scholarly journals Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group

2007 ◽  
Vol 68 (2) ◽  
pp. 173-178 ◽  
Author(s):  
Neil S. Coulson ◽  
Heather Buchanan ◽  
Aimee Aubeeluck
2016 ◽  
Vol 22 (9) ◽  
pp. 746-754 ◽  
Author(s):  
Tabor E. Flickinger ◽  
Claire DeBolt ◽  
Erin Wispelwey ◽  
Colleen Laurence ◽  
Erin Plews-Ogan ◽  
...  

2019 ◽  
Vol 128 (4) ◽  
pp. 293-299 ◽  
Author(s):  
Daniel Haik ◽  
Kevin Kashanchi ◽  
Sarah Tajran ◽  
Cameron Heilbronn ◽  
Catherine Anderson ◽  
...  

Objective: Idiopathic subglottic stenosis (iSGS) is a rare disease with few local resources for individuals to use. With the explosive growth of online social networking, platforms such as Facebook possess compelling potential to facilitate user-driven sharing of health information and peer support. This study was performed to better understand the content shared in a busy online community for individuals with iSGS. Methods: The largest online community (OC) for individuals with iSGS, Living With Idiopathic Subglottic Stenosis (LwiSGS), was examined. A thematic content analysis of the communications shared in February of 2018 was performed. A conventional qualitative analysis model was employed to analyze aggregated data. The data were then codified. Results: Analysis demonstrated that communications primarily encompassed three major thematic elements: (1) information sharing; (2) emotional support, expression, and experience sharing; and (3) community building. Positively toned posts grossly overshadowed negatively toned posts by almost a factor of 3. A significant portion of group members requested information from their peers, suggesting a high level of trust toward the resources provided in this group, even those involving a surgical procedure or medication. Conclusion: LwiSGS is a forum for patients with a rare chronic condition to share informational resources, personal experiences, and emotional support, as well as a community with their peers. These data suggest that LwiSGS could be a powerful resource for individuals with iSGS to share information, personal experiences, or emotional support.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 318-318
Author(s):  
Shanae Rhodes

Abstract My Sister’s Keeper is an online education and support group created by women of color in response to disproportionate stresses related to COVID-19 experienced by women of color. The current study aims to examine the Stage 2 evidence that an online support group formed by members of the community may help mediate inequity-related stressors and increase receptiveness to health-related recommendations. To begin to develop this evidence, a thematic analysis of 8 in-depth individual interviews was performed. Resulting themes included: 1) feeling empowered; 2) solidarity in sisterhood (e.g., shared ownership of a virtual community); 3) being focused (on women of color) yet being inclusive; 4) currency of knowledge (e.g., responsibility to share knowledge with others); and 5) preferring virtual accessibility to stay connected. Preliminary data suggest that social support offered through an online platform dedicated to women of color can promote health during the pandemic and possibly beyond.


Author(s):  
Jennifer Yeager

Surviving sexual violence has been described as one of the most traumatic life experiences, and social support is an extremely important coping strategy for survivors. With the rapidly increasing number of available online support communities, understanding exactly what kinds of support survivors need in the context on online social support groups is essential. This chapter presents a study of the types and extent of social support posts exchanged by members of an online social support group for survivors of sexual violence. The Social Support Behavior Code framework was used to code 755 messages that were posted over a 7-day period. Overall, emotional support (42.6%) was the most common support contained in posts, followed by information (21.2%), esteem (20.9%), network (13.1%), and tangible support (2.2%).


2016 ◽  
Vol 21 (11) ◽  
pp. 3087-3099 ◽  
Author(s):  
Tabor E. Flickinger ◽  
Claire DeBolt ◽  
Ava Lena Waldman ◽  
George Reynolds ◽  
Wendy F. Cohn ◽  
...  

2020 ◽  
Author(s):  
Osamu Kobori ◽  
Naoki Yoshinaga

BACKGROUND Owing to the rapid development of social networking services, online support groups vary widely both in goal and structure. Several studies have shown the potential effectiveness of online support groups, such as reducing psychological distress (eg depression) among individuals with mental health problems. However, online support groups often do not aim at effectiveness regarding distress-relief-related outcomes. OBJECTIVE The U2plus.jp (hereinafter U2plus) is an online support group for individuals with depression; in it, people support each other in structured ways while engaging in simple cognitive behavioral therapy (CBT) exercises. This study aimed to examine if usage frequency of the U2plus functions are associated with decreased stigma and increased consumer. METHODS In total, 355 U2plus users took part in an online survey. They were asked what therapy they had ever received, how often they logged into it and used each of its functions, and completed the following questionnaires: The Patient Health Questionnaire-9 (PHQ-9), the Perceived Devaluation Discrimination Scale, and the General Help Seeking Scale. RESULTS Regarding the therapy they received, 89.3% (n=308) had been on medication for mental health problems, and 67.5% (n=233) had received psychotherapy or mental health counselling. Regarding the usage frequency, approximately 20% of the participants signed in to U2plus and used its functions more than once a week. The usage frequency of U2plus functions was not associated with perceived stigma. However, usage frequency of some functions was correlated to help seeking intentions from formal sources (eg doctors and psychologists). Moreover, 90% of the participants had a history of medication for their mental health. Additionally, the more depressed participants were, the more frequently they used U2plus. CONCLUSIONS It was suggested that online support groups may serve as an alternative treatment option for those who are already undergoing pharmacological treatment and are willing to seek help from whatever source they deem helpful.


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