Factors related to satisfaction of cancer patients with transfer arrangements made by university hospitals at the end-of-life in Japan: a cross-sectional questionnaire survey of bereaved family members

2020 ◽  
Author(s):  
Hiroko Ishimoto ◽  
Tokunori Ikeda ◽  
Yasuhiro Kadooka
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Questionnaire Survey ◽  
Family Members ◽  
University Hospitals ◽  
Cross Sectional ◽  
Bereaved Family

Verbal communication of families with cancer patients at end of life: A questionnaire survey with bereaved family members

2017 ◽  
Vol 27 (1) ◽  
pp. 155-162 ◽  
Author(s):  
Kazuhiro Nakazato ◽  
Mariko Shiozaki ◽  
Kei Hirai ◽  
Tatsuya Morita ◽  
Ryuhei Tatara ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Questionnaire Survey ◽  
Family Members ◽  
Verbal Communication ◽  
Bereaved Family

Care for Imminently Dying Cancer Patients: Family Members' Experiences and Recommendations

2010 ◽  
Vol 28 (1) ◽  
pp. 142-148 ◽  
Author(s):  
Takuya Shinjo ◽  
Tatsuya Morita ◽  
Kei Hirai ◽  
Mitsunori Miyashita ◽  
Kazuki Sato ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Emotional Distress ◽  
Medical Staff ◽  
Family Members ◽  
Nationwide Survey ◽  
Cross Sectional ◽  
Dying Patients ◽  
The Family ◽  
High Level ◽  
Bereaved Family

Purpose The aim of this study was to clarify the level of emotional distress experienced by bereaved family members and the perceived necessity for improvement in the care for imminently dying patients and to explore possible causes of distress and alleviating measures. Methods A cross-sectional nationwide survey was performed in 2007 of bereaved families of cancer patients at 95 palliative care units across Japan. Results Questionnaires were sent to 670 families, and 76% responded. Families reported their experiences as very distressing in 45% of cases. Regarding care, 1.2% of respondents believed that a lot of improvement was needed, compared with 58% who believed no improvement was needed. Determinants of high-level distress were a younger patient age, being a spouse, and overhearing conversations between the medical staff outside the room at the time of the patient's death; those reporting high-level necessity of improvement were less likely to have encountered attempts to ensure the patient's comfort, received less family coaching on how to care for the patient, and felt that insufficient time was allowed for the family to grieve after the patient's death. Conclusion A considerable number of families experienced severe emotional distress when their family member died. Thus, we propose that a desirable care concept for imminently dying cancer patients should include relief of patient suffering, family advisement on how to care for the patient, allowance of enough time for the family to grieve, and ensuring that family members cannot overhear medical staff conversations at the time of the patient's death.

scholarly journals End-of-life Care and Good Death of Dying Non-cancer Patients from the Perspective of Bereaved Family Members

2019 ◽  
Vol 14 (3) ◽  
pp. 177-185
Author(s):  
Akiko Unesoko ◽  
Kazuki Sato ◽  
Yuka Onishi ◽  
Mitsunori Miyashita ◽  
Tatsuya Morita ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Family Members ◽  
Good Death ◽  
Life Care ◽  
Bereaved Family

Association Among End-Of-Life Discussions, Cancer Patients’ Quality of Life at End of Life, and Bereaved Families’ Mental Health

2021 ◽  
pp. 104990912110617
Author(s):  
Yoko Hayashi ◽  
Kazuki Sato ◽  
Masahiro Ogawa ◽  
Yoshiro Taguchi ◽  
Hisashi Wakayama ◽  
...  
Keyword(s):  
Mental Health ◽  
End Of Life ◽  
Family Members ◽  
Care Quality ◽  
Patient Death ◽  
Cross Sectional ◽  
Family Outcomes ◽  
The Status ◽  
Bereaved Family

End-of-life discussions are essential for patients with advanced cancer, but there is little evidence about whether these discussions affect general ward patients and family outcomes. We investigated the status of end-of-life discussions and associated factors and their effects on patients’ quality of death and their families’ mental health. Participants in this retrospective cross-sectional observational study were 119 bereaved family members. Data were collected through a survey that included questions on the timing of end-of-life discussions, quality of palliative care, quality of patient death, and depression and grief felt by the families. Approximately 64% of the bereaved family members participated in end-of-life discussions between the patient and the attending physician, and 55% of these discussions took place within a month before death. End-of-life discussions were associated with the patients’ prognostic perception as “incurable, though there is hope for a cure” and “patients’ experience with end-of-life discussions with family before cancer.” There was a small decrease in depression and grief for families of patients who had end-of-life discussions. Those who did not have end-of-life discussions reported lower quality of end-of-life care.

