The reliability and validity of Turkish version of pedsQL multidimensional fatigue scale in Duchenne muscular dystrophy

2017 ◽  
Vol 27 ◽  
pp. S235
Author(s):  
I. Alemdaroğlu ◽  
N. Bulut ◽  
S. Bozgeyik ◽  
A. Karaduman ◽  
H. Topaloğlu ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Reliability And Validity ◽  
Turkish Version ◽  
Multidimensional Fatigue Scale

scholarly journals Reliability and validity of the turkish translation of pedsql™ multidimensional Fatigue scale in Duchenne Muscular Dystrophy

Neurosciences ◽  
2019 ◽  
Vol 24 (4) ◽  
pp. 302-310
Author(s):  
Ipek Alemdaroğlu-Gürbüz ◽  
Numan Bulut ◽  
Sibel Bozgeyik ◽  
Naime Ulug ◽  
Selen Arslan ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Reliability And Validity ◽  
Multidimensional Fatigue Scale

Performance of the Upper Limb Module—A Reliable and Valid Evaluation for Chinese Patients with Duchenne Muscular Dystrophy

2020 ◽  
Author(s):  
Yuen Yee Alice Chiu ◽  
Chun Wai Lo ◽  
Chi Kuk Connie Hui ◽  
Wai Chong Susanna Choi ◽  
So Lun Lee ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Upper Limb ◽  
Forced Vital Capacity ◽  
Motor Performance ◽  
Vital Capacity ◽  
High Reliability ◽  
Reliability And Validity ◽  
Chinese Patients ◽  
Rater Reliability

Abstract Background Duchenne muscular dystrophy is a genetic disease leading to progressive muscle weakness and degeneration. Effective assessment tool is needed to allow monitoring of progress to guide the management. This study assessed the reliability and validity of the Performance of Upper Limb (PUL) Module when used in patients with Duchenne Muscular Dystrophy (DMD). MethodsTotal thirty-three Chinese DMD patients were included. Twenty-five video-recorded PUL Module version 1.3 assessments were performed for the recruited patients with three raters evaluated the same recorded video for inter-rater reliability and evaluated the same performance one month later for intra-rater reliability. Construct validity was assessed correlating the PUL Module scores with the patients’ age, their forced vital capacity (N=25) and their Hammersmith motor scale scores (N=25) performed on the same day. ResultsThe intra-rater and inter-rater reliability (ICC 0.92 - 0.99), internal consistency (Cronbach’s alpha 0.97 - 0.99) and known groups validity (AUC 0.97) of PUL module were excellent. PUL was negatively correlated with age (r = -0.912), and positively correlated with the forced vital capacity (r = 0.87) and the Hammersmith motor scale (r = 0.84). The findings confirm the high reliability and validity of PUL module, and its high clinical relevancy in monitoring the deteriorating upper limb motor performance that strongly correlated with the lung function and generalized motor performance as age increased in DMD. ConclusionThis first study of PUL module in Chinese patients with DMD confirmed that it is a reliable valid tool to monitor clinical progress and outcome for DMD.

Electrical impedance myography in duchenne muscular dystrophy and healthy controls: A multicenter study of reliability and validity

2015 ◽  
Vol 52 (4) ◽  
pp. 592-597 ◽  
Author(s):  
Craig M. Zaidman ◽  
Lucy L. Wang ◽  
Anne M. Connolly ◽  
Julaine Florence ◽  
Brenda L. Wong ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Multicenter Study ◽  
Electrical Impedance ◽  
Reliability And Validity ◽  
Healthy Controls
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