Developing “Nurse AMIE”: A tablet‐based supportive care intervention for women with metastatic breast cancer

2019 ◽  
Vol 29 (1) ◽  
pp. 232-236
Author(s):  
Kathryn H. Schmitz ◽  
Xiaochen Zhang ◽  
Renate Winkels ◽  
Erica Schleicher ◽  
Katlynn Mathis ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Supportive Care ◽  
Metastatic Breast ◽  
Care Intervention ◽  
Supportive Care Intervention

scholarly journals Assessment of Clinical and Psychological Needs of Patients With Metastatic Breast Cancer: Challenges and Gaps in Meeting Their Needs in Uganda

2018 ◽  
Vol 4 (Supplement 3) ◽  
pp. 11s-11s
Author(s):  
Henry Ddungu ◽  
Edward Kumaketch ◽  
Eva Namisango
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Metastatic Breast Cancer ◽  
Supportive Care ◽  
Family Caregivers ◽  
Metastatic Breast ◽  
Psychological Needs ◽  
Cost Of Care ◽  
Care Providers ◽  
Care Services

Purpose Uganda has one of the highest age-standardized incidence rates for breast cancer (38.3/100,000) occurring among women age 35 to 45 years. The disease is associated with increased biomedical and psychological demands on affected women and their families. Clinical and supportive care services are offered to patients with metastatic breast cancer (MBC) to meet their needs and improve survival and quality of life. However, the existence of challenges and barriers to health care access affect the satisfaction of the needs of patients with MBC and imply that available services cannot meet every clinical and psychological need these patients. No previous assessment has been done in Uganda of the clinical and psychological needs of patients with MBC. The aim of the current study was to generate data that can be used to increase awareness of the unmet clinical and psychological needs of patients with MBC and their families to inform advocacy strategies for supportive care services in Uganda. Methods We conducted interviews, in-depth interviews, focus group discussions, and document review. Results Patients with MBC (n = 67), survivors (n = 185), clinical providers (n = 24), family (n = 134), and VHT (n = 12) participated in this work. The patient’s most important needs include physical and daily living needs (relieving pain, 85.69%; nutrition and diet, 83.69%; wound management, 80.69%; help when tired, 74.6%; help with house cores, 73.19%); health system, information, and patient support (treatment with dignity, 86.6%; pleasant environment, 83.6%; sensitivity to feelings, 80.6%; counseling, 79.1%; choice of cancer specialists, 77.6%; treatment plan, 76.1%; respect for a patient’s opinion, 74.6%); and psychological (close family concerns, 79.1%; advice on faith, 79.6%; comforting when sad, 74.6%; positive outlook, 73.3%; how to disclose, 71.6%). Long waiting times, out-of-stock medicines, inadequate hospital amenities, family exclusion during patient review conversations, caregiver burnout, cost of care, limited funding, and spiritual, legal, and human resource shortages were needs and challenges identified by survivors, family caregivers, clinical providers, and policymakers. Polices on supportive care for patients with MBC are also unclear. Conclusion There exists a mismatch between patients with MBC, survivors, and health care providers with regard to knowledge of some of the needs of patients with MBC, particularly clinical-related information needs. Dialogue between patients with MBC, survivors, family caregivers, clinical providers, and VHTs is recommended to harmonize knowledge and perceptions of the needs of patients with MBC. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST The following represents disclosure information provided by authors of this manuscript. All relationships are considered compensated. Relationships are self-held unless noted. I = Immediate Family Member, Inst = My Institution. Relationships may not relate to the subject matter of this manuscript. For more information about ASCO's conflict of interest policy, please refer to www.asco.org/rwc or ascopubs.org/jco/site/ifc . No COIs from the authors.

A Specialist Breast Care Nurse Role for Women With Metastatic Breast Cancer: Enhancing Supportive Care

2011 ◽  
Vol 38 (6) ◽  
pp. 627-631 ◽  
Author(s):  
Kaaren Watts ◽  
Bettina Meiser ◽  
Helen Conlon ◽  
Susan Rovelli ◽  
Kerry Tiller ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Supportive Care ◽  
Metastatic Breast ◽  
Care Nurse ◽  
Nurse Role ◽  
Breast Care Nurse ◽  
Breast Care

scholarly journals Finding Your Way When You Have Metastatic Breast Cancer: Codesigning Resources With Consumers for Consumers. The Signpost Study

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 232s-232s
Author(s):  
C. Devereux ◽  
P. Salamanca ◽  
R. Lam ◽  
N. Moloczij ◽  
M. Krishnasamy
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Supportive Care ◽  
Health Professionals ◽  
Geographical Location ◽  
Metastatic Breast ◽  
Breast Cancer Diagnosis ◽  
Initial Development ◽  
Need For Support ◽  
The Impact

