scholarly journals Telemedizinische Betreuung und IT-gestützte Verfahren in der Rheumatologie

2021 ◽  
Author(s):  
Rick McCutchan ◽  
Philipp Bosch
Keyword(s):  
Patient Reported Outcomes ◽  
Face To Face ◽  
Patient Reported ◽  
Klinische Routine

Zusammenfassung Hintergrund Die COVID-19-Pandemie, aber auch die immer größere werdende Beanspruchung des Gesundheitssystems führen dazu, dass die Weiterentwicklung von telemedizinischen Angeboten auch in der Rheumatologie in den Vordergrund gerückt ist. Fragestellung Welche Evidenz existiert zu telemedizinischen Angeboten in der Rheumatologie? Material und Methode Es erfolgt ein narrativer Review zu bestehenden Arbeiten über Telemedizin in der Rheumatologie. Ergebnisse Elektronische „patient reported outcomes“ (ePROs) können von PatientInnen von zu Hause aus bestimmt und dem betreuenden Rheumatologen elektronisch geschickt werden. ePROs könnten in Zukunft dabei helfen zu entscheiden, wann eine klinische Visite notwendig ist. Telemedizinische Visiten wurden bereits durchgeführt bei gut eingestellten PatientInnen mit rheumatischen Erkrankungen mit guten Ergebnissen hinsichtlich Sicherheit und Krankheitsverlauf im Vergleich zu konventionellen Face-to-face-Visiten. Telemedizinische Visiten stellen ein interessantes Tool für Terminpriorisierung und Triage dar, wobei automatisierte, algorithmusbasierte Applikationen derzeit für die klinische Routine noch zu ungenau sind. Die Rolle von Smartphone-Applikationen in der Betreuung von PatientInnen mit rheumatischen Erkrankungen ist noch unklar. Diskussion Telemedizin stellt eine interessante Option für bestimmte PatientInnengruppen mit rheumatischen Erkrankungen dar. Abgesehen von Forschung an Effektivität und Sicherheit telemedizinischer Maßnahmen, müssen Entscheidungsträger klare Regeln vorgeben, wie Telemedizin eingesetzt werden soll, um dem individuellen Patienten die bestmögliche Behandlung zukommen zu lassen.

scholarly journals Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Amalie Søgaard Nielsen ◽  
Charlotte W. Appel ◽  
Birgit Furstrand Larsen ◽  
Lars Kayser ◽  
Lisa Hanna
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Digital Literacy ◽  
Patient Reported Outcomes ◽  
Routine Care ◽  
Ehealth Literacy ◽  
Face To Face ◽  
Patient Reported ◽  
Inflammatory Bowel ◽  
High Degree

Abstract Background Digital patient reported outcomes are used increasingly in daily care and treatment of inflammatory bowel disease. Their purpose includes increased focus on patient wellbeing, reduction in avoidable follow-up consultations and increased patient self-management. However, implementation issues occur and studies indicate patients may have concerns, particularly regarding having fewer face-to-face consultations. This study aims to explore patients’ perspectives of use and non-use of digital patient reported outcomes and to understand the mechanisms underpinning patient reluctance to engage with this health technology. Results Sixteen patients with inflammatory bowel disease at a regional hospital in Denmark were interviewed about their experiences of, and perspectives on, digital patient reported outcomes. A certain level of eHealth literacy was found to be a fundamental condition for use, while other factors were barriers or facilitators for use of digital PROs. Patients’ main concerns were about potential consequences for their care and relationship with the clinic. Most patients in stable remission were satisfied with the hospital being a “life-line” if their symptoms worsened, and perceived digital patient reported outcomes to be an efficient tool to establish that “life-line”. Patients with severe symptoms and a high degree of emotional distress related to their disease valued the potential for digital patient reported outcomes to increase their clinicians’ focus on mental health and extra-intestinal symptoms. Conclusion This study found that if patients had sufficient digital literacy, they perceived digital patient reported outcomes to be a useful replacement for face-to-face consultations. However, they were concerned about digital patient reported outcomes’ effect on the patient–clinician relationship and its ability to detect worsening of symptoms. These concerns may be mitigated by good patient–clinician relationships, and the option for patients to maintain direct telephone contact with their gastroenterology specialist.

scholarly journals EP.WE.17Surgical Telemedicine Clinics during the Covid-19 Pandemic – Patient-Reported Outcomes Report

2021 ◽  
Vol 108 (Supplement_7) ◽  
Author(s):  
Onyekachi Ekowo ◽  
Ahmed Elgabry ◽  
nuno Gouveia ◽  
Shwetal Dighe ◽  
Aftab Khan
Keyword(s):  
Patient Reported Outcomes ◽  
Female Ratio ◽  
Face To Face ◽  
Patient Feedback ◽  
Patient Reported ◽  
Male Female Ratio ◽  
The Face ◽  
Patient Responses ◽  
Online Feedback

