Role recognition and changes to self-identity in family caregivers of people with advanced cancer: a qualitative study

2011 ◽  
Vol 20 (6) ◽  
pp. 1175-1181 ◽  
Author(s):  
Anna Ugalde ◽  
Meinir Krishnasamy ◽  
Penelope Schofield
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Self Identity

Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study

2014 ◽  
Vol 24 (4) ◽  
pp. 817-828 ◽  
Author(s):  
Geok Ling Lee ◽  
Mandy Yen Ling Ow ◽  
Ramaswamy Akhileswaran ◽  
Grace Su Yin Pang ◽  
Gilbert Kam Tong Fan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Asian Population ◽  
Life Domains ◽  
Advanced Cancer Patients

scholarly journals Ethical challenges in family caregivers of patients with advanced cancer – a qualitative study

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Anneke Ullrich ◽  
Marianna Theochari ◽  
Corinna Bergelt ◽  
Gabriella Marx ◽  
Katharina Woellert ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Ethical Challenges

scholarly journals How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative study

PLoS ONE ◽  
2019 ◽  
Vol 14 (3) ◽  
pp. e0212967 ◽  
Author(s):  
J. Nicholas Dionne-Odom ◽  
Deborah Ejem ◽  
Rachel Wells ◽  
Amber E. Barnato ◽  
Richard A. Taylor ◽  
...  
Keyword(s):  
Decision Making ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Healthcare Decision ◽  
Healthcare Decision Making

Factors which Influence Coping: Home-based Family Caregiving of Persons with Advanced Cancer

2003 ◽  
Vol 19 (2) ◽  
pp. 107-114 ◽  
Author(s):  
Vicki R. Strang ◽  
Priscilla M. Koop
Keyword(s):  
Qualitative Study ◽  
Family Member ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Family Caregiving ◽  
Formal Systems ◽  
Home Based ◽  
Caregiver Experiences ◽  
Caregiver Coping ◽  
Insight Into

The findings from a qualitative study of bow caregivers coped while they cared for a dying family member at home are presented. Fifteen family caregivers were interviewed twice following The death of their family member. Although it was not one of the original objectives of the research, coping emerged as a category needing further analysis. There were factors that either facilitated or interfered with caregiver coping. Those factors that facilitated their coping included characteristics of the caregivers themselves; contributions made by the dying person; and supportive networks, both formal and informal, available to the caregivers. Interfering factors related to caregiver experiences with informal and formal systems. From the more distant Perspective of post-death reflections, the caregivers Provided insight into how their coping was grounded in the meaning associated with their experiences.

scholarly journals Caring for a person with dementia during the COVID-19 pandemic: A qualitative study with family caregivers

2021 ◽  
pp. 1-36
Author(s):  
Sabrina Cipolletta ◽  
Benedetta Morandini ◽  
Silvia Caterina Maria Tomaino
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Person With Dementia

scholarly journals Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties

2020 ◽  
pp. bmjspcare-2020-002608
Author(s):  
Joaquín T Limonero ◽  
Jorge Maté-Méndez ◽  
María José Gómez-Romero ◽  
Dolors Mateo-Ortega ◽  
Jesús González-Barboteo ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
End Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Emotional Distress ◽  
Family Caregiver ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
The Family ◽  
End Stage

BackgroundFamily caregivers of patients with advanced illness at end of life often report high levels of emotional distress. To address this emotional distress is necessary to have adequate and reliable screening tools.AimThis study analyses the psychometric properties and clinical utility of the Family Caregiver Emotional Detection Scale for caregivers of patients with end-stage cancer (DME-C, Spanish acronym) who are receiving palliative care (PC).DesignMulticentre, cross-sectional study.Settings/participantsFamily caregivers of patients with advanced cancer at end of life receiving palliative treatment were interviewed to explore their emotional distress through the DME-C scale and other instruments measuring anxiety and depression (Hospital Anxiety and Depression Scale (HADS)), distress thermometer (DT) and overload (B), as well as a clinical psychological assessment (CPA).Results138 family caregivers, 85 (61.6%) female and 53 (38.4%) male, with an average age of 59.69±13.3 participated in the study. The reliability of the scale, as measured by Cronbach’s alpha, was 0.76, and its stability over time was 0.734. Positive, significant correlations were found between the DME-C and the scores for anxiety and depression registered on the HADS scale, as well as with the total result of this latter scale and the results for B, the DT and the CPA. A statistical analysis of the receiver-operating characteristic curves showed that the scale has a sensitivity and specificity of 75%, and that the cut-off point for the detection of emotional distress was a score ≥11. Fifty-four per cent of the caregivers displayed emotional distress according to this scale.ConclusionsThe DME-C displays good psychometric properties. It is simple, short, reliable and easy to administer. We believe that the instrument is useful for the detection of emotional distress in the family caregivers of hospitalised patients suffering from end-stage illnesses and receiving PC.

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