scholarly journals Informed or anxious: patient preferences for release of test results of increasing sensitivity on electronic patient portals

2022 ◽  
Author(s):  
Bethany Bruno ◽  
Scott Steele ◽  
Justin Carbone ◽  
Katherine Schneider ◽  
Lori Posk ◽  
...  
Keyword(s):  
Patient Preferences ◽  
Test Results ◽  
Patient Portals ◽  
Anxious Patient

Patient recommendations for content and design for electronic return of genetic test results: An interview study among patients who accessed their genetic test results online (Preprint)

2021 ◽  
Author(s):  
Diane M Korngiebel ◽  
Kathleen McGlone West
Keyword(s):  
Patient Preferences ◽  
Genetic Test ◽  
Smartphone Application ◽  
Patient Portal ◽  
Genetic Test Result ◽  
Test Results ◽  
User Centered Design ◽  
Detailed Report ◽  
Genetic Test Results ◽  
Test Result

BACKGROUND Genetic test results will be increasingly made available electronically as more patient-facing tools are developed; however, little research has been done that collects patient preferences for content and design before creating results templates. OBJECTIVE This study identifies patient preferences for electronic return of genetic test results, including what considerations should be prioritized for content and design. METHODS Following User-Centered Design methods, 59 interviews were conducted using semi-structured protocols. The interviews explored content and design issues for patient portal results return for patients who received electronic results for specific types of genetic tests (pharmacogenomic, hereditary blood disorders, and positive and negative risk results for heritable cancers) or who had electronically received any type of genetic test result as well as a non-genetic test result. RESULTS In general, a majority of participants felt that there always needed to be some clinician involvement in electronic results return and that electronic coversheets with simple summaries would be helpful for facilitating that. Coversheet summaries could accompany, but not replace, the more detailed report. Participants had specific suggestions for those results summaries, such as only reporting the information that was most important for patients to understand, including next steps, and to do so using clear language free of medical jargon. Electronic results return should also include explicit encouragement for patients to contact providers with questions. Finally, many participants preferred to manage their care using their smartphones, particularly in instances where they needed to access health information on the go. CONCLUSIONS Participants recommended that a patient-friendly front section accompany the more detailed report and made suggestions for organization, content, and wording. Many used their smartphones regularly to access test results, therefore, health systems and patient portal software vendors should accommodate smartphone application design and web portal design concomitantly when developing results return platforms. CLINICALTRIAL N/A

scholarly journals Patient perceptions and interactions with their web portal-based laboratory results

2019 ◽  
Vol 26 (1) ◽  
pp. e000012 ◽  
Author(s):  
Sean Robinson ◽  
Melissa Reed ◽  
Travis Quevillon ◽  
Ed Hirvi
Keyword(s):  
Healthcare Providers ◽  
Health Behaviours ◽  
Theory Approach ◽  
Test Results ◽  
Patient Portals ◽  
Positive Health ◽  
Patient Comprehension ◽  
Laboratory Results ◽  
Level Of Understanding ◽  
User Friendly

BackgroundThe movement to improve patient-centred care, combined with the development of user-friendly technology has led to the spread of electronic patient portals (EPP). Little research has examined the effects of providing patients with access to their laboratory results on their healthcare and health behaviours.ObjectiveThe purpose of this study was to gain insight into the use of EPPs, understand why patients use EPPs to access their laboratory results and explore its impact on their health.MethodSemistructured interviews were conducted with 21 patients who used the laboratory results section of an EPP. Interviews were analysed using a grounded theory approach.ResultsParticipant interactions with their laboratory results varied based on their level of understanding of their results. Benefits of EPP-based access to test results included convenience, fewer appointments and decreased anxiety. Some participants described increased engagement in their healthcare and positive health changes. However, some were concerned about receiving alarming test results.ConclusionHealthcare providers using EPPs to provide patients with their test results should try to ensure their patients understand their test results. Patient comprehension of test results may be improved by having providers comment on the meaning of test results and by encouraging patients to use specific websites and search options within EPPs.

scholarly journals Patient Preferences for Receiving Reports of Test Results

2015 ◽  
Vol 28 (6) ◽  
pp. 759-766 ◽  
Author(s):  
J. R. LaRocque ◽  
C. L. Davis ◽  
T. P. Tan ◽  
F. J. D'Amico ◽  
D. J. Merenstein
Keyword(s):  
Patient Preferences ◽  
Test Results

scholarly journals The role of patient portals in enhancing self-care in patients with renal conditions

