Young Patients' Parents Fare Worse On Diabetes Quality-of-Life Measure

2006 ◽  
Vol 1 (12) ◽  
pp. 8
Author(s):  
Kate Johnson
MedPharmRes ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 9-14
Author(s):  
Tri Doan ◽  
Tuan Tran ◽  
Han Nguyen ◽  
◽  
◽  
...  

Purpose: This study aimed to translate and culturally adapt the self-report and parent-proxy Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) into Vietnamese and to evaluate their reliability. Methods: Both English versions of the self-report and parent-proxy CHEQOL-25 were translated and culturally adapted into Vietnamese by using the Principles of Good Practice for the Translation and Cultural Adaptation Process. The Vietnamese versions were scored by 77 epileptic patients, who aged 8–15 years, and their parents/caregivers at neurology outpatient clinic of Children Hospital No. 2 – Ho Chi Minh City. Reliability of the questionnaires was determined by using Cronbach’s coefficient α and intra-class correlation coefficient (ICC). Results: Both Vietnamese versions of the self-report and parent-proxy CHEQOL-25 were shown to be consistent with the English ones, easy to understand for Vietnamese children and parents. Thus, no further modification was required. Cronbach’s α coefficient for each subscale of the Vietnamese version of the self-report and parent-proxy CHEQOL-25 was 0.65 to 0.86 and 0.83 to 0.86, respectively. The ICC for each subscale of the self-report and parent-proxy CHEQOL-25 was in the range of 0.61 to 0.86 and 0.77 to 0.98, respectively. Conclusion: The Vietnamese version of the self-report and parent-proxy CHEQOL-25 were the first questionnaires about quality of life of epileptic children in Vietnam. This Vietnamese version was shown to be reliable to assess the quality of life of children with epilepsy aged 8–15 years.


1992 ◽  
Vol 1 (1) ◽  
pp. 35-44 ◽  
Author(s):  
M. Watson ◽  
M. Law ◽  
G. P. Maguire ◽  
B. Robertson ◽  
S. Greer ◽  
...  

2011 ◽  
Vol 3 (1) ◽  
pp. 82-90 ◽  
Author(s):  
Vasiliki MATZIOU ◽  
Konstantinos TSOUMAKAS ◽  
Efrosyni VLAHIOTI ◽  
Leukothea CHRYSICOPOULOU ◽  
Petros GALANIS ◽  
...  

2005 ◽  
Vol 20 (10) ◽  
pp. 2858-2865 ◽  
Author(s):  
S. Schanz ◽  
I.T. Baeckert-Sifeddine ◽  
C. Braeunlich ◽  
S.E. Collins ◽  
A. Batra ◽  
...  
Keyword(s):  

1995 ◽  
Vol 4 (3) ◽  
pp. 187-206 ◽  
Author(s):  
B. G. Vickrey ◽  
R. D. Hays ◽  
R. Harooni ◽  
L. W. Myers ◽  
G. W. Ellison

Blood ◽  
2021 ◽  
Author(s):  
Alessandro Casini ◽  
Sylvia von Mackensen ◽  
Cristina Santoro ◽  
Claudia Djambas Khayat ◽  
Meriem Belhani ◽  
...  

Due to its low prevalence, epidemiologic data on afibrinogenemia are limited and none are available on health-related quality of life (HRQoL). We conducted a cross-sectional international study to characterize the clinical features, the fibrinogen supplementation modalities and their impact on HRQoL in patients with afibrinogenemia. A total of 204 patients (119 adults and 85 children) from 25 countries were included. The bleeding phenotype was severe: 68 (33.3%) patients having at least one bleed per month and 48 (23%) a history of cerebral bleeding. About 35% (n=72) of patients were treated with fibrinogen concentrates or cryoprecipitates as prophylaxis, 18.1% (n=37) received more than one injection per week and 16.6% (n=34) were on home treatment. A thrombotic event was reported in venous and/or arterial territories by 37 (18.1%) patients. Thrombosis occurred even in young patients and recurrence was frequent (7.4%). The total HRQoL was lower in children than in adults. Discomfort linked to treatment and limitations to sports and leisure were the main concerns. Women and children were particularly affected in family relationships. In multivariate analyses, younger age, residence in Asia or Africa and a previous thrombotic event were statistically correlated with a worse HRQoL. In conclusion, our study underlines the severe bleeding and thrombotic phenotype and their impact on HRQoL in afibrinogenemia. The optimal strategy for fibrinogen supplementation needs to be determined.


2013 ◽  
Vol 16 (3) ◽  
pp. A95-A96 ◽  
Author(s):  
J.A. Dujaili ◽  
A.Q. Blebil ◽  
A. Awaisu ◽  
J. Bredle ◽  
M.A. Dujaili ◽  
...  

2000 ◽  
Vol 5 (3) ◽  
pp. 299-321 ◽  
Author(s):  
Pragai Jirojanakul ◽  
Suzanne Skevington
Keyword(s):  

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