scholarly journals Access to palliative care: the primacy of public health partnerships and community participation

2021 ◽  
Author(s):  
Jason Mills ◽  
Julian Abel ◽  
Allan Kellehear ◽  
Manjula Patel
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Community Participation ◽  
Health Partnerships

scholarly journals Sustainable public health partnerships: Results from 41 European, Asian and American regions

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J Ese ◽  
C Ihlebak
Keyword(s):  
Public Health ◽  
Public Sector ◽  
Social Contexts ◽  
Research Literature ◽  
Person Fit ◽  
Time Data ◽  
Incentive Schemes ◽  
The Public ◽  
Health Partnerships ◽  
Group Interviews

Abstract Background Public health problems often constitute so called “wicked problems”, and the importance of involving multiple stakeholders in order to address such problems is acknowledged, for instance through the SDG17 guidelines. Partnerships between academia and the public sector have been deemed especially promising. However, sustainable partnerships might be difficult due to divergent understandings and interests. Although there is a substantial research literature on academic-public partnerships in general, partnerships addressing public health specifically are less investigated. The aim of the project was therefore to identify enablers for sustainable public health partnerships between academia and the public sector. Methods A mixed methods design was used. A survey regarding partnerships was sent to 41 European, Asian and American regions, with a response rate of 72 %. Based on survey data, an interview guide was developed and four best cases (Canada, Bulgaria, the Netherlands and Norway) were identified. Site visits and group interviews with representatives from stakeholders of the partnerships were conducted. Interview data and answers to open ended questions from questionnaires were analysed. Results Three main findings became apparent through the analysis. Important enablers were: 1) person-to-person fit between individuals, 2) national incentive schemes for collaboration, and 3) formal partnership agreements that provided a framework that allowed for manoeuvring. The enablers identified are on a macro, miso and micro level. Furthermore, they can be categorised as political, organisational, and social. Conclusions The data support the notion that partnerships are complex social structures that need to be initiated and managed on different levels and with different measures. At the same time, data demonstrate that across different geographical, political, and social contexts the same enablers are reappearing as important for sustaining public health partnerships. Key messages Similar enablers for sustaining public health partnerships are found across geographical, political, and social contexts. Important enablers for partnerships are person-to-person fit, national incentive schemes, and formal agreements.

scholarly journals Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Sonja McIlfatrick ◽  
Paul Slater ◽  
Esther Beck ◽  
Olufikayo Bamidele ◽  
Sharon McCloskey ◽  
...  
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
Current Knowledge ◽  
Care Delivery ◽  
Public Awareness ◽  
Public Understanding ◽  
Public Health Issue ◽  
Public Health Approach ◽  
Cross Sectional Survey

Abstract Background Palliative care is recognised as a public health issue with the need for earlier integration in the wider healthcare system. However, research indicates that it continues to be accessed late in the course of an illness, public understanding of palliative care is limited, and common misconceptions prevail. Strategies to address this are needed in order to reduce barriers to palliative care delivery and improve access. Methods An explanatory sequential mixed methods study, comprising a cross-sectional survey and interviews was undertaken. Sociodemographic characteristics, public awareness, knowledge and perceptions of palliative care were examined and strategies to raise awareness and overcome barriers within a public health framework were identified. Survey data were analysed using SPSS v25 with factor analysis and non-parametric statistics and qualitative data were analysed using thematic analysis. Results A total of 1201 participants completed the survey (58.3% female, mean age 61 years) and 25 took part in interviews. A fifth of participants (20.1%) had previously heard about palliative care and had an accurate understanding of the term. Being female, higher educated, married, and older, increased respondents’ levels of awareness. The three most commonly held misconceptions included: Palliative care is exclusively for people who are in the last 6 months of life (55.4% answered incorrectly); A goal of palliative care is to address any psychological issues brought up by serious illness (42.2% answered incorrectly); and a goal of palliative care is to improve a person’s ability to participate in daily activities (39.6% answered incorrectly). Talking about palliative and end of life care was advocated but societal taboos restricted this occurring with exposure limited to personal experience. Conclusions Current knowledge gaps and misconceptions derived from limited ad hoc personal experiences and fear of engaging in taboo conversations may deter people from accessing integrated palliative care services early in a disease trajectory. The results indicate the need for public education programmes that move beyond merely raising awareness but provide key messages within a public health approach, which may change attitudes to palliative care thus ultimately improving end of life outcomes.

