Burden Scale For Family Caregivers--Danish Version

Caregiver burden describes the physical, psychological, social, and financial demands of providing care to others. Caregiver burden has been investigated in general, and off-time caregiving often specific to chronic, recurring conditions. Despite the substantial research attention to caregiving burden, there have been few studies aimed establishing the psychometric evaluation of measurement tools used to measure the construct ( Pendergrass et al., 2018 ). Accurate measurement of caregiving burden is essential for studying the myriad effects on caregivers’ mental, physical, financial, and relational health. To begin to fill this gap, we conducted an exploratory factor analysis and a confirmatory factor analysis of the Burden Scale for Family Caregivers ( Pendergrass et al., 2018 ) in two distinct samples. Results of an exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) indicated a one factor solution. Implications for these findings on the study of caregiver burden are included.

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Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home

BMC Health Services Research ◽

10.1186/s12913-018-3047-4 ◽

2018 ◽

Vol 18 (1) ◽

Cited By ~ 6

Author(s):

Anna Pendergrass ◽

Cintia Malnis ◽

Uta Graf ◽

Sabine Engel ◽

Elmar Graessel

Keyword(s):

At Risk ◽

Family Caregivers ◽

Classification System ◽

Short Version ◽

Older Person ◽

Burden Scale ◽

At Home

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Development of the Caregiving Burden Scale for Family Caregivers of Children with Cancer

Western Journal of Nursing Research ◽

10.1177/01939459211041170 ◽

2021 ◽

pp. 019394592110411

Author(s):

Hamide Nur Çevik Özdemir ◽

Selmin Şenol

Keyword(s):

Factor Analysis ◽

Family Caregivers ◽

Delphi Technique ◽

Psychosocial Health ◽

Item Pool ◽

Children With Cancer ◽

Caregiving Burden ◽

Pediatric Cancer Patients ◽

Confirmatory Factor ◽

Burden Scale

Due to the burden of caregiving, family caregivers of children with cancer suffer from physical and psychosocial health problems. The aim of this study was to develop a Caregiving Burden Scale for Family Caregivers of Children with Cancer (CBSFC-CC) and to assess its psychometric properties. A methodological, descriptive study design was conducted. The study sample consisted of 217 family caregivers caring for children with cancer between the ages of 0 and 18 years. The item pool of the scale was created using the Delphi Technique. The Cronbach’s alpha coefficient for the overall scale was 0.93. The item-total score correlations ranged from 0.424 to 0.645. The exploratory factor analysis showed that the scale explained 68.34% of the total variance. The confirmatory factor analysis also showed that the factor loadings of the scale ranged from 0.46 to 0.96. NNFI, CFI, and IFI were found to be > 0.90, and RMSEA was found to be < 0.09. The CBSFC-CC was found to be a good multidimensional instrument for evaluating the burden on family caregivers of pediatric cancer patients. It can be used in clinical practice and research. This tool can be considered to tailor interventions aimed at improving caregiver outcomes.

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Psychometric properties of the Caregiving Burden Scale for Family Caregivers with Relatives in Nursing Homes: Scale development

Japan Journal of Nursing Science ◽

10.1111/j.1742-7924.2010.00149.x ◽

2010 ◽

Vol 7 (2) ◽

pp. 136-147 ◽

Cited By ~ 4

Author(s):

Hiroki FUKAHORI ◽

Noriko YAMAMOTO-MITANI ◽

Tomoko SUGIYAMA ◽

Yuichi SUGAI ◽

Ichiro KAI

Keyword(s):

Nursing Homes ◽

Scale Development ◽

Psychometric Properties ◽

Family Caregivers ◽

Caregiving Burden ◽

Burden Scale

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Benefits of immediate versus delayed palliative care to informal family caregivers of persons with advanced cancer: Outcomes from the ENABLE III randomized clinical trial.

Journal of Clinical Oncology ◽

10.1200/jco.2014.32.18_suppl.lba9513 ◽

2014 ◽

Vol 32 (18_suppl) ◽

pp. LBA9513-LBA9513 ◽

Cited By ~ 1

Author(s):

J Nicholas Dionne-Odom ◽

Andres Azuero ◽

Kathleen Lyons ◽

Zhongze Li ◽

Tor Tosteson ◽

...