Background: In Australia, women with metastatic breast cancer are not systematically made aware of or helped to access supportive care resources. Finding resources tailored to their needs can be challenging as they spread across several healthcare and advocacy organizations. Furthermore, resources assume varying levels of knowledge about the disease and its treatments, are fragmented and are dispersed across multiple organizations. Aim: The aim of our study was to codesign a signpost resource to direct women to key supportive care organizations that provide relevant, timely and comprehensive support for them; ensure women are made aware of and know how to access support they need, as and when they need it; and ensure that health professionals are aware of the resource, support its use, and distribute it to women. Methods: Using a codesign framework, initial development of the resource was guided by consumer representation on the study Steering Group. The resource was then presented to women living with metastatic breast cancer, and their advice obtained about its relevance and functionality during semistructured interviews. Purposive sampling based on age, time since diagnosis and geographical location (metro/regional), was used to obtain a variety of perspectives. Open-ended questions explored what the resource should contain, look like, and how it could best be introduced and distributed. An iterative descriptive analytical approach was applied. Results: Seven women aged 40-61 years were interviewed. Time since their metastatic breast cancer diagnosis ranged from 5 months to 19 years. Women told us about their preferences for style, content and format for the resource. They also guided discussion about how best to promote the resources in a way that both informed health professionals but also empowered women to find and express a need for support. As a result, 2 videos were produced. In the first 3-minute video for health professionals, consumers powerfully convey messages about the impact of their diagnosis, their need for support and how important it is for health professionals to “value and believe there are emotional, social and material aspects of coping with the disease” (this video will be shared in the presentation). In the second 4-minute video, consumers endorse the need for information and support, and women and consumers watching the video are introduced to the services provided by supportive care organizations profiled on the resource. Conclusion: Resources created and tailored by consumers for consumers are powerful and important. Consumer-led interventions that demonstrate to health professionals the importance of supportive care as a cornerstone of excellent cancer care may have a considerable impact but require empirical testing.

scholarly journals “Joven y Fuerte Metastásico”: Integrative Oncology Intervention for Metastatic Breast Cancer Patients

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 171s-171s
Author(s):  
A. Platas de la Mora ◽  
C.L. Gálvez Hernández ◽  
A.L. Platas de la Mora ◽  
A. Fonseca Perezamador ◽  
R. Menéndez-Aponte ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Supportive Care ◽  
Clinical Care ◽  
Disease Process ◽  
Metastatic Breast ◽  
Integrative Oncology ◽  
Care Model ◽  
Support Intervention ◽  
Supportive Interventions

Background and context: Breast cancer (BC) patients in Mexico are frequently diagnosed at advanced stages, with stages III or IV comprising up to 60%. Advanced BC (ABC) patients face distinct practical and emotional challenges and are recognized to be vulnerable to additional emotional distress and psychosocial issues, thus needing special supportive interventions. Equally significant are the consequences of the illness for their partners, children, parents and peers. However, in Mexico, a middle-income country with significant socioeconomic limitations, cancer control efforts have been predominantly directed to enhance medical care, while psychological and supportive interventions have not been a priority, especially among the ABC patients. Aim: To promote the empowerment of ABC patients, their children, spouses and caregivers by developing a supportive care model to help them cope better throughout the complex process of ABC. This proposed support intervention is an innovative approach for psychosocial support in a variety of modalities adapted for ABC patients' needs. This project is being supported by the SPARC Metastatic Breast Cancer Challenge. Strategy: Our target population includes patients with ABC followed at the National Cancer Institute in Mexico City. A supportive care model will be developed based on two main interventions: Support groups: Comprises a support group exclusively designed for women with ABC. Also, a toll-free telephone support session will be provided for patients with transportation restrictions to share their concerns. Integrative oncology techniques: This approach involves the implementation of four integrative oncology techniques, which include: occupational therapy, expressive creative techniques, mind–body interventions, and acupuncture. Policy process: The implementation of this adaptive model will allow us to understand the repercussions of the proposed strategy, to prioritize specific techniques in subsequent interventions. This novel support intervention will provide ABC patients, their caregivers, and children, with techniques to better cope through the disease process. We intent to further increase this model to reach patients of other medical institutions. Outcomes: At least 80 patients and their caregivers will participate in the proposed intervention. The results of this project will give us grounds to establish a replicable scheme, ensuring that ABC patients' needs will be addressed in an integral approach. This intervention aims to improve the quality of life of patients and their families. What was learned: At the end of this project a proven supportive care model will be defined and shared with other oncological clinical care centers and NGOs. Ultimately, we aim to contribute to the established guidelines in Mexico for ABC patients.

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