Complementary therapy and support services for formal and informal caregivers in Italian palliative care hospices: an exploratory and descriptive study

2010 ◽  
Vol 19 (12) ◽  
pp. 1939-1947 ◽  
Author(s):  
Monia Belletti ◽  
Luca Mallia ◽  
Fabio Lucidi ◽  
Simona Reichmann ◽  
Chiara Mastroianni ◽  
...  
GeroPsych ◽  
2019 ◽  
Vol 32 (1) ◽  
pp. 19-29 ◽  
Author(s):  
Monika Oedekoven ◽  
Katja Amin-Kotb ◽  
Paul Gellert ◽  
Klaus Balke ◽  
Adelheid Kuhlmey ◽  
...  

Abstract. We investigated the association between the education of informal caregivers’ (IC) and their physical and mental burden. We hypothesized that better-educated IC would have more resources available to manage the care situation and as a result show lower perceived burden. We conducted a population survey of 6,087 German residents aged 18+ years, 966 of whom reported to be IC. Results show that IC felt more often mentally than physically burdened. In the multivariate analyses, higher-educated IC did not have lower odds of feeling physically burdened than lower-educated IC, though they did have increased odds of feeling mentally burdened. The higher perceived mental burden of higher-educated IC may be related to fear of loss of self-fulfilment and autonomy. Support services should consider the mental burden of higher-educated IC and tailor their interventions accordingly.


2020 ◽  
pp. 1-9
Author(s):  
Hyunjin Noh ◽  
Lewis H. Lee ◽  
Chorong Won

Abstract Objective Lack of palliative care knowledge among caregivers may pose an access barrier for cognitively impaired older adults, who may benefit from the specialized care. Therefore, this study aims to examine the effectiveness of an educational intervention in improving palliative care knowledge among informal caregivers of cognitively impaired older adults. Method Using a one-group, pre- and post-test intervention design, this study implemented an individual, face-to-face educational intervention with an informational brochure for 43 informal caregivers of chronically or seriously ill older adults (50+) with cognitive impairment, recruited from communities in West Alabama. Their level of knowledge about palliative care was assessed by the Palliative Care Knowledge Scale (PaCKS). The pre- and post-test scores were compared by the Wilcoxon signed-ranks test, and the racial subgroup (Whites vs. Blacks) comparison was made by the Mann–Whitney U test. Results There was a statistically significant difference between the pre- and post-test scores (z = 5.38, p < 0.001), indicating a statistically significant effect of the educational intervention in improving palliative care knowledge among participants. There was a significant difference (U = 143, p < 0.05) between Whites and Blacks in the pre-test, which, however, disappeared in the post-test (U = 173.50, p > 0.05), suggesting that the amount of increased PaCKS scores were significantly greater for Blacks (Mdn = 9.50) than for Whites (Mdn = 4.00, U = 130.50, p < 0.05). Significance of results This study demonstrated that a one-time educational intervention can improve the level of palliative care knowledge among informal caregivers of chronically or seriously ill older adults with cognitive impairment, particularly among Black caregivers. Therefore, further educational efforts can be made to promote palliative care knowledge and reduce racial disparities in palliative care knowledge and its use.


2014 ◽  
Vol 23 (2) ◽  
pp. 343-351 ◽  
Author(s):  
Bianca Sakamoto Ribeiro Paiva ◽  
André Lopes de Carvalho ◽  
Katharine Kolcaba ◽  
Carlos Eduardo Paiva

2014 ◽  
Vol 22 (5) ◽  
pp. 1391-1399 ◽  
Author(s):  
Monika Brandstätter ◽  
Monika Kögler ◽  
Urs Baumann ◽  
Veronika Fensterer ◽  
Helmut Küchenhoff ◽  
...  

Rev Rene ◽  
2017 ◽  
Vol 17 (6) ◽  
pp. 797
Author(s):  
Silmara Meneguin ◽  
Rafaela Ribeiro ◽  
Maria de Lourdes Silva Marques Ferreira

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