2019 ◽  
Vol 13 (1) ◽  
pp. 1-7 ◽  
Author(s):  
Adil M Hazara ◽  
Katherine Durrans ◽  
Sunil Bhandari
Keyword(s):  
Current Model ◽  
Patient Empowerment ◽  
Home Blood Pressure ◽  
Test Results ◽  
Model Of Care ◽  
Patient Portals ◽  
Web Based ◽  
The Uk ◽  
The Impact

Abstract Web-based portals enable patients to access their electronic health records, including test results and clinical documents, from anywhere with Internet access. Some portals also serve as a means of two-way communication between patients and healthcare professionals and provide a platform for the recording of patient-entered data such as home blood pressure readings. Such systems are designed to encourage patient participation in the management of their condition, and ultimately to increase patient empowerment and self-management, which are associated with improved clinical outcomes. As an example of portal use in patients with renal conditions, we discuss the PatientView portal, which is offered free of cost to patients under the care of renal physicians in the UK. We present an account of its various features and briefly describe the user experience. Previous studies examining the impact of this portal on patient care have been very positive; it appears to be popular among users and overall levels of satisfaction with the service are high. As the use of patient portals increases, we discuss barriers to the more widespread use of portals. We offer suggestions on how the care of patients with renal conditions can be enhanced in the future by further developing the existing features, learning from experiences of other patient portals and providing better integration of portal use into the current model of care.

Contextualizing numeric clinical test results for gist comprehension: Implications for EHR patient portals.

2019 ◽  
Vol 25 (1) ◽  
pp. 41-61
Author(s):  
Daniel Morrow ◽  
Renato Ferreira Leitão Azevedo ◽  
Rocio Garcia-Retamero ◽  
Mark Hasegawa-Johnson ◽  
Thomas Huang ◽  
...  
Keyword(s):  
Clinical Test ◽  
Test Results ◽  
Patient Portals

The power of knowledge: Sharing patient test results electronically to improve quality of care.

2012 ◽  
Vol 30 (34_suppl) ◽  
pp. 305-305
Author(s):  
Melissa Kaan ◽  
Jason LeMar ◽  
Julie Gilbert ◽  
Erin Rae ◽  
Anna Sampson ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Personal Health Information ◽  
Diagnostic Assessment ◽  
Test Results ◽  
Patient Portals ◽  
Care Services ◽  
Key Informant ◽  
Similar Patient ◽  
The Impact

305 Background: For many patients going through the cancer diagnosis journey, the time from suspicion to diagnosis or rule-out can be a confusing and anxious time. To better support patients during this time, Cancer Care Ontario (CCO) is supporting Diagnostic Assessment Programs (DAPs) and the web-based tool known as the Diagnostic Assessment Program–Electronic Pathway Solution (DAP-EPS). DAPs consist of multi-disciplinary healthcare teams who provide diagnostic and supportive care services in a patient-focused environment, improving access to care and the patient experience. DAPs help manage and coordinate a patient’s diagnostic care from testing to a definitive diagnosis and part of this support involves providing access to personal health information through the DAP-EPS. This work was undertaken to determine the best approach to sharing test results with patients, including the type of test results that should be released and the most effective method for sharing these results with patients, from both the patient and provider perspective. Methods: The exploratory project involved conducting key informant interviews with individuals who had been involved with implementing similar patient portals, a targeted literature review, and a series of engagement sessions with physicians to measure the clinical response to this new strategy. Results: Initial discussions with patients and nurses yielded a strong endorsement for releasing all results, with no time delay. Key Informant interviews yielded similar results from the majority of the hospital contacts consulted. The environmental scan did not suggest that releasing results was associated with any adverse patient or provider effects. The physician engagement sessions generated both positive and negative feedback but overall, doctors were comfortable releasing all results, provided there was a delay built into the system. Conclusions: The release of diagnostic test results is seen as a valuable component of quality of care from the perspective of informing and empowering the patient. As the DAP-EPS moves forward with this initiative, the DAP program will continue to monitor the impact that the release of results has on both patients and providers.

scholarly journals Common Laboratory Results Frequently Misunderstood by a Sample of Mechanical Turk Users

