The Online Support Group as a Community: A Thematic Content Analysis of an Online Support Group for Idiopathic Subglottic Stenosis

2019 ◽  
Vol 128 (4) ◽  
pp. 293-299 ◽  
Author(s):  
Daniel Haik ◽  
Kevin Kashanchi ◽  
Sarah Tajran ◽  
Cameron Heilbronn ◽  
Catherine Anderson ◽  
...  
Keyword(s):  
Content Analysis ◽  
Support Group ◽  
Emotional Support ◽  
Online Community ◽  
Subglottic Stenosis ◽  
Online Support ◽  
Online Support Group ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Personal Experiences

Objective: Idiopathic subglottic stenosis (iSGS) is a rare disease with few local resources for individuals to use. With the explosive growth of online social networking, platforms such as Facebook possess compelling potential to facilitate user-driven sharing of health information and peer support. This study was performed to better understand the content shared in a busy online community for individuals with iSGS. Methods: The largest online community (OC) for individuals with iSGS, Living With Idiopathic Subglottic Stenosis (LwiSGS), was examined. A thematic content analysis of the communications shared in February of 2018 was performed. A conventional qualitative analysis model was employed to analyze aggregated data. The data were then codified. Results: Analysis demonstrated that communications primarily encompassed three major thematic elements: (1) information sharing; (2) emotional support, expression, and experience sharing; and (3) community building. Positively toned posts grossly overshadowed negatively toned posts by almost a factor of 3. A significant portion of group members requested information from their peers, suggesting a high level of trust toward the resources provided in this group, even those involving a surgical procedure or medication. Conclusion: LwiSGS is a forum for patients with a rare chronic condition to share informational resources, personal experiences, and emotional support, as well as a community with their peers. These data suggest that LwiSGS could be a powerful resource for individuals with iSGS to share information, personal experiences, or emotional support.

Content Analysis and User Characteristics of a Smartphone-Based Online Support Group for People Living with HIV

2016 ◽  
Vol 22 (9) ◽  
pp. 746-754 ◽  
Author(s):  
Tabor E. Flickinger ◽  
Claire DeBolt ◽  
Erin Wispelwey ◽  
Colleen Laurence ◽  
Erin Plews-Ogan ◽  
...  
Keyword(s):  
Content Analysis ◽  
Support Group ◽  
Online Support ◽  
People Living With Hiv ◽  
User Characteristics ◽  
Online Support Group ◽  
Living With Hiv

scholarly journals The impact of an online Facebook support group for people with multiple sclerosis on non-active users

2014 ◽  
Vol 3 (1) ◽  
Author(s):  
Jacqui Steadman ◽  
Chrisma Pretorius
Keyword(s):  
Multiple Sclerosis ◽  
Support Groups ◽  
Support Group ◽  
Emotional Support ◽  
Online Support ◽  
Online Support Groups ◽  
Informational Support ◽  
Online Support Group ◽  
Social Companionship ◽  
Active Membership

Background: Multiple sclerosis (MS) is a debilitating disease and there is little research on support networks for people with MS (PwMS). More specifically, most studies on online support groups focus on those who actively participate in the group, whereas the majority of those who utilise online support groups do so in a passive way.Objectives: This study therefore aimed to explore the experiences of non-active users of an online Facebook support group for PwMS. Emphasis was placed on the facilitators and the barriers that were associated with membership to this group.Method: An exploratory qualitative research design was implemented, whereby thematic analysis was utilised to examine the ten semi-structured interviews that were conducted.Results: Several facilitators were acquired through the online support group; namely emotional support (constant source of support, exposure to negative aspects of the disease),informational support (group as a source of knowledge, quality of information) and social companionship (place of belonging). Some barriers were also identified; namely emotional support (emotions lost online, response to messages, exposure to negative aspects of the disease), informational support (information posted on the group, misuse of group) and social companionship (non-active status).Conclusion: These findings demonstrate that the non-active members of the online support group for PwMS have valid reasons for their non-active membership status. More important,the findings suggest that the online Facebook support group provided the group members with an important support network in the form of emotional support, informational support and social companionship, despite their non-active membership status or the barriers that have been identified.

scholarly journals After the ordeal: health communication messages in a pregnancy-OSG

2020 ◽  
Vol 4 (1) ◽  
pp. 49
Author(s):  
Titi Nur Vidyarini
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Emotional Support ◽  
Recovery Process ◽  
Online Support ◽  
Medical Expert ◽  
Online Support Group ◽  
Health Support ◽  
Use Of Internet

The increase use of internet open up a broad spectrum of usage. Among those are the use of sharing platform such as Instagram and facebook for particular communities. Support groups are essential part of health treatment and recovery, in this case for pregnancy condition. One can try to find solace and information through online support group. Online support group enable people from around the globe to communicate, discuss and encourage others with similar condition. This article delves the question of how women use internet-based health support group. The researcher conduct qualitative discourse analysis on an online pregnancy support group and various literatures which explores the use of internet-based support group. The findings show that women use online support group because they found lack of support offline, they need information and emotional support regarding their pregnancy loss and the recovery process, the role of medical expert and the spouses are perceived differently.

