Aim To identify factors that could influence women's understanding of Down syndrome (DS) screening information presented by midwives. Methods Current literature was scrutinised. Components that could influence women's understanding were identified and a new framework was developed and refined. Measures were selected and developed to create a tool to assess the framework. Findings A new framework and assessment tool, measuring understanding of screening information and communication (MUSIC), was developed to assess women's understanding of DS screening information, their cognitive status and the midwives' communicative style. Conclusion This framework is the first of its kind, encompassing both women's cognitive status and midwife communication as an influence on women's understanding. Applying the framework and tool could inform midwifery practice by providing an insight into whether, to what extent and how, cognitive status influences understanding of DS screening information, the importance of tailoring information to each woman and highlighting areas of communication that are most effective.
Epileptic spasms in individuals with Down syndrome: A review of the current literature