scholarly journals Young adults understanding and readiness to engage with palliative care: extending the reach of palliative care through a public health approach: a qualitative study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Anita Mallon ◽  
Felicity Hasson ◽  
Karen Casson ◽  
Paul Slater ◽  
Sonja McIlfatrick
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Young Adults ◽  
Death And Dying ◽  
Population Based ◽  
Public Health Approach ◽  
Structured Interviews ◽  
Comfort Care ◽  
Positive Attitudes ◽  
Framework Approach

Abstract Background Moving palliative care from a solely clinical focus to a more population based and community orientated approach is the hallmark of a much advocated public health approach to palliative care. Young adults are a vital cohort of the public, yet their understanding of palliative care has not been investigated. This study aimed to explore young adults’ understanding of palliative care and identify factors that influence their engagement. Methods A purposive sample of young adults (n = 24) aged 18–29 years were recruited from one UK University. Semi-structured interviews were undertaken face to face or via telephone or Skype between November 2017 and February 2018. Thematic analysis using a framework approach and underpinned by a socioecological perspective was used to analyse the interviews. Results Three thematic categories were identified relating to intrapersonal and interpersonal influences, cultural and social influences and organisational and public policy influences. Palliative care was understood as supportive comfort care, delivered in the absence of cure, associated with the end of life and specifically focused on death and dying. Negative attitudes related to the context of care, which represented a static and hopeless situation. Whilst some reported positive attitudes, potential engagement was seen to be governed by a lack of knowledge and protective cultural norms. In terms of demonstrating readiness to engage with palliative care, participants requested clear information and suggested a normalising of palliative care through the education system. Conclusion Young adults in this study were ready to find out more about palliative care and identified social media as a platform upon which to engage this population. However, their perception of a society that views palliative care as a subject for those directly affected, creates a barrier to engagement. This study identified the ingredients of a public health message and mediums for disseminating the message. However, findings also suggest that a cultural shift is required to recognise the potential of engaging young adults in health issues that cross the life span, empowering them not only as individuals but as vital members of community and society.

scholarly journals The public health end-of-life care movement: history, principles, and styles of practice

2018 ◽  
Author(s):  
Aliki Karapliagou ◽  
Allan Kellehear ◽  
Klaus Wegleitner
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychosocial Care ◽  
Care Practice ◽  
Life Care ◽  
The Public ◽  
Civic Practice ◽  
Practice Methods

This chapter briefly outlines the history, key concepts, and main practice methods from public health approaches to end-of-life care. Although linked to psychosocial care approaches, its main methods draw not from psychology or health services inspired approaches but rather from health promotion, community development, and civic engagement. Key methods covered include community volunteering, social networking, community engagement, and compassionate communities and cities. The aim of these kinds of approaches is to embed palliative care practice as a social and civic practice in all sectors of society and to ensure that palliative care as a policy is represented in all civic policies (e.g. schools, workplaces, faith groups, and cultural activities) and not solely in health care.

scholarly journals The Role of Public Health Partnerships in the Success of the Jackson Heart Study Undergraduate Training and Education Center

2020 ◽  
Vol 30 (1) ◽  
pp. 41-46
Author(s):  
Wendy B. White ◽  
Frances Henderson ◽  
Kisa K. Harris ◽  
Amel Mohamed ◽  
Asoka Srinivasan
Keyword(s):  
Public Health ◽  
Biomedical Research ◽  
Medical Center ◽  
Jackson Heart Study ◽  
Undergraduate Training ◽  
Shared Resources ◽  
Training And Education ◽  
Health Partnerships ◽  
Heart Study ◽  
Health Related