2019 ◽  
Vol 10 (02) ◽  
pp. 175-179
Author(s):  
Nabeel Qureshi ◽  
Ateev Mehrotra ◽  
Robert Rudin ◽  
Shira Fischer
Keyword(s):  
Pap Smear ◽  
Correct Diagnosis ◽  
Return Time ◽  
Mechanical Turk ◽  
Test Results ◽  
Multiple Choice Questions ◽  
Patient Portals ◽  
Pap Smear Test ◽  
Sample Test

Objectives More patients are receiving their test results via patient portals. Given test results are written using medical jargon, there has been concern that patients may misinterpret these results. Using sample colonoscopy and Pap smear results, our objective was to assess how frequently people can identify the correct diagnosis and when a patient should follow up with a provider. Methods We used Mechanical Turk—a crowdsourcing tool run by Amazon that enables easy and fast gathering of users to perform tasks like answering questions or identifying objects—to survey individuals who were shown six sample test results (three colonoscopy, three Pap smear) ranging in complexity. For each case, respondents answered multiple choice questions on the correct diagnosis and recommended return time. Results Among the three colonoscopy cases (n = 642) and three Pap smear cases (n = 642), 63% (95% confidence interval [CI]: 60–67%) and 53% (95% CI: 49–57%) of the respondents chose the correct diagnosis, respectively. For the most complex colonoscopy and Pap smear cases, only 29% (95% CI: 23–35%) and 9% (95% CI: 5–13%) chose the correct diagnosis. Conclusion People frequently misinterpret colonoscopy and Pap smear test results. Greater emphasis needs to be placed on assisting patients in interpretation.

scholarly journals The Use of an Electronic Health Record Patient Portal to Access Diagnostic Test Results by Emergency Patients at an Academic Medical Center: Retrospective Study (Preprint)

2019 ◽  
Author(s):  
Brody Foster ◽  
Matthew David Krasowski
Keyword(s):  
Diagnostic Test ◽  
Laboratory Tests ◽  
Medical Center ◽  
Academic Medical Center ◽  
Patient Portal ◽  
Test Results ◽  
Patient Portals ◽  
Radiology Reports ◽  
Academic Medical ◽  
Laboratory Results

BACKGROUND Electronic health record (EHR) patient portals provide a means by which patients can access their health information, including diagnostic test results. Little is known about portal usage by emergency department (ED) patients. OBJECTIVE The study aimed to assess patient portal utilization by ED patients at an academic medical center using account activation rates along with the rates of access of diagnostic test results (laboratory results and radiology reports), analyzing the impact of age, gender, and self-reported patient race. METHODS This institutional review board–approved retrospective study was performed at a 60,000-visits-per-year university-based ED. We utilized EHR data reporting tools to examine EHR portal activation and utilization for all patients who had at least one ED encounter with one or more diagnostic tests performed between October 1, 2016, and October 1, 2017. The total dataset for laboratory testing included 208,635 laboratory tests on 25,361 unique patients, of which 9482 (37.39%) had active portal accounts. The total dataset for radiologic imaging included 23,504 radiology studies on 14,455 unique patients, of which 5439 (37.63%) had an active portal account. RESULTS Overall, 8.90% (18,573/208,635) of laboratory tests and 8.97% (2019/22,504) of radiology reports ordered in the ED were viewed in the patient portal. The highest rates of viewing of laboratory and radiology results were seen for those who were female, were aged 0 to 11 years (parent or guardian viewing by proxy) and 18 to 60 years, and self-reported their race as Caucasian or Asian. The lowest rates were for those who were teenagers, aged older than 81 years, African American/black, and Hispanic/Latino. Infectious disease, urinalysis, and pregnancy testing constituted the highest number of laboratory tests viewed. Magnetic resonance imaging reports were viewed at higher rates than computed tomography or x-ray studies (P<.001). Approximately half of all the diagnostic test results accessed by patients were reviewed within 72 hours of availability in the patient portal (laboratory results: 9904/18,573, 53.32% and radiology reports: 971/2019, 48.1%). On the other extreme, 19.9% (3701/18,573) of laboratory results and 31.6% (639/2019) of radiology reports were viewed more than 2 weeks after availability in the portal. CONCLUSIONS The data highlight the relatively low use of a patient portal by ED patients and existing disparities between patient groups. There can be wide lag time (months) between result/report availability and access by patients. Opportunities for improvement exist for both activation and more robust utilization of patient portals by ED patients.

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