Breaking bad news to cancer patients in palliative care: A comparison of national cross-sectional surveys from 2006 and 2012

2015 ◽  
Vol 13 (6) ◽  
pp. 1623-1630 ◽  
Author(s):  
Kanako Ichikura ◽  
Ayako Matsuda ◽  
Mika Kobayashi ◽  
Wataru Noguchi ◽  
Toshiko Matsushita ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Cancer Care ◽  
Treatment Options ◽  
Family Members ◽  
Bad News ◽  
Cross Sectional ◽  
Breaking Bad ◽  
Cross Sectional Design ◽  
Patients Experience

AbstractObjective:Most cancer patients experience the time when a doctor must “break the bad news” to them, a time when it is necessary for patients to call upon their self-determination to aid in the battle with cancer. The purpose of our study was to clarify the percentage of times doctors deliver bad news to patients at the end of life in each of four different situations, and to define the most common recipients of this bad news. We compare these results for two timepoints: 2006 and 2012.Methods:The study had a national cross-sectional design consisting of self-completed questionnaires sent to all hospitals that provide cancer care. We mailed them to hospital directors in January and February of 2012, requesting a reply. The results of the same survey in 2006 were employed as a point for comparison.Results:A total of 1224 questionnaires were returned during 2012. 1499 responses collected in 2006 were employed as reference data. Some hospital characteristics had changed over that interval; however, the new data obtained were representative for patients being treated in Japanese cancer care hospitals. In hospitals with 300–499, there were significant differences between 2006 and 2012 in the providing information about (“disclosure of cancer diagnosis,” “therapeutic options for treatment,” and “a life-prolonging treatment”). In addition, the likelihood of doctors delivering bad news to patients and family members (as opposed to family members only) at the end of life increased from 2006 to 2012.Significance of Results:Our results suggest that the overall incidence of bad news being disclosed has increased, especially in hub medical institutions for cancer care. Advanced treatment options or domestic legislation may have influenced the frequency or type of bad news.

Improving the End-of-Life Experience for Family Members of Cancer Patients Who Die on the Oncology Ward: The Three Wishes Project (SCI922)

2021 ◽  
Vol 61 (3) ◽  
pp. 681-682
Author(s):  
Gwenyth Day ◽  
Marilyn Swinton ◽  
Danielle Bear ◽  
Peter Phung ◽  
Allegra Bell ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Life Experience ◽  
Family Members ◽  
Oncology Ward

scholarly journals Course and predictors of posttraumatic stress-related symptoms among family members of deceased ICU patients during the first year of bereavement

Critical Care ◽  
2021 ◽  
Vol 25 (1) ◽  
Author(s):  
Siew Tzuh Tang ◽  
Chung-Chi Huang ◽  
Tsung-Hui Hu ◽  
Wen-Chi Chou ◽  
Li-Pang Chuang ◽  
...  
Keyword(s):  
Social Support ◽  
Posttraumatic Stress ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Life Care ◽  
Ptsd Symptoms ◽  
Icu Patients ◽  
Clinically Significant ◽  
Bereaved Family

Abstract Background/Objective Death in intensive care units (ICUs) may increase bereaved family members’ risk for posttraumatic stress disorder (PTSD). However, posttraumatic stress-related symptoms (hereafter as PTSD symptoms) and their precipitating factors were seldom examined among bereaved family members and primarily focused on associations between PTSD symptoms and patient/family characteristics. We aimed to investigate the course and predictors of clinically significant PTSD symptoms among family members of deceased ICU patients by focusing on modifiable quality indicators for end-of-life ICU care. Method In this longitudinal observational study, 319 family members of deceased ICU patients were consecutively recruited from medical ICUs from two Taiwanese medical centers. PTSD symptoms were assessed at 1, 3, 6, and 13 months post-loss using the Impact of Event Scale-Revised (IES-R). Family satisfaction with end-of-life care in ICUs was assessed at 1 month post-loss. End-of-life care received in ICUs was documented over the patient’s ICU stay. Predictors for developing clinically significant PTSD symptoms (IES-R score ≥ 33) were identified by multivariate logistic regression with generalized estimating equation modeling. Results The prevalence of clinically significant PTSD symptoms decreased significantly over time (from 11.0% at 1 month to 1.6% at 13 months post-loss). Longer ICU stays (adjusted odds ratio [95% confidence interval] = 1.036 [1.006, 1.066]), financial insufficiency (3.166 [1.159, 8.647]), and reported use of pain medications (3.408 [1.230, 9.441]) by family members were associated with a higher likelihood of clinically significant PTSD symptoms among family members during bereavement. Stronger perceived social support (0.937 [0.911, 0.965]) and having a Do-Not-Resuscitate (DNR) order issued before the patient’s death (0.073 [0.011, 0.490]) were associated with a lower likelihood of clinically significant PTSD symptoms. No significant association was observed for family members’ satisfaction with end-of-life care (0.988 [0.944, 1.034]) or decision-making in ICUs (0.980 [0.944, 1.018]). Conclusions The likelihood of clinically significant PTSD symptoms among family members decreased significantly over the first bereavement year and was lower when a DNR order was issued before death. Enhancing social support and facilitating a DNR order may reduce the trauma of ICU death of a beloved for family members at risk for developing clinically significant PTSD symptoms.

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