The anemia impact measure (AIM): development and content validation of a patient-reported outcome measure of anemia symptoms and symptom impacts in cancer patients receiving chemotherapy

2011 ◽  
Vol 21 (7) ◽  
pp. 1255-1266 ◽  
Author(s):  
Leah Kleinman ◽  
Katy Benjamin ◽  
Hema Viswanathan ◽  
Maria Stoeckl Mattera ◽  
Linda Bosserman ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Content Validation ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Impact Measure

scholarly journals Development and Content Validation of a Patient-Reported Outcome Measure to Evaluate Statin Intolerance in the Real World

2016 ◽  
Vol 19 (3) ◽  
pp. A52 ◽  
Author(s):  
T Jacobson ◽  
S Edelman ◽  
M Davidson ◽  
N Galipeau ◽  
A Shields ◽  
...  
Keyword(s):  
Real World ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Content Validation ◽  
Statin Intolerance ◽  
The Real ◽  
Patient Reported Outcome Measure ◽  
Patient Reported

scholarly journals Psychometric Characteristics of a Patient Reported Outcome Measure on Ego-Integrity and Despair among Cancer Patients

PLoS ONE ◽  
2016 ◽  
Vol 11 (5) ◽  
pp. e0156003 ◽  
Author(s):  
Gitta Kleijn ◽  
Lenneke Post ◽  
Birgit I. Witte ◽  
Ernst T. Bohlmeijer ◽  
Gerben J. Westerhof ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Psychometric Characteristics ◽  
Ego Integrity ◽  
Patient Reported Outcome Measure ◽  
Patient Reported

Using tablet technology in routine patient-reported outcome measure surveys to improve cancer quality care: A patient acceptability assessment.

2014 ◽  
Vol 32 (30_suppl) ◽  
pp. 155-155
Author(s):  
Vivien Pat ◽  
Catherine Brown ◽  
Ashlee Vennettilli ◽  
Aein Zarrin ◽  
Aditi Dobriyal ◽  
...  
Keyword(s):  
Technology Acceptance ◽  
Cancer Patients ◽  
Outcome Measure ◽  
Quality Care ◽  
Touch Screen ◽  
Patient Reported Outcome ◽  
Patient Acceptability ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Routine Basis

155 Background: Patient-reported outcome measure (PROM) surveys are a tool used to collect information about clinically-relevant symptoms in patients. Touch-screen technology has been previously identified as a feasible and effective method of routinely capturing PROMs.Our aim was to evaluate cancer patients’ acceptance and perception of usefulness of tablet technology as a means of communicating PROMs to healthcare providers during delivery of quality care. Methods: 337 adult cancer patients across all outpatient clinics and disease sites at Toronto’s Princess Margaret Cancer Centre (PMCC) completed PROMs surveys using touch-screen technology. Acceptance and feasibility of completing the tablet-based PROMs data on a routine basis were also assessed. Results: The study population consisted of 45% males; median age 59 (19-91) years; 75% Caucasian, and 48% had a post-secondary degree.20% had lung cancer, 20% genitourinary, 16% breast, 16% lymphoma, 11% gastrointestinal, 7% gynecologic, and 7% head/neck. 88% were happy to complete the survey on a touch-screen tablet and 65% of these were willing to complete such surveys routinely. 86% did not find it time-consuming. Only 2% found that the completion of surveys made their clinic visit more difficult. Of the 72% that thought the survey was a useful means to inform the clinician of how they felt physically and emotionally, only 81% were willing to complete the survey at every visit. Conclusions: Tablet-technology was found to be an acceptable tool for survey administration, however, not on a routine basis. While the majority of patients found PROMs to be clinically important, almost 20% did not want to fill it in regularly at every visit. Current mixed-methods analysis is being utilized to help discern whether this discrepancy is related to the tablet technology or survey burden.

753-P: A Clinical Mixed-Methods Study of the Perceived Benefits of Using the Danish Diabetes Patient Reported Outcome Measure and Dialogue Support Tool in Routine Outpatient Diabetes Care

Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 753-P
Author(s):  
SOREN E. SKOVLUND ◽  
LISE TROELSEN ◽  
LISE MELLERGAARD NØRGAARD ◽  
PERNILLE H. KJAER ◽  
ANNA PIETRASZEK ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Diabetes Care ◽  
Outcome Measure ◽  
Diabetes Patient ◽  
Patient Reported Outcome ◽  
Mixed Methods Study ◽  
Perceived Benefits ◽  
Support Tool ◽  
Patient Reported Outcome Measure ◽  
Patient Reported

