Satisfaction With Life Over Time in People With Burn Injury: A National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study

2020 ◽  
Vol 101 (1) ◽  
pp. S63-S70 ◽  
Author(s):  
Dagmar Amtmann ◽  
Fraser D. Bocell ◽  
Kara McMullen ◽  
Alyssa M. Bamer ◽  
Kurt L. Johnson ◽  
...  
Keyword(s):  
Independent Living ◽  
Satisfaction With Life ◽  
Burn Injury ◽  
Model System ◽  
System Study ◽  
Rehabilitation Research ◽  
Model System Study ◽  
Over Time

Physical, functional, and psychosocial recovery from burn injury are related and their relationship changes over time: A Burn Model System study

Burns ◽  
2018 ◽  
Vol 44 (4) ◽  
pp. 793-799 ◽  
Author(s):  
Andrew A. McAleavey ◽  
Katarzyna Wyka ◽  
Melissa Peskin ◽  
JoAnn Difede
Keyword(s):  
Burn Injury ◽  
Model System ◽  
System Study ◽  
Model System Study ◽  
Changes Over Time ◽  
Over Time

scholarly journals Linking scores on the 4- and 5-item versions of the Satisfaction with Life Scale in people with traumatic brain, spinal cord, or burn injury: a National Institute on Disability, Independent Living, and Rehabilitation Research Model System study

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Alyssa M. Bamer ◽  
Kara McMullen ◽  
Anne Deutsch ◽  
Mitch Sevigny ◽  
Tracy Mroz ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Independent Living ◽  
Satisfaction With Life ◽  
Burn Injury ◽  
Traumatic Injury ◽  
Well Being ◽  
Model Systems ◽  
Satisfaction With Life Scale ◽  
Rehabilitation Research ◽  
Life Scale

Abstract Background The Satisfaction with Life Scale (SWLS) is a widely used measure of subjective well-being. Recent evidence indicates the fifth item of the scale reduces the reliability of the scale and is inappropriate for use in traumatic injury populations. The purpose of this study was to develop a linking procedure between the five-item version of the SWLS and a modified four-item version, which removes the problematic item, for use in Spinal Cord (SCI), Traumatic Brain (TBI), and Burn Injury populations. Methods Proration (i.e. adding the mean of the four items to their total) was identified as a potential linking solution that could be easily implemented in clinical or research settings. The validity of the proration approach was evaluated by examining mean differences, cross group classification by SWLS category, score correlations, the intraclass correlation coefficient, and visual inspection of Bland-Altman plots in a large sample of SCI, TBI, and Burn Injury survivors who were participants in the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Model Systems’ National Databases. Results A total of 17,897 (SCI n = 8566, TBI n = 7941, and Burn n = 1390) participants were included in this study. SWLS scores ranged from 5 to 35, and the average score difference between directly derived and prorated scores was 0.39 points. A large majority of the sample (93%) had score differences of < 4 points (i.e. approximately 0.5 SD). The correlation between the prorated and directly derived scores was very high (r = 0.97) and the ICC value indicated excellent reliability (ICC = 0.97). Conclusions This study provides a valid scoring approach for researchers or clinicians who don’t want to lose continuity with previously collected data but prefer to switch to the modified four-item version of the SWLS. Clear guidance is provided for traumatic injury researchers or clinicians on how to implement the proration scoring approach.

Temperature sensitivity after burn injury: A Burn Model System National Database Hot Topic

2021 ◽  
Author(s):  
Jamie Oh ◽  
Christopher Madison ◽  
Grace Flott ◽  
Elisha G Brownson ◽  
Stephen Sibbett ◽  
...  
Keyword(s):  
Temperature Sensitivity ◽  
Satisfaction With Life ◽  
Burn Injury ◽  
Model System ◽  
Satisfaction With Life Scale ◽  
National Database ◽  
Linear Regression Models ◽  
Chi Square ◽  
Related Quality ◽  
Over Time

