The use of cognitive interviews to revise the Quality of Trauma Care Patient-Reported Experience Measure (QTAC-PREM)

2015 ◽  
Vol 24 (8) ◽  
pp. 1911-1919 ◽  
Author(s):  
Niklas Bobrovitz ◽  
Maria J. Santana ◽  
Theresa Kline ◽  
John Kortbeek ◽  
Henry T. Stelfox
2017 ◽  
Vol 10 (1) ◽  
Author(s):  
Niklas Bobrovitz ◽  
Maria J. Santana ◽  
Jamie Boyd ◽  
Theresa Kline ◽  
John Kortbeek ◽  
...  

2016 ◽  
Vol 80 (1) ◽  
pp. 111-118 ◽  
Author(s):  
Niklas Bobrovitz ◽  
Maria J. Santana ◽  
Theresa Kline ◽  
John Kortbeek ◽  
Sandy Widder ◽  
...  

2001 ◽  
Vol 25 (1) ◽  
pp. 112-115 ◽  
Author(s):  
Madu OnwudikeM.Sc. ◽  
Olufemi A. OlaloyeM.Orth. ◽  
Olusola O.A. Oni

2000 ◽  
Vol 191 (4) ◽  
pp. S12-S13
Author(s):  
Majid Moini ◽  
Hamed Rezaishiraz ◽  
Alireza Zarineh ◽  
Mohammad R Zafarghandi ◽  
Mohammad-Hadi Saeed Modaghegh

2021 ◽  
Author(s):  
Damien Giacchero ◽  
Guillaume Buiret ◽  
Cecile Grosjean ◽  
CHARLES TAIEB ◽  
Mahasti Saghatchian ◽  
...  

Abstract The absence of a specific tool to evaluate the impact of Supportive care in general and socioesthetics in particular as a rendered medical service is undoubtedly at the origin of the lack of published research based on scientific standards.In this context, we developed one supportive-care patient-reported outcome [PRO] using the multistep methods following COSMIN recommendations. Its construction followed all recommended steps: elaboration of the questionnaire, measurement properties of the questionnaire, internal and external validation, test-retest validation and translation, cross-cultural adaptation and cognitive debriefing. In total, our questionnaire includes11 items. It is scored by adding each VAS, making it range from 0 to 110, with a higher benefit when the score is higher. The Cronbach’s α coefficient is 0.88 for the entire questionnaire. The questionnaire thus constructed is a reflection of the patient's feelings, and it is quite natural that the name The “patient centricity questionnaire” (PCQ) was retained and validated by the Scientific Committee. The PCQ correlated negatively and moderately with the PSS, positively and moderately with the mental dimension of the and poorly with the WB12, the physical dimension of the SF-12 and the satisfaction EVA. Constructed according to the recommendations, the PCQ meets the prerequisite for this type of questionnaire. Its short format (11 questions) and simplicity of use allow it to be used by a large number of people and provides an pragmatic answer by making available to research teams a simple, reliable, easy-to-use and validated tool. It makes possible randomized studies to prove the impact on quality of life of the Supportive care in general and socioesthetics" in particular.


Author(s):  
Heather A King ◽  
Sarah B Doernberg ◽  
Kiran Grover ◽  
Julie Miller ◽  
Megan Oakes ◽  
...  

Abstract Background We previously conducted a concept elicitation study on the impact of Staphylococcus aureus and Gram-negative bacterial bloodstream infections (SAB/GNB) on health-related quality of life (HRQoL) from the patient’s perspective and found significant impacts on HRQoL, particularly in physical and functional domains. Using this information and following guidance on the development of patient-reported outcome (PRO) measures, we determined which combination of measures and items (i.e., specific questions) would be most appropriate in a survey assessing HRQoL in bloodstream infections. Methods We selected a variety of measures/items from PROMIS ® (Patient-Reported Outcomes Measurement Information System ®) representing different domains. We purposefully sampled patients approximately 6-12 weeks post SAB/GNB and conducted two rounds of cognitive interviews to refine the survey by exploring patients’ understanding of items and answer selection as well as relevance for capturing HRQoL. Results We interviewed 17 SAB/GNB patients. Based on the first round of cognitive interviews (n=10), we revised the survey. After round two of cognitive interviewing (n = 7), we finalized the survey to include 10 different PROMIS ® short form measures of the most salient HRQoL domains and 2 adapted questions (41 items total), which were found to adequately capture HRQoL. Conclusion We developed a survey from well-established PRO measures that captures what matters most to SAB/GNB patients as they recover. This survey, uniquely tailored to bloodstream infections, can be used to assess these meaningful, important HRQoL outcomes in clinical trials and in patient care. Engaging patients is crucial to developing treatments for bloodstream infections.


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