Confirmatory Psychometric Evaluation of the Axillary Sweating Daily Diary: A Vaildated Patient-Reported Outcome Measure to Assess Axillary Hyperhidrosis Sweating Severity

2017 ◽  
Vol 1 ◽  
pp. s94 ◽  
Author(s):  
Dee Anna Glaser ◽  
Adelaide A Hebert ◽  
Sheri Fehnel ◽  
Dana DiBenedetti ◽  
Lauren Nelson ◽  
...  
Keyword(s):  
Outcome Measure ◽  
Daily Diary ◽  
Psychometric Evaluation ◽  
Patient Reported Outcome ◽  
Axillary Hyperhidrosis ◽  
Patient Reported Outcome Measure ◽  
Patient Reported

Abstract Not AvailableDisclosure: Study supported by Dermira.

scholarly journals Buccal mucosal graft urethroplasty for radiation-induced urethral strictures: an evaluation using the extended Urethral Stricture Surgery Patient-Reported Outcome Measure (USS PROM)

2020 ◽  
Vol 38 (11) ◽  
pp. 2863-2872 ◽  
Author(s):  
Malte W. Vetterlein ◽  
◽  
Luis A. Kluth ◽  
Valentin Zumstein ◽  
Christian P. Meyer ◽  
...  
Keyword(s):  
Radiation Therapy ◽  
Urethral Stricture ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Patient Reported Outcome Measure ◽  
Urethral Strictures ◽  
Buccal Mucosal Graft ◽  
Surgery Patient ◽  
Patient Reported ◽  
Radiation Induced

Abstract Objectives To evaluate objective treatment success and subjective patient-reported outcomes in patients with radiation-induced urethral strictures undergoing single-stage urethroplasty. Patients and methods Monocentric study of patients who underwent single-stage ventral onlay buccal mucosal graft urethroplasty for a radiation-induced stricture between January 2009 and December 2016. Patients were characterized by descriptive analyses. Kaplan–Meier estimates were employed to plot recurrence-free survival. Recurrence was defined as any subsequent urethral instrumentation (dilation, urethrotomy, urethroplasty). Patient-reported functional outcomes were evaluated using the validated German extension of the Urethral Stricture Surgery Patient-Reported Outcome Measure (USS PROM). Results Overall, 47 patients were available for final analyses. Median age was 70 (IQR 65–74). Except for two, all patients had undergone pelvic radiation therapy for prostate cancer. Predominant modality was external beam radiation therapy in 70% of patients. Stricture recurrence rate was 33% at a median follow-up of 44 months (IQR 28–68). In 37 patients with available USS PROM data, mean six-item LUTS score was 7.2 (SD 4.3). Mean ICIQ sum score was 9.8 (SD 5.4). Overall, 53% of patients reported daily leaking and of all, 26% patients underwent subsequent artificial urinary sphincter implantation. Mean IIEF-EF score was 4.4 (SD 7.1), indicating severe erectile dysfunction. In 38 patients with data regarding the generic health status and treatment satisfaction, mean EQ-5D index score and EQ VAS score was 0.91 (SD 0.15) and 65 (SD 21), respectively. Overall, 71% of patients were satisfied with the outcome. Conclusion The success rate and functional outcome after BMGU for radiation-induced strictures were reasonable. However, compared to existing long-term data on non-irradiated patients, the outcome is impaired and patients should be counseled accordingly.

scholarly journals Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Ingrid Johansen Skogestad ◽  
Marit Kirkevold ◽  
Petra Larsson ◽  
Christine Råheim Borge ◽  
Bent Indredavik ◽  
...  
Keyword(s):  
Future Development ◽  
Health Professionals ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Stroke Survivors ◽  
Structured Interviews ◽  
Post Stroke ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Initial Hospital

Abstract Background Post-stroke fatigue (PSF) is commonly reported and described as disabling by patients recovering from stroke. However, a major challenge is how to accurately diagnose and assess PSF. Therefore, the aim of this study was to explore PSF as it is experienced by stroke survivors and described by health professionals to guide future development of a PSF-specific PROM. Methods Individual semi-structured interviews were conducted with stroke survivors experiencing PSF (n = 9) and three focus groups were conducted with health professionals (n = 16). Data were analyzed through inductive content analysis. Results The analysis revealed four themes illustrating the experience and descriptions of PSF: 1) PSF characteristics, 2) interfering and aggravating factors, 3) management, and 4) PSF awareness, which refers to stroke survivors first becoming aware of PSF after their initial hospital admission. Conclusion This study highlights the complexity and multidimensionality of PSF. The results from this study will guide future development of a PSF-PROM and support its content validity.

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