Genomics England: The Future of Genomic Medical Diagnosis: Governmental Scale Clinical Sequencing and Potential Walled-Garden Impact on Global Data Sharing

2018 ◽  
pp. 269-292
Author(s):  
Darrol J. Baker
2021 ◽  
Vol 20 (02) ◽  
pp. A10
Author(s):  
Helen Verploegen ◽  
Wessel Ganzevoort ◽  
Riyan van den Born

Digital citizen science projects differ greatly in their goals and design. Tensions arise when coordinators' design choices and conceptions of citizen science conflict with users' motivations and expectations. In this paper, we use a combination of qualitative methods to gain new insights into the ways citizen science is understood and implemented digitally. This includes a study into the affordances of two citizen science portals for bird observations, and qualitative interviews with users and coordinators of the portals. This reveals tensions related to data sharing, community hierarchies, and communicated expectations. Awareness of these tensions can benefit the future design of online citizen science projects.


Significance E-payment transaction volumes have risen dramatically as more people shop online and embrace non-cash payments. Moreover, fintechs are expanding into new segments of the financial services market such as crowdfunding and insurance. The future growth and resilience of this ecosystem depend on updating the regulatory and data protections framework, which is underway. Impacts Legislation on cross-institution and cross-border data sharing would be crucial to boost public confidence in fintechs. Continued growth of fintechs will increase the demand for cybersecurity services. Tier 2 cities will become increasingly important digital markets.


2016 ◽  
Vol 9 (9) ◽  
pp. 241-250
Author(s):  
Taesang Huh ◽  
Sunil Ahn ◽  
Dukyun Nam ◽  
Hoe-Kyung Jung
Keyword(s):  

Science ◽  
2010 ◽  
Vol 330 (6006) ◽  
pp. 902-902 ◽  
Author(s):  
R. Stone

2015 ◽  
Vol 10 (3) ◽  
pp. 317-323 ◽  
Author(s):  
George C. Alter ◽  
Mary Vardigan
Keyword(s):  

2012 ◽  
Vol 35 (3) ◽  
pp. 6
Author(s):  
Susan Noble ◽  
Celia Russell ◽  
Richard Wiseman
Keyword(s):  

Mind the Gap: Global Data Sharing


Author(s):  
Alan Katz ◽  
Marni Brownell ◽  
Mark Smith

IntroductionThe Manitoba Centre for Health Policy has provided international leadership in organizing and accessing administrative databases, linking and analyzing data and translating the findings of research into policy for three decades. During this period, MCHP has addressed numerous challenges in each of these areas. Objectives and ApproachLinked data research is expanding rapidly in terms of access to new data sources, different types of data, sharing of data across jurisdictions, and advances in data analytics. Technical advances such as computing power and artificial intelligence support these developments while governance structures and ethical issues challenge them. This presentation will describe some of the challenges MCHP has met with a view to gaining insight into how solutions evolved and how experience can guide the future of linked data research. ResultsThe scaling up of linked data research will need to address specific challenges including de-identification of free text, accessing and linking data from private enterprise such as wearables, and interdisciplinary collaboration to incorporate new techniques developed by computer scientists. Cross-jurisdictional data analysis presents challenges in addressing differences in data architecture. Inter-jurisdictional and international data sharing create ethical and governance challenges. Experience has demonstrated the critical role that relationship building plays in addressing each of these. These relationships are different depending on the partners. They are all based on the development of common use of language, understanding the motivation and concerns of each party, clearly articulating the benefits of the relationship and data use and attention to the cultural and political environment. Conclusion/ImplicationsLessons from the past can guide us in addressing challenges posed by the exciting opportunities available to us all. While many of these challenges will be solved with technical solutions, we should not overlook the importance of human relationships in building a culture of trust and collaboration as we move


Author(s):  
J. Yu ◽  
L. Wu ◽  
Y. Yang ◽  
X. Lei ◽  
W. He

A good data sharing system with spatial-seamless services will prevent the scientists from tedious, boring, and time consuming work of spatial transformation, and hence encourage the usage of the scientific data, and increase the scientific innovation. Having been adopted as the framework of Earth datasets by Group on Earth Observation (GEO), Earth System Spatial Grid (ESSG) is potential to be the spatial reference of the Earth datasets. Based on the implementation of ESSG, SDOG-ESSG, a data sharing system named global data spatially interrelate system (GASE) was design to make the data sharing spatial-seamless. The architecture of GASE was introduced. The implementation of the two key components, V-Pools, and interrelating engine, and the prototype is presented. Any dataset is firstly resampled into SDOG-ESSG, and is divided into small blocks, and then are mapped into hierarchical system of the distributed file system in V-Pools, which together makes the data serving at a uniform spatial reference and at a high efficiency. Besides, the datasets from different data centres are interrelated by the interrelating engine at the uniform spatial reference of SDOGESSG, which enables the system to sharing the open datasets in the internet spatial-seamless.


Science ◽  
2021 ◽  
Vol 371 (6525) ◽  
pp. 134-135
Author(s):  
Jasper Bovenberg ◽  
David Peloquin ◽  
Barbara Bierer ◽  
Mark Barnes ◽  
Bartha Maria Knoppers
Keyword(s):  

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