cultural adaptation of evidence-based treatments is a pressing priority for global health, and previous research has informed recommendations for guiding the process of translation and adaptation. As research in the domain of cultural adaptation and evaluation of evidence-based treatments progresses, it is critical that researchers communicate key lessons learned, so that models of adaptation can be continuously refined and reconsidered. The work described in this article aimed to translate and culturally adapt an online intervention to address symptoms of posttraumatic stress—the PTSD Coach Online—for use with young adults in Egypt. The cultural adaptation framework proposed by Bernal and colleagues (1995) was used, and focus groups and interviews with members of the target population, mental health professionals, and service users were conducted. The authors encountered a number of challenges in treatment adaptation that generated important insights for future work. Specifically, this case study highlights the importance of translation teams with diverse backgrounds and experiences, the critical nature of iterative feedback throughout the adaptation process, and the importance of a long time-horizon for optimal adaptation.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S353-S354
Author(s):  
Lauren Parker ◽  
Laura N Gitlin

Abstract Two of the goals of the National Strategy for Recruitment and Participation in Alzheimer’s Disease and Related Dementias Clinical Research are to “increase awareness and engagement (Goal 1)” and to “engage local communities and support participants (Goal 3)”. Leveraging the findings from two National Institute on Aging funded dementia-caregiving related research studies, ADS-Plus and The Providing Evidence-Based Approaches to Caregiver Stress, the goal of this presentation is to discuss methodologies and approaches to develop culturally competent content for outreach. Recruitment strategies from the two studies will explore the impact of race/ethnicity on recruiting Hispanic (ADS-Plus), and Black/African American populations. Further, the effectiveness of recruitment strategies from both studies will be discussed, as an effort to (1) conceptualize best practices necessary to develop and sustain equitable and sustainable community partnership, and (2) create and improve evidence-based recruitment resources.


2009 ◽  
Vol 32 (Supplement) ◽  
pp. S83-S92 ◽  
Author(s):  
Alan B. Stevens ◽  
Kevin Lancer ◽  
Emily R. Smith ◽  
Lisa Allen ◽  
Richard McGhee

2021 ◽  
Vol 2 ◽  
Author(s):  
Kirsten A. Smith ◽  
Jane Vennik ◽  
Leanne Morrison ◽  
Stephanie Hughes ◽  
Mary Steele ◽  
...  

Background: Empathic communication and positive messages are important components of “placebo” effects and can improve patient outcomes, including pain. Communicating empathy and optimism to patients within consultations may also enhance the effects of verum, i.e., non-placebo, treatments. This is particularly relevant for osteoarthritis, which is common, costly and difficult to manage. Digital interventions can be effective tools for changing practitioner behavior. This paper describes the systematic planning, development and optimization of an online intervention—“Empathico”–to help primary healthcare practitioners enhance their communication of clinical empathy and realistic optimism during consultations.Methods: The Person-Based Approach to intervention development was used. This entailed integrating insights from placebo and behavior change theory and evidence, and conducting primary and secondary qualitative research. Systematic literature reviews identified barriers, facilitators, and promising methods for enhancing clinical empathy and realistic optimism. Qualitative studies explored practitioners' and patients' perspectives, initially on the communication of clinical empathy and realistic optimism and subsequently on different iterations of the Empathico intervention. Insights from the literature reviews, qualitative studies and public contributor input were integrated into a logic model, behavioral analysis and principles that guided intervention development and optimization.Results: The Empathico intervention comprises 7 sections: Introduction, Empathy, Optimism, Application of Empathico for Osteoarthritis, Reflection on my Consultations, Setting Goals and Further Resources. Iterative refinement of Empathico, using feedback from patients and practitioners, resulted in highly positive feedback and helped to (1) contextualize evidence-based recommendations from placebo studies within the complexities of primary healthcare consultations and (2) ensure the intervention addressed practitioners' and patients' concerns and priorities.Conclusions: We have developed an evidence-based, theoretically-grounded intervention that should enable practitioners to better harness placebo effects of communication in consultations. The extensive use of qualitative research throughout the development and optimization process ensured that Empathico is highly acceptable and meaningful to practitioners. This means that practitioners are more likely to engage with Empathico and make changes to enhance their communication of clinical empathy and realistic optimism in clinical practice. Empathico is now ready to be evaluated in a large-scale randomized trial to explore its impact on patient outcomes.


BMJ Open ◽  
2018 ◽  
Vol 8 (12) ◽  
pp. e023789 ◽  
Author(s):  
Odette Wegwarth ◽  
Martin Widschwendter ◽  
David Cibula ◽  
Karin Sundström ◽  
Rosalba Portuesi ◽  
...  

ObjectivesInformed decisions about cancer screening require accurate knowledge regarding cancer risks and screening. This study investigates: (1) European women’s knowledge of their risk of developing breast, ovarian, cervical or endometrial cancer, (2) their knowledge about mammography screening and (3) whether an evidence-based leaflet improves their knowledge.DesignCross-sectional online intervention survey.SettingNational samples from five European countries (Czech Republic, Germany, UK, Italy and Sweden)—drawn from the Harris Interactive and the Toluna panel, respectively, in January 2017—were queried on their knowledge of age-specific risks of developing breast, cervical, ovarian or endometrial cancer within the next 10 years and of mammography screening before and after intervention.ParticipantsOf 3629 women (inclusion criteria: age 40–75 years) invited, 2092 responded and 1675 completed the survey (response rate: 61.4%).InterventionEvidence-based leaflet summarising information on age-adjusted female cancer risks, mammography and aspects of cancer prevention.Primary outcome measuresProportion of women (1) accurately estimating their risk of four female cancers, (2) holding correct assumptions of mammography screening and (3) changing their estimations and assumptions after exposure to leaflet.FindingsAcross countries, 59.2% (95% CI 56.8% to 61.6%) to 91.8% (95% CI 90.3% to 93.0%) overestimated their female cancer risks 7–33 fold (mediansacross tumours: 50.0 to 200.0). 26.5% (95% CI 24.4% to 28.7%) were aware that mammography screening has both benefits and harms. Women who accurately estimated their breast cancer risk were less likely to believe that mammography prevents cancer (p<0.001). After leaflet intervention, knowledge of cancer risks improved by 27.0 (95% CI 24.9 to 29.2) to 37.1 (95% CI 34.8 to 39.4) percentage points and of mammography by 23.0 (95% CI 21.0 to 25.1) percentage points.ConclusionA considerable number of women in five European countries may not possess the prerequisites for an informed choice on cancer screening. Evidence-based information in patient leaflets can improve this situation.


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