Background: The Jackson Heart Study (JHS) is a single-site prospective epidemiologic investigation of cardiovascular disease (CVD) among African Americans from the central Jackson, Mississippi area. The study is a collaboration between Jackson State University (JSU), University of Mississippi Medical Center (UMMC), Tougaloo College (TC), and the Mississippi State Department of Health (MSDH). The JHS Undergraduate Training and Education Center (JHSUTEC) at TC was developed to increase the numbers of college-aged African American students entering public health and health-related fields. To achieve this goal, the UTEC designed the Jackson Heart Study (JHS) Scholars program.Methods: JHS Scholars are required to take additional classes and participate in public health and/or biomedical research. The scholars engage in research locally during the academic year. However, many scholars participate in research outside of the Jack­son Metropolitan area during the summer. Because of this, national collaborators were needed to act as mentors and hosts.Results: Since the inception of the JHSUTEC, more than 15 collaborations have been formed that have shared resources and student successes. As of May 2018, more than150 students have successfully completed the JHS Scholars program and many have continued into careers in public health, biomedical research, and medicine. Since 2004, JHS scholars have published 29 papers and 15 scholars have received diversity supplements.Conclusion: Collaborative activities and public health partnerships have contributed to the success of the JHSUTEC program and have served as a pathway of entry into STEM fields for minority students.Ethn Dis. 2020;30(1):41-46; doi:10.18865/ed.30.1.41

Does Residential Segregation Affect Access to Public Health Education Among Rural Migrants in China?

2020 ◽  
Author(s):  
zicheng wang ◽  
Jiachun Liu ◽  
Juan Ming
Keyword(s):  
Public Health ◽  
Social Network ◽  
Health Education ◽  
Community Participation ◽  
Residential Segregation ◽  
Public Health Education ◽  
Rural Migrants ◽  
Migration Patterns ◽  
Education Access ◽  
Model Coefficient

Abstract Background: Rural migrants in China often experience serious residential segregation in destination cities, potentially resulting in limited access to public health education. However, the effect of residential segregation on public health education access remains unexplored. The present paper aims to address three issues. Does residential segregation have significant effects on access to public health education? If it does, what are its potential mechanisms accounting for? Additionally, are any heterogeneity effects differentiated by local duration, migration patterns, migration traits, and regional variations?Methods: The data from the 2014 National Migrants Population Dynamic Monitoring Survey and Logit regression are applied to explore the association between residential segregation and access to public health education. We further use multinomial treatment effects regression to address the endogenous issue. Several Logit models are also used to investigate potential mechanisms and heterogeneous effects.Results :The Logit estimations reveal that rural migrants in segregated neighborhoods are negatively related with lower prevalence of attendance (OR: 0.9200, 95% CI: 0.8500, 0.9958) and online participation of public health education (OR: 0.8709, 95% CI: 0.7893, 0.9609). The negative effects of residential segregation on access to public health education are also drawn in the multinomial treatment effects regressions (attendance model: coefficient: −4.3321, 95% CI: −8.6404, −0.0238; method model: coefficient: −1.6482; 95% CI: −2.6790, −0.6173). The mechanism analysis also demonstrates that residential segregation is negatively associated with the two potential transmission channels: social network formation (OR: 0.6630, 95% CI: 0.6098, 0.7209) and community participation (OR: 0.7880, 95% CI: 0.7106, 0.8737).Conclusion: Residential segregation produces a negative effect on public health education access. Social network and community participation may act as the transmission channel that links residential segregation and access to public health education. Additionally, the effects of residential segregation on public health education are differentiated across regional variations, local duration, migration patterns, and family migration.

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