scholarly journals Parental experiences and perspectives on the value of seizure detection while caring for a child with epilepsy: A qualitative study

2021 ◽  
Vol 124 ◽  
pp. 108323
Author(s):  
Anouk van Westrhenen ◽  
Wendela F.M. de Lange ◽  
Eveline E.O. Hagebeuk ◽  
Richard H.C. Lazeron ◽  
Roland D. Thijs ◽  
...  
2015 ◽  
Vol 24 (2) ◽  
pp. 186-197 ◽  
Author(s):  
Sofie Engman-Bredvik ◽  
Nivia Carballeira Suarez ◽  
Richard Levi ◽  
Karin Nilsson

10.2196/23626 ◽  
2020 ◽  
Vol 8 (11) ◽  
pp. e23626
Author(s):  
Arja Rantala ◽  
Miia M Jansson ◽  
Otto Helve ◽  
Pekka Lahdenne ◽  
Minna Pikkarainen ◽  
...  

Background The parents of hospitalized children are often dissatisfied with waiting times, fasting, discharge criteria, postoperative pain relief, and postoperative guidance. Parents’ experiences help care providers to provide effective, family-centered care that responds to parents’ needs throughout the day surgery pathway. Objective The objective of our study was to describe parental experiences of the pediatric day surgery pathway and the needs for a digital gaming solution in order to facilitate the digitalization of these pathways. Methods This was a descriptive qualitative study. The participants (N=31) were parents whose children were admitted to the hospital for the day surgical treatments or magnetic resonance imaging. The data were collected through an unstructured, open-ended questionnaire; an inductive content analysis was conducted to analyze the qualitative data. Reporting of the study findings adheres to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist. Results Parental experiences of the children’s day surgery pathway included 3 main categories: (1) needs for parental guidance, (2) needs for support, and (3) child involved in his or her own pathway (eg, consideration of an individual child and preparation of child for treatment). The needs for a digital gaming solution were identified as 1 main category—the digital gaming solution for children and families to support care. This main category included 3 upper categories: (1) preparing children and families for the day surgery via the solution, (2) gamification in the solution, and (3) connecting people through the solution. Conclusions Parents need guidance and support for their children’s day surgery care pathways. A digital gaming solution may be a relevant tool to support communication and to provide information on day surgeries. Families are ready for and are open to digital gaming solutions that provide support and guidance and engage children in the day surgery pathways.


2016 ◽  
Vol 60 ◽  
pp. 11-16 ◽  
Author(s):  
Anneli Ozanne ◽  
Cecilia Verdinelli ◽  
Ingrid Olsson ◽  
Ulla H. Graneheim ◽  
Kristina Malmgren

Author(s):  
Aditi Sharma ◽  
Maria E. Loades ◽  
Laura Baker ◽  
Abbie Jordan ◽  
Venessa James

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