Investigation of the “alternative” effects of an online support group for mental health problems among Japanese adults: A cross-sectional study (Preprint)

2020 ◽  
Author(s):  
Osamu Kobori ◽  
Naoki Yoshinaga
Keyword(s):  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Help Seeking ◽  
Mental Health Problems ◽  
Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Usage Frequency

BACKGROUND Owing to the rapid development of social networking services, online support groups vary widely both in goal and structure. Several studies have shown the potential effectiveness of online support groups, such as reducing psychological distress (eg depression) among individuals with mental health problems. However, online support groups often do not aim at effectiveness regarding distress-relief-related outcomes. OBJECTIVE The U2plus.jp (hereinafter U2plus) is an online support group for individuals with depression; in it, people support each other in structured ways while engaging in simple cognitive behavioral therapy (CBT) exercises. This study aimed to examine if usage frequency of the U2plus functions are associated with decreased stigma and increased consumer. METHODS In total, 355 U2plus users took part in an online survey. They were asked what therapy they had ever received, how often they logged into it and used each of its functions, and completed the following questionnaires: The Patient Health Questionnaire-9 (PHQ-9), the Perceived Devaluation Discrimination Scale, and the General Help Seeking Scale. RESULTS Regarding the therapy they received, 89.3% (n=308) had been on medication for mental health problems, and 67.5% (n=233) had received psychotherapy or mental health counselling. Regarding the usage frequency, approximately 20% of the participants signed in to U2plus and used its functions more than once a week. The usage frequency of U2plus functions was not associated with perceived stigma. However, usage frequency of some functions was correlated to help seeking intentions from formal sources (eg doctors and psychologists). Moreover, 90% of the participants had a history of medication for their mental health. Additionally, the more depressed participants were, the more frequently they used U2plus. CONCLUSIONS It was suggested that online support groups may serve as an alternative treatment option for those who are already undergoing pharmacological treatment and are willing to seek help from whatever source they deem helpful.

scholarly journals Exploring Unmet Needs from an Online Metastatic Breast Cancer Support Group: A Qualitative Study

Medicina ◽  
2021 ◽  
Vol 57 (7) ◽  
pp. 693
Author(s):  
Aravinthan Kadravello ◽  
Seng-Beng Tan ◽  
Gwo-Fuang Ho ◽  
Ranjit Kaur ◽  
Cheng-Har Yip
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Support Group ◽  
Unmet Needs ◽  
Treatment Options ◽  
Metastatic Breast ◽  
Public Hospitals ◽  
Online Support ◽  
Online Support Group ◽  
The Public

Background and Objective: Despite the increasing treatment options for patients with metastatic breast cancer (MBC), unmet needs remain common, especially in low and middle-income countries where resources are limited and MBC patients face many challenges. They often join support groups to cope with their unmet needs. Currently, many MBC patients connect with each other via online support group in view of the constant availability of support and rapid information exchange. The objective of this study is to determine the unmet needs of women with MBC from an online support group. Material and Methods: Messages in an online support group of twenty-two MBC patients over a period of three years from August 2016 till August 2019 were thematically analyzed. Results: Three themes were generated, (1) unmet information needs (2) unmet financial needs (3) unmet support needs. Women needed information on side effects of treatment, new treatment options and availability of clinical trials. Although Malaysia has universal health care coverage, access to treatment remains a major challenge. When treatment was not available in the public hospitals, or waiting lists were too long, women were forced to seek treatment in private hospitals, incurring financial catastrophe. Insufficient private insurance and inadequate social security payments force many women to consider stopping treatment. Women felt that they were not getting support from their clinicians in the public sector, who were quick to stop active treatment and advise palliation. On the other hand, clinicians in the private sector advise expensive treatment beyond the financial capability of the patients. Women with families also face the challenge of managing their family and household in addition to coping with their illness. Conclusions: There is a need for healthcare professionals, policy makers, and civil society to better address the needs of MBC patients through patient-centered, multidisciplinary and multi-organizational collaboration.

scholarly journals Building Sustainable Rural Age-Friendly Communities: Grassroots Perspectives

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 698-698
Author(s):  
Patricia Oh
Keyword(s):  
Content Analysis ◽  
Rural Communities ◽  
Community Engagement ◽  
Local Knowledge ◽  
Peer To Peer ◽  
Effect Change ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Technical Advice ◽  
Rural Work

Abstract Joining the AARP Network of Age-Friendly States and Communities does not make a community age-friendly; the age-friendly team must cultivate community engagement, develop collaborations with diverse stakeholders, mobilize resources, and document achievements. Little research describes the tools age-friendly rural communities use to effect change and develop sustainability. Thematic content analysis of 67 interviews conducted between December 09, 2018 and January 24, 2020 with age-friendly leaders in rural Maine communities suggested that peer-to-peer networking, privileging local knowledge, engaging local and regional partners, technical advice from a trusted source, and fun were among the tools used to move age-friendly rural work forward.

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