Abstract Background People living with burn injury often report temperature sensitivity. However, its epidemiology and associations with health-related quality of life (HRQOL) are unknown. We aimed to characterize temperature sensitivity and determine its impact on HRQOL to inform patient education after recovery from burn injury. Methods We used the multicenter, longitudinal Burn Model System National Database to assess temperature sensitivity at 6, 12 and 24 months after burn injury. Chi-square and Kruskal-Wallis tests determined differences in patient and injury characteristics. Multivariable, multi-level generalized linear regression models determined the association of temperature sensitivity with Satisfaction with Life Scale (SWL) scores and Veterans RAND 12 (VR-12) physical (PCS) and mental health summary (MCS) component scores. Results The cohort comprised 637 participants. Two thirds (66%) experienced temperature sensitivity. They had larger burns (12% TBSA, IQR 4-30 vs 5% TBSA, IQR 2-15; p&lt;0.0001), required more grafting (5% TBSA, IQR 1-19 vs 2% TBSA, IQR 0-6; p&lt;0.0001), and had higher intensity of pruritus at discharge (11% severe vs 5% severe; p=0.002). After adjusting for confounding variables, temperature sensitivity was strongly associated with lower SWL (OR -3.2, 95% CI -5.2, -1.1) and MCS (OR -4.0, 95% CI -6.9, -1.2) at 6-months. Temperature sensitivity decreased over time (43% at discharge, 4% at 24-months) and was not associated with poorer HRQOL at 12 and 24 months. Conclusion Temperature sensitivity is common after burn injury and associated with worse SWL and MCS during the first year after injury. However, temperature sensitivity seems to improve and be less intrusive over time.

Driving patterns, confidence, and perception of abilities following moderate to severe traumatic brain injury: a TBI model system study

Brain Injury ◽  
2021 ◽  
pp. 1-8
Author(s):  
Thomas A. Novack ◽  
Yue Zhang ◽  
Richard Kennedy ◽  
Lisa J. Rapport ◽  
Jennifer Marwitz ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Severe Traumatic Brain Injury ◽  
Model System ◽  
System Study ◽  
Driving Patterns ◽  
Model System Study

Reactivity of Si-H and Si-vinyl end functionalized siloxanes toward PBT: A model system study

2005 ◽  
Vol 45 (8) ◽  
pp. 1067-1072 ◽  
Author(s):  
C.A. Fustin ◽  
M. Sclavons ◽  
N. Pantoustier ◽  
S. Bebelman ◽  
D. Truffier-Blanc ◽  
...  
Keyword(s):  
Model System ◽  
System Study ◽  
Model System Study

Electrochemical (De)Lithiation of 1D Sulfur Chains in Li–S Batteries: A Model System Study

2015 ◽  
Vol 137 (6) ◽  
pp. 2215-2218 ◽  
Author(s):  
Chun-Peng Yang ◽  
Ya-Xia Yin ◽  
Yu-Guo Guo ◽  
Li-Jun Wan
Keyword(s):  
Model System ◽  
System Study ◽  
Model System Study

scholarly journals “Living Well” After Burn Injury: Using Case Reports to Illustrate Significant Contributions From the Burn Model System Research Program

2020 ◽  
Author(s):  
Gretchen J Carrougher ◽  
Kara McMullen ◽  
Dagmar Amtmann ◽  
Audrey E Wolfe ◽  
Diana Tenney ◽  
...  
Keyword(s):  
Research Program ◽  
Independent Living ◽  
Burn Injury ◽  
Case Reports ◽  
Model System ◽  
Knowledge Generation ◽  
Case Study Methodology ◽  
Personal Benefit ◽  
The Impact

Abstract The Burn Model System (BMS) program of research has been funded since 1993 by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). The overarching aim of this program is to improve outcomes and quality of life for people with burns in the areas of health and function, employment, and community living and participation. This review reports on BMS contributions that have affected the lives of individuals with a significant burn injury using case reports to associate BMS contributions with recovery. In January 2020, current BMS grantee researchers assessed peer-reviewed BMS publications from 1994 to 2020. Using case report methodology, contributions were linked to three individuals treated at one of the four Burn Model System institutions. With over 25 years of NIDILRR funding, unique BMS contributions to patient recovery were identified and categorized into one of several domains: treatment, assessment measures, sequelae, peer support, employment, and long-term functional outcomes. A second review for significant results of BMS research that add to the understanding of burn injury, pathophysiology, and recovery research was identified and categorized as injury recovery research. The case study participants featured in this review identified select NIDILRR research contributions as having direct, personal benefit to their recovery. The knowledge generation and clinical innovation that this research program has contributed to our collective understanding of recovery after burn injury is considerable. Using case study methodology with three adult burn survivors, we highlight the impact and individual significance of program findings and reinforce the recognition that the value of any clinical research must have relevance to the lives of the study population.

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