Power Wheelchair Prescription, Utilization, Satisfaction, and Cost for Patients With Amyotrophic Lateral Sclerosis: Preliminary Data for Evidence-Based Guidelines

2010 ◽  
Vol 91 (2) ◽  
pp. 268-272 ◽  
Author(s):  
Amber L. Ward ◽  
Mohammed Sanjak ◽  
Kerry Duffy ◽  
Elena Bravver ◽  
Nicole Williams ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Preliminary Data ◽  
Evidence Based ◽  
Evidence Based Guidelines ◽  
Lateral Sclerosis

Acoustic Analysis of Voices of Patients with Neurologic Disease: Rationale and Preliminary Data

1988 ◽  
Vol 97 (2) ◽  
pp. 164-172 ◽  
Author(s):  
Lorraine A. Ramig ◽  
Ingo R. Titze ◽  
Ronald C. Scherer ◽  
Steven P. Ringel
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Huntington's Disease ◽  
Huntington’S Disease ◽  
Preliminary Data ◽  
Acoustic Analysis ◽  
Neurologic Disease ◽  
Clinical Value ◽  
Neurologic Disorders ◽  
Speech Pathologist ◽  
Lateral Sclerosis

This paper presents a rationale for acoustic analysis of voices of neurologically diseased patients, and reports preliminary data from patients with myotonic dystrophy, Huntington's disease, Parkinson's disease, and amyotrophic lateral sclerosis, as well as from individuals at risk for Huntington's disease. Noninvasive acoustic analysis may be of clinical value to the otolaryngologist, neurologist, and speech pathologist for early and differential diagnosis and for documenting disease progression in these various neurologic disorders.

Practice parameter: The care of the patient with amyotrophic lateral sclerosis (An evidence-based review)

1999 ◽  
Vol 22 (8) ◽  
pp. 1104-1118 ◽  
Author(s):  
R.G. Miller ◽  
J.A. Rosenberg ◽  
D.F. Gelinas ◽  
H. Mitsumoto ◽  
D. Newman ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Evidence Based ◽  
Practice Parameter ◽  
Lateral Sclerosis

scholarly journals Psychological flexibility and attitudes toward evidence-based interventions by amyotrophic lateral sclerosis patients

PeerJ ◽  
2019 ◽  
Vol 7 ◽  
pp. e6527
Author(s):  
James R. Pearlman ◽  
Einar B. Thorsteinsson
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Health Care Professionals ◽  
Relational Frame Theory ◽  
Psychological Flexibility ◽  
Well Being ◽  
Evidence Based ◽  
Cross Sectional ◽  
Endoscopic Gastrostomy ◽  
Relational Frame ◽  
Lateral Sclerosis

Objective Declining a percutaneous endoscopic gastrostomy (PEG) or non-invasive ventilation (NIV) by people with amyotrophic lateral sclerosis (ALS) is often contrary to advice provided by health-care-professionals guided by evidence-based principles. This study proposes relational frame theory (RFT) to offer a viable explanation of this phenomenon. Design A total of 35 people (14 female, 21 male) aged between 34 and 73 years, with ALS, participated in this cross-sectional research. Main outcome measures This research examined the predictive power and interaction effect of psychological flexibility (the fundamental construct of RFT) and psychological well-being on attitudes toward intervention options. Results Participants with high psychological flexibility reported lower depression, anxiety, and stress, and higher quality of life. In addition, psychological flexibility was predictive of a participant’s understanding and acceptance of a PEG as an intervention option. Psychological flexibility was not found to be a significant predictor of understanding and acceptance of NIV. Conclusion Although the criterion measure had not been piloted or validated outside of the current study and asks about expected rather than actual acceptance, findings suggest that applied RFT may be helpful for clients with ALS.

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