DESCRIBING COLLABORATION BETWEEN CARDIOLOGY AND PALLIATIVE CARE: A NATIONAL SURVEY STUDY OF CURRENT PRACTICES, CHALLENGES AND BARRIERS

Background: The majority of children with advanced heart disease in the inpatient setting die in an intensive care unit under 1 year of age following multiple interventions. While pediatric cardiology and palliative care provider attitudes have been described, little is known about pediatric cardiothoracic surgeon attitudes toward palliative care in children with advanced heart disease. Objective: To describe perspectives of pediatric cardiothoracic surgeons regarding palliative care in pediatric heart disease. Design: Cross-sectional web-based national survey. Results: Of the 220 surgeons who were e-mailed the survey, 36 opened the survey and 5 did not meet inclusion criteria (n = 31). Median years of practice was 23.5 (range: 12-41 years), and 87.1% were male. Almost all (90%) reported that they had experience consulting palliative care. While 68% felt palliative care consultation was initiated at the appropriate time, 29% felt it occurred too late. When asked the appropriate timing for palliative care consultation in hypoplastic left heart syndrome, 45% selected “at time of prenatal diagnosis” and 30% selected “when surgical and transcatheter options have been exhausted.” Common barriers to palliative care involvement included the perception of “giving up” (40%) and concern for undermining parental hope (36%). Conclusions: While a majority of pediatric cardiothoracic surgeons are familiar with palliative care, there is variation in perception of appropriate timing of consultation. Significant barriers to consultation still exist, including concern that parents will think they are “giving” up, undermining parental hope, and influence of palliative care on the medical care team’s approach.

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Physicians’ Perspectives on Palliative Care for Patients With End‐Stage Liver Disease: A National Survey Study

Liver Transplantation ◽

10.1002/lt.25469 ◽

2019 ◽

Vol 25 (6) ◽

pp. 859-869 ◽

Cited By ~ 12

Author(s):

Nneka N. Ufere ◽

John Donlan ◽

Lauren Waldman ◽

Arpan Patel ◽

Jules L. Dienstag ◽

...

Keyword(s):

Palliative Care ◽

Liver Disease ◽

National Survey ◽

Survey Study ◽

End Stage Liver Disease ◽

End Stage

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A National Survey Study of Transplant Physicians' Attitudes About Palliative Care

Biology of Blood and Marrow Transplantation ◽

10.1016/j.bbmt.2017.12.608 ◽

2018 ◽

Vol 24 (3) ◽

pp. S59-S60

Author(s):

Areej R. El-Jawahri ◽

Thomas W. LeBlanc ◽

Linda J. Burns ◽

Ellen M. Denzen ◽

Christa Meyer ◽

...

Keyword(s):

Palliative Care ◽

National Survey ◽

Survey Study

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What do transplant physicians think about palliative care? A national survey study

Cancer ◽

10.1002/cncr.31709 ◽

2018 ◽

Vol 124 (23) ◽

pp. 4556-4566 ◽

Cited By ~ 8

Author(s):

Areej El‐Jawahri ◽

Thomas W. LeBlanc ◽

Linda J. Burns ◽

Ellen Denzen ◽

Christa Meyer ◽

...

Keyword(s):

Palliative Care ◽

National Survey ◽

Survey Study

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Faculty Opinions recommendation of Colorectal screening after polypectomy: a national survey study of primary care physicians.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.1058706.510615 ◽

2006 ◽

Author(s):

Kenneth DeVault

Keyword(s):

Primary Care ◽

National Survey ◽

Primary Care Physicians ◽

Survey Study ◽

Colorectal Screening

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Empathy not quarantined: Association between people’s empathy to others and the COVID-19 pandemic situations based on a national survey study (Preprint)

10.2196/preprints.26834 ◽

2020 ◽

Author(s):

Zhibin Jiang ◽

Fan Yang ◽

Bu Zhong ◽

Xuebing Qin

Keyword(s):

Social Support ◽

Social Media ◽

National Survey ◽

Low Income ◽

Rural Areas ◽

Critical Role ◽

Affective Response ◽

Survey Study ◽

Income Levels ◽

The Social

BACKGROUND The Covid-19 pandemic had turned the world upside down, but not much is known about how people’s empathy might be affected by the pandemic. OBJECTIVE This study examined 1) how empathy towards others might be influenced by the social support people obtained by using social media; and 2) how the individual demographics (e.g., age, income) may affect empathy. METHODS A national survey (N = 943) was conducted in China in February 2020, in which the participants read three real scenarios about low-income urban workers (Scenario I), small business owners in cities (Scenario II), and farmers in rural areas (Scenario III) who underwent hardship due to COVID-19. After exposure to others’ difficulties in the scenarios, the participants’ empathy and anxiety levels were measured. We also measured the social support they had by using social media. RESULTS Results show that social support not only positively impacted empathy, β = .30, P < .001 for Scenario I, β = .30, P < .001 for Scenario II, and β = .29, P < .001 for Scenario III, but also interacted with anxiety in influencing the degree to which participants could maintain empathy towards others, β = .08, P = .010 for Scenario I, and β = .07, P = .033 for scenario II. Age negatively predicted empathy for Scenario I, β = -.08, P = .018 and Scenario III, β = -.08, P = .009, but not for Scenario II, β = -.03, P = .40. Income levels – low, medium, high – positively predicted empathy for Scenario III, F (2, 940) = 8.10, P < .001, but not for Scenario I, F (2, 940) = 2.14, P = .12, or Scenario II, F (2, 940) = 2.93, P = .06. Participants living in big cities expressed greater empathy towards others for Scenario III, F (2, 940) = 4.03, P =.018, but not for Scenario I, F (2, 940) = .81, P = .45, or Scenario II, F (2, 940) = 1.46, P =.23. CONCLUSIONS This study contributes to the literature by discovering the critical role empathy plays in people’s affective response to others during the pandemic. Anxiety did not decrease empathy. However, those gaining more social support on social media showed more empathy for others. Those who resided in cities with higher income levels were more empathetic during the COVID-19 outbreak. This study reveals that the social support people obtained helped maintain empathy to others, making them resilient in challenging times.

