Quality of Life Issues Identified by Healthcare Workers and Patients with Metastatic Carcinoid/Neuroendocrine Tumours

2004 ◽  
pp. 18-22
Author(s):  
J. K. Ramage
Keyword(s):  
Quality Of Life ◽  
Healthcare Workers ◽  
Neuroendocrine Tumours ◽  
Metastatic Carcinoid ◽  
Life Issues

A Systematic Review of Symptoms and Quality of Life Issues in Pancreatic Neuroendocrine Tumours

2017 ◽  
Vol 105 (3) ◽  
pp. 320-330 ◽  
Author(s):  
Megan Topping ◽  
Debra Gray ◽  
Elizabeth Friend ◽  
Albert Davies ◽  
John K. Ramage
Keyword(s):  
Quality Of Life ◽  
Neuroendocrine Tumours ◽  
Web Of Science ◽  
Data Extraction ◽  
Cochrane Library ◽  
Life Issues ◽  
Pancreatic Neuroendocrine Tumours ◽  
Patient Groups ◽  
The Cochrane Library

Purpose: Pancreatic neuroendocrine tumours (pNETs) are rare neoplasms, in that they may only present symptoms of the hormone secreted, without any generic cancer issues. It is thus important to measure quality of life (QoL) in these patients by evaluating issues relevant and important to them, as opposed to general cancer issues. This paper systematically reviews papers addressing the symptoms and QoL implications of pNETs, and evaluates each subtype separately, with the aim to create a list of QoL issues relevant to these patient groups. Methods: Medline, EMBASE, CINAHL, PsycInfo, Web of Science, Scopus, OpenGrey, and the Cochrane Library were searched for publications (1990-2016) reporting symptoms and QoL issues in pNETs. Results: Following screening of 2,797 papers, 69 articles were eligible for data extraction. From these papers, 84 different symptoms or QoL issues were extracted: 21 for gastrinoma, 18 for glucagonoma, 50 for insulinoma, 10 for VIPoma and 15 for non-functioning pNETs. No issues were reported for somatostatinoma, PPoma or ACTHoma. The most frequently reported symptoms vary by subtype. Conclusions: This review emphasises the need to develop a QoL measure for pNETs with specific items relevant to the different subtypes, due to the distinct symptoms reported. Following from this review, patient and healthcare professional interviews will be conducted in large cohorts across many different countries to collect more data on QoL issues specific to pNETs. This data will all be collated with the aim to create a QoL measure for pNETs.

Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease

2006 ◽  
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Childhood Cancer ◽  
Children And Adolescents ◽  
Peer Relationships ◽  
Sickle Cell ◽  
Cell Disease ◽  
Life Issues ◽  
Art Research

Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.

scholarly journals COVID-19 and Quality of Life: Twelve Reflections

2021 ◽  
Author(s):  
Daniel T. L. Shek
Keyword(s):  
Quality Of Life ◽  
Digital Divide ◽  
Well Being ◽  
Sudden Onset ◽  
Economic Disadvantage ◽  
Conflict Prevention ◽  
Collective Rights ◽  
The World ◽  
Life Issues

AbstractCOVID-19 has severely affected the world since December 2020. Because of its sudden onset and highly contagious nature, the world has responded in a “crisis management” manner. With effective vaccines almost available, it is appropriate at this time to have some reflections about COVID-19 in relation to the quality of life issues. In this paper, we highlight twelve issues for reflection, which can help us better prepared for future pandemics. These include: digital divide, health inequality, gender inequality, economic disadvantage, family well-being, impact on holistic well-being, economic development versus saving lives, consumption versus environmental protection, individual rights versus collective rights, international collaboration versus conflict, prevention of negative well-being, and promotion of positive well-being.

scholarly journals Impact of Specific Bowel Symptoms on Quality of Life in Patients with Midgut Neuroendocrine Tumours

2021 ◽  
Author(s):  
Håkan Ohlsson ◽  
Gideon Wahlberg ◽  
Marlene Malmquist ◽  
Rita Gustafsson ◽  
Anna Sundlöv ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neuroendocrine Tumours ◽  
Bowel Function ◽  
Charlson Comorbidity Index Score ◽  
Bowel Symptoms ◽  
Hrqol Questionnaire ◽  
Related Quality ◽  
Eortc Qlq ◽  
Midgut Net