Abstract Aims The primary aim was to obtain patient feedback about surgical telemedicine clinics. The secondary endpoint was to investigate any factors influencing the patient’s feedback. Methods A retrospective qualitative study was undertaken, during the period between June – September 2020, at Darent Valley Hospital in West Kent. Telephone and online feedback were obtained using a 5 point questionnaire designed to assess their experience and preference for future consultations. Variables such as ‘demographics’, ‘first or follow-up clinic appointment’ and ‘physician-grade’, were analysed for any influence on patients feedback. Results A total of 200 patients responded to the questionnaire (telephone = 133, online = 77). The median age was 67 years (IQR 44 – 79) and male: female ratio 1. About 35.9% were a new referral and 42.7% has had some face-to-face appointment in the hospital before the pandemic. During the period of the study, about 42.7% had more than one telemedicine appointments. About 83.2% were consulted by surgical registrars. A rating from good to excellent for ‘overall experience’, ‘opportunity to express own concern’ and ‘how well the doctor addressed their concerns’ was given at 90%, 93.1% and 89.4%, respectively. About 80.2% felt reassured and 21.7% would prefer telemedicine for future consultations. There was no association between the variables studied and patient responses. Conclusions A high percentage of patients reported satisfactory service provision via telemedicine clinics. A majority of patients felt reassured. However, given the option, the face-to-face clinic would be the prefered option for the majority.

scholarly journals Early results on the efficacy and acceptability of a cardiac rehabilitation programme that transitioned to a fully virtual platform with adoption of wearable technology for covid era

2021 ◽  
Vol 42 (Supplement_1) ◽  
Author(s):  
S B Connolly ◽  
J L Jones ◽  
C Jennings ◽  
L Neubeck ◽  
D A Wood
Keyword(s):  
Blood Pressure ◽  
Cardiac Rehabilitation ◽  
Patient Reported Outcomes ◽  
Smoking Habit ◽  
Wearable Technology ◽  
Rehabilitation Programme ◽  
Cardiac Rehabilitation Programme ◽  
Face To Face ◽  
Patient Reported ◽  
Virtual Platform

Abstract Background/Introduction Cardiaovascular prevention/rehabilitation programmes continue to reduce cardiovascular mortality even with contemporary treatment. During covid the majority of face-to-face programmes were suspended but these services have never been more crucial as control of cardiovascular risk factors can mitigate the morbidity/mortality risk from covid. Programmes must now however be delivered in a way that reduces patient exposure. Here we describe how we rapidly transitioned our previously fully face to face cardiovascular prevention/programme to a completely virtual platform adopting Fitbit as wearable technology. Methods The previously face-to-face initial assessment (IA) conducted by the multidisciplinary team (MDT) – nurse, dietician and physiotherapist is now delivered via video/phone as per patient preference. Patients are provided with equipment kits (tape measures, blood pressure monitors (BP), Fitbit smartwatches and Fibricheck app as required. The virtual IA includes assessment of: Smoking habit, blood pressure (BP), heart rate, lipid profile and HbA1c (taken in community phlebotomy hub), cardioprotective medications, weight, BMI, waist circumference, Mediterranean Diet Score, functional capacity via the Duke Activity Status Index, habitual activity levels, risk stratification for exercise, hospital anxiety and depression scores (HADS) and quality of life (QOL). Patients receive education and tailored advice with SMART goals as well as a written care plan. The subsequent 12 programme is comprised of Results Between April and November 2020 n=262 had a virtual IA (94% of those offered and n=114 (95% of those offered) attended an end of programme assessment. 64% were male and the mean age was 64.1 years. Acceptance of the Fitbit device was 72% of those offered. Table 1 below shows the main clinical and patient-reported outcomes in those attending both an IA and EOP with the data for the same 6 months the year prior (face to face programme) also for comparison. Programme satisfaction ratings were high with 85% rating the programme as excellent or very good. Conclusions Transitioning a previously fully face to face cardiac rehabilitation programme to a wholly virtual platform was feasible and acceptable to patients. Early data analysis would suggest that the virtual programme achieves similar clinical and patient reported outcomes. FUNDunding Acknowledgement Type of funding sources: Public hospital(s). Main funding source(s): Funded under Transformation Funding Programme, Department of Health, Northern Ireland Table 1

P048 QUALITY OF LIFE AND OTHER PATIENT REPORTED OUTCOMES IN PATIENTS WITH POUCHITIS

2020 ◽  
Vol 158 (3) ◽  
pp. S107
Author(s):  
Edward Barnes ◽  
Millie Long ◽  
Laura Raffals ◽  
Xian Zhang ◽  
Anuj Vyas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcomes ◽  
Patient Reported

Erfassung und Nutzen von „Patient Reported Outcomes“ (PRO) in der stationären onkologischen Routineversorgung

2014 ◽  
Vol 15 (03) ◽  
Author(s):  
M Radloff ◽  
J Schmitt ◽  
M Eberlein-Gonska ◽  
M Schuler ◽  
T Petzold ◽  
...  
Keyword(s):  
Patient Reported Outcomes ◽  
Patient Reported
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