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QOLP-03. NEURO-ONCOLOGY PALLIATIVE CARE SURVEY OF PHYSICIANS IN SUB-SAHARAN AFRICA

Neuro-Oncology ◽

10.1093/neuonc/noaa215.728 ◽

2020 ◽

Vol 22 (Supplement_2) ◽

pp. ii175-ii175

Author(s):

Ramya Tadipatri ◽

Amir Azadi ◽

Madison Cowdrey ◽

Samuel Fongue ◽

Paul Smith ◽

...

Keyword(s):

Palliative Care ◽

Care Delivery ◽

Cultural Beliefs ◽

Oral Feeding ◽

Statistical Testing ◽

Sub Saharan Africa ◽

Neurological Deficits ◽

Survey Study ◽

Prior Training ◽

Sub Saharan

Abstract BACKGROUND Early access to palliative care is a critical component of treating patients with advanced cancer, particularly for glioblastoma patients who have low rates of survival despite optimal therapies. Additionally, there are unique considerations for primary brain tumor patients given the need for management of headaches, seizures, and focal neurological deficits. METHODS We conducted a survey of 109 physicians in Sub-Saharan Africa in order to determine level of understanding and skill in providing palliative care, types of palliative care therapies provided, role of cultural beliefs, availability of resources, and challenges faced. Demographic data including age, gender, and prior training was collected and analyzed using ANOVA statistical testing. RESULTS Among the participants, 48% felt comfortable in providing palliative care consultations, 62% have not had prior training, 52% believed that palliative care is only appropriate when there is irreversible deterioration, 62% expressed having access to palliative care, 49% do not have access to liquid opioid agents, 50% stated that cultural beliefs held by the patient or family prevented them from receiving, palliative care, and 23% stated that their own beliefs affected palliative care delivery. Older providers (age > 30) had a clearer understanding of palliative care (p = 0.004), were more comfortable providing consultation (p = 0.052), and were more likely to address mental health (p < 0.001). CONCLUSIONS Palliative care delivery to glioblastoma patients in Sub-Saharan Africa is often delayed until late in the disease course. Barriers to adequate palliative care treatment identified in this survey study include lack of training, limited access to liquid opioid agents, and cultural beliefs. Challenges most often identified by participants were pain management and end-of-life communication skills, but also included patient spirituality and psychological support, anxiety and depression, terminal dyspnea, ethics, and intravenous hydration and non-oral feeding.

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Knowledge and attitudes of Italian medical oncologists and palliative care physicians toward medical use of cannabis in cancer care: a national survey

Supportive Care in Cancer ◽

10.1007/s00520-021-06383-7 ◽

2021 ◽

Author(s):

Marco Filetti ◽

Dario Trapani ◽

Alessio Cortellini ◽

Vincenza Cofini ◽

Stefano Necozione ◽

...

Keyword(s):

Palliative Care ◽

National Survey ◽

Cancer Care ◽

Knowledge And Attitudes ◽

Medical Oncologists

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Concerns of Patients With Cancer on Accessing Cannabis Products in a State With Restrictive Medical Marijuana Laws: A Survey Study

Journal of Oncology Practice ◽

10.1200/jop.19.00184 ◽

2019 ◽

Vol 15 (10) ◽

pp. 531-538 ◽

Cited By ~ 2

Author(s):

Vinita Singh ◽

Ali J. Zarrabi ◽

Kimberly A. Curseen ◽

Roman Sniecinski ◽

Justine W. Welsh ◽

...

Keyword(s):

Health Care ◽

Palliative Care ◽

Health Care Providers ◽

Medical Marijuana ◽

Survey Study ◽

Care Practice ◽

Care Providers ◽

Patients With Cancer ◽

Medical Marijuana Laws ◽

Source Of Information

PURPOSE: Several states, particularly in the Southeast, have restrictive medical marijuana laws that permit qualified patients to use specific cannabis products. The majority of these states, however, do not provide avenues for accessing cannabis products such as in-state dispensaries. METHODS: We conducted a survey of patients registered for medical marijuana (low tetrahydrocannabinol [THC] oil cards) in an ambulatory palliative care practice in Georgia (one of the states with restrictive medical marijuana laws). RESULTS: We had a total of 101 responses. Among our sample of patients who use cannabis as part of a state-approved low THC oil program, 56% were male and 64% were older than age 50 years. Advanced cancer was the most common reason (76%) for granting the patients access to a low THC oil card. Although patients reported cannabis products as being extremely helpful for reducing pain, they expressed considerable concerns about the legality issues (64%) and ability to obtain THC (68%). Several respondents were using unapproved formulations of cannabis products. For 48% of the patients, their physician was the source of information regarding marijuana-related products. Furthermore, they believed that their health care providers and family members were supportive of their use of cannabis (62% and 79%, respectively). CONCLUSION: Patients on Georgia’s medical marijuana program are most concerned about the legality of the product and their ability to obtain marijuana-related products. Therefore, we recommend that states with medical marijuana laws should provide safe and reliable access to cannabis products for qualifying patients.

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