Concerns and worries in people living with inflammatory bowel disease (IBD): A mixed methods study

2015 ◽  
Vol 78 (6) ◽  
pp. 573-578 ◽  
Author(s):  
Rachel L. Keeton ◽  
Antonina Mikocka-Walus ◽  
Jane M. Andrews
Keyword(s):  
Inflammatory Bowel Disease ◽  
Mixed Methods ◽  
Bowel Disease ◽  
Mixed Methods Study ◽  
Inflammatory Bowel

scholarly journals Heterogeneity in outcome assessment for inflammatory bowel disease in routine clinical practice: a mixed-methods study in a sample of English hospitals

BMJ Open ◽  
2021 ◽  
Vol 11 (12) ◽  
pp. e056413
Author(s):  
Violeta Razanskaite ◽  
Constantinos Kallis ◽  
Bridget Young ◽  
Paula R Williamson ◽  
Keith Bodger
Keyword(s):  
Inflammatory Bowel Disease ◽  
Mixed Methods ◽  
Outcome Assessment ◽  
Bowel Disease ◽  
Mixed Methods Study ◽  
Routine Practice ◽  
Reference List ◽  
Factors Associated ◽  
Inflammatory Bowel ◽  
Activity Indices

ObjectivesKnowledge of the extent of variation in outcome assessment for inflammatory bowel disease (IBD) in routine practice is limited. We aimed to describe and quantify variation in outcome coverage and to explore patient, clinician and practitioner factors associated with it.DesignProspective exploratory mixed-methods study.SettingIBD clinics at six hospitals in North West England with differing electronic health record (EHR) systems.MethodsMixed-methods study comprising: (a) structured observations of outcomes elicited during consultations (102 patients consulting 24 clinicians); (b) retrospective analysis of outcomes recorded in the EHR (909 consultations; 127 clinicians) and (c) semistructured interviews with the 24 observed clinicians. We determined whether specific outcome ‘sets’ were elicited or recorded, including: (1) a minimum set of symptom pairs (‘PRO-2’); (2) symptom sets from disease activity indices and (3) a reference list of 37 symptoms, signs and impacts. Factors associated with variation were explored in univariate and multivariate binary logistic regression analyses and from clinician interviews.ResultsPRO-2 coverage was not invariable (elicited during 81% of observed consultations; recorded in 56% of EHR) and infrequent for complete activity indices (all domains from Harvey-Bradshaw Index: elicited, 18%; recorded, 5%). The median number of outcomes from the reference list elicited per consultation was 12 (13-fold variation) and recorded in EHR was 7 (>20-fold variation). Symptom quantification (PRO-2) seldom adhered closely to standardised descriptors and an explicit timeframe was defined rarely. PRO-2 recording in EHR was associated with a diagnosis of ulcerative colitis (OR: 2.09 (95% CI 1.15 to 3.80)) and nurse-led consultations (OR: 6.98 (95% CI 3.28 to 14.83)) and a three-way model suggested 26% of total variability lay between clinicians, 17% between patients but the remainder was unexplained. Most clinicians expressed preference for individualised health status evaluations versus standardised outcome assessments.ConclusionsThere was little evidence for standardised assessment and recording of IBD outcomes and substantial intra-clinician and inter-clinician variation from one consultation to another. Nurses demonstrated a greater tendency to standardised practice.

950 Addressing Unmet Needs of Inflammatory Bowel Disease Patients With Patient-Reported Outcomes App: A Mixed Methods Study

2015 ◽  
Vol 148 (4) ◽  
pp. S-184
Author(s):  
Sameer Khan ◽  
Florence Dasrath ◽  
Sara Farghaly ◽  
Jason Rogers ◽  
Thomas A. Ullman ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Mixed Methods ◽  
Bowel Disease ◽  
Patient Reported Outcomes ◽  
Unmet Needs ◽  
Mixed Methods Study ◽  
Patient Reported ◽  
Inflammatory Bowel

scholarly journals Mindfulness-Based Cognitive Therapy Experiences in Youth With Inflammatory Bowel Disease and Depression: Protocol for a Mixed Methods Qualitative Study (Preprint)

2019 ◽  
Author(s):  
Tatjana Ewais ◽  
Jakob Begun ◽  
Maura Kenny ◽  
Alan Headey ◽  
Steve Kisely
Keyword(s):  
Inflammatory Bowel Disease ◽  
Young Adults ◽  
Mixed Methods ◽  
Qualitative Study ◽  
Focus Groups ◽  
Bowel Disease ◽  
Qualitative Data ◽  
Adolescents And Young Adults ◽  
Inflammatory Bowel

BACKGROUND Mindfulness-based programs are increasingly used as a part of integrated treatment for inflammatory bowel disease (IBD). However, the majority of research has been quantitative with limited qualitative exploration of patients’ experiences of mindfulness programs and no studies among adolescents and young adults with IBD. Furthermore, there has been a paucity of research exploring the role of common psychotherapy and group factors within mindfulness programs. OBJECTIVE This study aims to explore the experiences of adolescents and young adults with IBD and depression who completed a mindfulness-based cognitive therapy (MBCT) group program, as well as the role of therapeutic alliance, group affiliation, and other common psychotherapy and group factors. METHODS This mixed methods qualitative study, nested within a randomized controlled trial (RCT) of MBCT for adolescents and young adults with IBD, will obtain qualitative data from focus groups and open-ended survey questions. The study aims to conduct three to four focus groups with 6-8 participants in each group. It will employ data and investigator triangulation as well as thematic analysis of the qualitative data. RESULTS The study was approved by the Mater Hospital Human Research Ethics Committee and recruitment commenced in May 2019; study completion is anticipated by early 2020. CONCLUSIONS The study will contribute to the assessment of acceptability and feasibility of the MBCT program for adolescents and young adults with IBD. It will also elucidate the role of previously unexplored common psychotherapy and group factors within mindfulness training and help inform the design of a future large-scale RCT of MBCT in this cohort. CLINICALTRIAL Australian New Zealand Clinical Trials Registry (ANZCTR) ACTRN12617000876392; https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=373115 INTERNATIONAL REGISTERED REPOR PRR1-10.2196/14432

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