Keyword(s):

Clinical Trial ◽

Palliative Care ◽

Randomized Clinical Trial ◽

Family Caregivers ◽

Advanced Cancer ◽

Treatment Effects ◽

Subjective Burden ◽

Patient Death ◽

Burden Scale ◽

Cancer Experience

LBA9513 Background: Family caregivers of individuals with advanced cancer experience significant burden and diminished QOL; few interventions have been found to reduce these outcomes. Methods: Randomized clinical trial conducted from 10/11/2010 to 9/5/2013 of immediate versus delayed (initiated 12 weeks after randomization) entry patients (n=207) and caregivers (n=122) into ENABLE (Educate, Nurture, Advise, Before Life Ends), a phone-based concurrent oncology palliative care intervention. QOL (Caregiver Quality of Life-Cancer, lower scores=better QOL), depression (Center for Epidemiological Study-Depression) and burden (Montgomery Borgatta Caregiver Burden Scale; subjective burden [SB], objective burden [OB]; demand burden [DB]) measures were collected at baseline, 6, 12, 18, and 24 weeks, and every 12 weeks until patient death or study completion. Results: Estimated treatment effects (immediate minus delayed) for caregivers from randomization to 12 weeks were (mean [SE]): -3.1 [2.3] for QOL (P=.17), -4.1 [1.3] for depression (P=.003), -1.0 [0.4] for SB (P=.02), 0.3 [0.6] for OB (P=.60), and -0.5 [0.6] for DB (P=.39). Estimated treatment effects (immediate minus delayed) from intervention initiation to 12 weeks were (mean [SE]): -6.4 [3.4] for QOL (P=.06), -7.4 [2] for depression (P<.001), -1.0 [0.6] for SB (P=.08), -0.6 [0.7] for OB (P=.44), and -0.5 [0.8] for DB (P=.50). Estimated treatment effects (immediate minus delayed) measured backwards from the time of patient’s death were (mean [SE]): of -4.9 [2.6] for QOL (P=.07), -3.8 [1.5] for depression (P=.02), -1.1 [0.4] for SB (P=.01), -0.6 [0.6] for OB (P=.26), and -0.7 [0.6] for DB (P=.22). Conclusions: Caregivers in the immediate group had lower depression, SB, and trends towards better QOL in comparisons up to 12 weeks, following initiation of the intervention in both groups, and in the terminal decline analysis. These results suggest that concurrent oncology palliative care should be initiated as early as possible to maximize benefit to caregivers. Clinical trial information: NCT01245621.

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Do Caregiver Characteristics Affect Caregiver Burden Differently in Different Countries?

American Journal of Alzheimer s Disease & Other Dementias® ◽

10.1177/1533317518822047 ◽

2018 ◽

Vol 34 (3) ◽

pp. 148-152 ◽

Cited By ~ 1

Author(s):

Uwe Konerding ◽

Tom Bowen ◽

Paul Forte ◽

Eleftheria Karampli ◽

Tomi Malmström ◽

...

Keyword(s):

Family Caregivers ◽

Survey Data ◽

Informal Care ◽

Caregiver Burden ◽

Short Form ◽

Physical Problems ◽

Special Support ◽

Burden Scale ◽

Person With Dementia

The relationships between caregiver burden as measured with the Burden Scale for Family Caregivers–short form and 6 characteristics of caregivers caring for patients with dementia were investigated for caregivers from England (n = 36), Finland (n = 42), and Greece (n = 46) using survey data. In all 3 countries, caregiver burden increases with physical problems of the caregiver, emotional problems of the caregiver, and weekly hours of care. Hence, in all 3 countries, special support for informal care is required when these characteristics are at high levels. When the caregiver is a spouse or long-term partner of the person with dementia, lives in the same house as this person, or spends fewer than 20 h/wk for other duties than care, this is associated with less caregiver burden in England but with more caregiver burden in Greece. Accordingly, special support is required for Greek caregivers with these characteristics, but the opposite is true for English caregivers.

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