Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort

Author(s):  
Leïla Brillet ◽  
Marianne Peries ◽  
Christelle Vernhet ◽  
Cécile Rattaz ◽  
Cécile Michelon ◽  
...  
2021 ◽  
Vol 147 (2) ◽  
pp. AB125
Author(s):  
Rishma Chooniedass ◽  
Lianne Soller ◽  
Sandeep Kapur ◽  
Gregory Rex ◽  
Mary McHenry ◽  
...  

2015 ◽  
Vol 89 (2) ◽  
pp. 258-266 ◽  
Author(s):  
M. Lingen ◽  
L. Albers ◽  
M. Borchers ◽  
S. Haass ◽  
J. Gärtner ◽  
...  

2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Rebecca C. Knibb ◽  
Aaron Cortes ◽  
Christopher Barnes ◽  
Carol Stalker

Background. The Scale for Psychosocial Factors in Food Allergy (SPS-FA) is based on the biopsychosocial model of health and was developed and validated in Chile to measure the interaction between psychological variables and allergy symptoms in the child. We sought to validate this scale in an English speaking population and explore its relationship with parental quality of life, self-efficacy, and mental health. Methods. Parents (n=434) from the general population in the UK, who had a child with a clinical diagnosis of food allergy, completed the SPS-FA and validated scales on food allergy specific parental quality of life (QoL), parental self-efficacy, and general mental health. Findings. The SPS-FA had good internal consistency (alphas = .61–.86). Higher scores on the SPS-FA significantly correlated with poorer parental QoL, self-efficacy, and mental health. All predictors explained 57% of the variance in SPS-FA scores with QoL as the biggest predictor (β=.52). Discussion. The SPS-FA is a valid scale for use in the UK and provides a holistic view of the impact of food allergy on the family. In conjunction with health-related QoL measures, it can be used by health care practitioners to target care for patients and evaluate psychological interventions for improvement of food allergy management.


2021 ◽  
Author(s):  
Akemi Matsuzawa ◽  
Junichi Arai ◽  
Yuko Shiroki ◽  
Akemi Hirasawa

2007 ◽  
Vol 26 (4) ◽  
pp. 343-356 ◽  
Author(s):  
Thecla Damianakis ◽  
Laura M. Wagner ◽  
Syrelle Bernstein ◽  
Elsa Marziali

ABSTRACTTwo challenges facing nursing-home care today are understanding the concept of quality of life as it relates to cognitively impaired residents and finding effective ways to ensure that it is achieved. Canadian director Allan King's documentary, Memory for Max, Claire, Ida and Company, filmed at Baycrest, captures a method for enhancing the quality of life of six cognitively impaired residents. While the film suggests an intervention model implemented by volunteers, there are challenges unique to institution-based programs (i.e., the recruitment and retention of volunteers). One of the challenges is the fear that volunteers may experience when interacting with the cognitively impaired. We conducted a pilot study of a model for training volunteers to provide friendly visiting and evaluated the impact on the participating residents. Observational accounts of volunteer–resident interactions and seven volunteer interviews were analysed and yielded several themes—(a) relationship building, (b) contribution of the environment, (c) preserving personhood, (d) resident-centred presence and the quality of the moment—and several themes related to the volunteers' role and their perceived impact on the residents. Discussed are the implications for volunteer programs in long-term health care settings.


2019 ◽  
Vol 126 ◽  
pp. 109598 ◽  
Author(s):  
Elise De Cuyper ◽  
Frederick Dochy ◽  
Els De Leenheer ◽  
Helen Van Hoecke

2013 ◽  
Vol 49 (8) ◽  
pp. 664-670 ◽  
Author(s):  
Maria Yui Kwan Chow ◽  
Angela M Morrow ◽  
Robert Booy ◽  
Julie Leask

2021 ◽  
Vol 2021 ◽  
pp. 1-10
Author(s):  
Ludmila Roberto Moraes ◽  
Lidiane Castro Duarte de Aquino ◽  
Danielle Teles da Cruz ◽  
Isabel Cristina Gonçalves Leite

Background. Prison units are marked by structural deficiencies, especially in relation to the female gender. Objectives. To measure the self-perceived impact of oral health on the quality of life of Brazilian women in detention. Methodology. A survey was carried out conducted in the penitentiary at Juiz de Fora (Minas Gerais, Brazil) using an instrument with semistructured questions and validated scales, including the Oral Health Impact Profile-14. 99 women were interviewed. The analysis was based on a theoretical model of determination, with hierarchical blocks of variables. Bivariate analysis was done using the Mann–Whitney, test and multivariate analysis was used using linear regression. The significance level was set at 5%. Results. 33% experienced tooth loss after incarceration, (3.70 ± 3.26 lost teeth). 65.6% rated the dental service as fair/poor. The highest prevalence of oral health impact was for the domains of psychological discomfort (50.5%) and physical pain (40.4%). There is a negative impact on psychological discomfort: the number of dental consultations in the past year and self-perceived general health. There is an impact on physical pain: self-declared color and anxiety. Self-perceived general health had an impact on the domains of psychological disability and social disadvantage. Depression had an impact on the total score. Conclusion. This study revealed a self-perceived impact of oral health on the quality of life of women inmates. We need to ensure high-quality access to dental treatment in prisons.


2020 ◽  
Vol 4 (2) ◽  
pp. 84
Author(s):  
Muhammad Cholilurrohman Hadi ◽  
Tantut Susanto ◽  
Kholid Rosyidi Muhammad Nur

The family with special need children experience children’s dependency behavior. This situations related to parenting stress which affected parental quality of life. The objective of this study was to examine the correlation characteristic of parents and parenting stress and parental quality of life among special need children’s parents. A cross sectional study design conducted among 52 parents with special need children in School of Disabled Children in Badean Bondowoso. A self-administered questionnaire including the Alabama Parenting Questionnaire and the World Health Organization Quality of Life-BREF Indonesian version were used to assess parenting stress; and parental quality of life, respectively. Pearson Product Moment and Spearman Rank was performed to answer the objective of this study. The results showed that, there were no correlation between parenting stress and parental quality of life of special need children’s parents (p >0.05). However, length of disability correlated with parenting stress (r = 0.339; p = 0.014). Meanwhile; parent’s gender (Z = -2.089; p = 0.037), special need children’s gender (Z = -2.102; p = 0.036), and number of childrens (r = -0.297; p = 0.033) were correlated with parental quality of life. This study concluded that characteristic of parents and children with special needs correlated with parental quality of life. Therefore, adaptive parenting environment should implement to reduce parenting stress.  


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