The impact of awareness of terminal illness on quality of death and care decision making: a prospective nationwide survey of bereaved family members of advanced cancer patients

2013 ◽  
Vol 22 (12) ◽  
pp. 2771-2778 ◽  
Author(s):  
Eunmi Ahn ◽  
Dong Wook Shin ◽  
Jin Young Choi ◽  
Jina Kang ◽  
Dae Kyun Kim ◽  
...  
Keyword(s):  
Decision Making ◽  
Cancer Patients ◽  
Terminal Illness ◽  
Nationwide Survey ◽  
Advanced Cancer Patients ◽  
Quality Of Death ◽  
Bereaved Family ◽  
The Impact ◽  
Care Decision

scholarly journals Eating-related distress and need for nutritional support of families of advanced cancer patients: a nationwide survey of bereaved family members

2016 ◽  
Vol 7 (5) ◽  
pp. 527-534 ◽  
Author(s):  
Koji Amano ◽  
Isseki Maeda ◽  
Tatsuya Morita ◽  
Yoshiro Okajima ◽  
Takashi Hama ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Advanced Cancer ◽  
Nutritional Support ◽  
Family Members ◽  
Nationwide Survey ◽  
Advanced Cancer Patients ◽  
Bereaved Family

Quality of death, rumination, and posttraumatic growth among bereaved family members of cancer patients in home palliative care

2017 ◽  
Vol 26 (12) ◽  
pp. 2168-2174 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Posttraumatic Growth ◽  
Cancer Patients ◽  
Family Members ◽  
Quality Of Death ◽  
Bereaved Family

Complementary and Alternative Medicine Among Advanced Cancer Patients Enrolled on Phase I Trials: A Study of Prognosis, Quality of Life, and Preferences for Decision Making

2007 ◽  
Vol 25 (5) ◽  
pp. 548-554 ◽  
Author(s):  
Fay J. Hlubocky ◽  
Mark J. Ratain ◽  
Ming Wen ◽  
Christopher K. Daugherty
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Phase I ◽  
Cancer Patients ◽  
Early Phase ◽  
Phase I Trials ◽  
Advanced Cancer Patients ◽  
Cancer Trial ◽  
Cam Use

Purpose We sought to describe complementary and alternative medicine (CAM) usage among phase I trial participants and to describe these patients' treatment decision-making preferences, awareness of prognosis, survival, and quality of life. Patients and Methods Advanced cancer patients enrolling onto phase I trials were surveyed regarding biologically based CAM use. Decision-making preferences and awareness of prognosis were assessed using validated and/or standardized instruments. The Functional Assessment of Cancer Therapy–General instrument was used to assess quality of life. Univariate and multivariate analyses were performed to detect differences between CAM users and nonusers. Results Of 212 interviewed patients, 34% (n = 72) described taking biologically based CAM. Median age of those taking biologically based CAM was 55 years, compared with 62 years for nonusers (P < .005). There were no statistically significant differences found between CAM usage and preferences for degree of patient involvement in medical decision making. Those patients who acknowledged that their deaths were likely to occur within 1 year were more likely to admit to prior CAM use (70% v 34%; P = .02). CAM users had poorer overall quality of life compared with nonusers (87.0 ± 12.4 v 91.2 ± 14.7; P = .007). No differences in survival were identified. Conclusion Prior CAM use among phase I cancer trial patients studied was common and associated with age, stated acknowledgment of prognosis, and quality of life. Patients enrolling onto early-phase trials should be questioned about CAM use. Additional study is needed to determine the frequency of use of those biologically based CAM agents that threaten the accuracy of early-phase cancer trial data.

scholarly journals Chinese Physicians’ Perceptions of Palliative Care Decision-making for Advanced Cancer Patients: A Qualitative Analysis at a Tertiary Hospital in Changsha, China

2021 ◽  
Author(s):  
Jessica Hahne ◽  
Xiaomin Wang ◽  
Rui Liu ◽  
Yuqiong Zhong ◽  
Xin Chen ◽  
...  
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Medical Training ◽  
Family Members ◽  
Tertiary Hospital ◽  
Advanced Cancer Patients ◽  
Care Access ◽  
Care Decision

Abstract Background: Little previous research has been conducted outside of major cities in China to examine how physicians currently perceive palliative care, and to identify specific goals for training as palliative care access expands. This study explored physicians’ perceptions of palliative care decision-making for advanced cancer patients in Changsha, China.Methods: We conducted semi-structured qualitative interviews with physicians (n=24) specializing in hematology or oncology at a tertiary hospital. Results: Most physicians viewed palliative care as equivalent to end-of-life care, while a minority considered it possible to integrate palliative care with active treatment. Almost all physicians maintained separate conversations about palliative care with family members and patients, communicating more directly with family members than with patients about palliative care decisions. Physicians described experiencing ethical tension between the desire of family members to protect the patient from knowing they have advanced cancer, and the patient’s “right to decide” about palliative treatment. Physicians varied overall regarding perceptions of the role they should have in palliative care decision-making.Conclusions: As palliative care access expands in China, medical training should encourage earlier integration of palliative care for advanced cancer, address ethical issues faced by physicians communicating about palliative care, and establish guidance on the role of the physician in palliative care decision-making.

scholarly journals Quality of life in advanced cancer patients: the impact of sociodemographic and medical characteristics

2001 ◽  
Vol 85 (10) ◽  
pp. 1478-1485 ◽  
Author(s):  
M S Jordhøy ◽  
P Fayers ◽  
J H Loge ◽  
T Saltnes ◽  
M Ahlner-Elmqvist ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Advanced Cancer Patients ◽  
The Impact
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