Abstract Introduction Patients with midgut neuroendocrine tumours (NETs) suffer from decreased health-related quality of life (HRQoL), in large part due to bowel symptoms. However, it is unknown which bowel symptoms affect HRQoL the most. An enhanced understanding of this is essential to better focus treatment on this aspect of the disease. This study aimed to determine which bowel symptoms affect HRQoL the most in patients with midgut NETs. Methods Consenting patients with midgut NET completed the Memorial Sloan Kettering Bowel Function Instrument and the HRQoL questionnaire (EORTC QLQ-C30). The correlation between bowel symptoms and HRQoL was analysed using multiple linear regression, adjusting for age, Charlson Comorbidity Index score, presence of metastatic disease, chromogranin A, and BMI yielding ß-coefficients with 95% confidence intervals. Results Totally, 119 patients with midgut NET completed the questionnaires and were included in the study. Loose stool and bowel frequency ≥ 3/day were the most common bowel symptoms, reported by 47% and 56% of patients, respectively. However, sensitivity to certain types of food and beverages, a feeling of incomplete emptying of the bowel, and soiling were the symptoms most strongly correlated with decreased HRQoL, especially within domains concerning role and social function, with ß-coefficients for the strongest correlated symptoms of 15.0 and 14.6, respectively. Discussion While symptoms concerning stool consistency and frequency are common in patients with midgut NET, our study suggests that other, more socially stigmatising symptoms affect patients’ HRQoL more. Our findings could help caregivers understand patients’ perceptions of the disease and provide avenues for more directed therapies.

“Growing pains” in young children: A study of the profile, experiences and quality of life issues of four to six year old children with recurrent leg pain

The Foot ◽  
2006 ◽  
Vol 16 (3) ◽  
pp. 120-124 ◽  
Author(s):  
Angela M. Evans ◽  
Sheila D. Scutter ◽  
Linda M.G. Lang ◽  
Brenton R. Dansie
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Leg Pain ◽  
Growing Pains ◽  
Life Issues

Quality of Life of Healthcare Workers Suffering from Occupational Contact Dermatitis

2021 ◽  
Vol 15 ◽  
Author(s):  
Amira Omrane ◽  
Asma Khedher ◽  
Chayma Harrathi ◽  
Maher Maoua ◽  
Taoufik Khalfallah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Contact Dermatitis ◽  
Healthcare Workers ◽  
Female Gender ◽  
Public Hospitals ◽  
Healthcare Personnel ◽  
Related Factors ◽  
Cross Sectional ◽  
Occupational Contact Dermatitis

Background: Healthcare workers are at a high risk of developing Occupational Dermatitis (OD). Affected workers often experience severe impairment of their Quality of Life (QoL). This study aimed to assess the skin-related QoL of healthcare workers with OD and to explore its related factors. Methods: A cross-sectional and exhaustive study was conducted among healthcare personnel of four public hospitals in the central region of Tunisia. All the cases of OD declared were included. Skin-related QoL was assessed using the validated Tunisian version of the “Dermatology Life Quality Index” (DLQI). Some related patents were discussed. Results: A total of 37 cases of OD were collected with an annual incidence of 4.2 cases per 10000 workers. The population was predominantly female (73%) and mean aged 44.7±9.4 years. Nurses were the most represented occupational category (38%). Allergic contact dermatitis was the most frequent diagnosis (96%). Use of gloves was the most frequently reported occupational hazard (86%). The most frequently affected sites were hands (97%). The median score of DLQI was five. Multivariate analysis showed an association between the impairment of skin-related QoL and female gender (p = 0.04; OR = 19.3,84), exposure to disinfecting chemicals in the workplace (p = 0.01; OR = 17,306) and the absence of occupational reclassification (p = 0.01; OR = 21,567). Conclusion: About one third of the population had an impaired quality of life. The score impairment was significantly related to female gender, exposure to disinfecting chemicals and the absence of occupational reclassification.

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