From the state to the family: reconfiguring the responsibility for long-term nursing care at home

2002 ◽  
Vol 9 (1) ◽  
pp. 3-11 ◽  
Author(s):  
Kristin Bjornsdottir
Keyword(s):  
Nursing Care ◽  
The State ◽  
The Family ◽  
Care At Home ◽  
At Home

Experience with videoconferencing between a neonatal unit and the families' home from the perspective of certified paediatric nurses

2009 ◽  
Vol 15 (6) ◽  
pp. 275-280 ◽  
Author(s):  
Birgitta Lindberg ◽  
Karin Axelsson ◽  
Kerstin Öhrling
Keyword(s):  
Nursing Care ◽  
Neonatal Intensive Care ◽  
Neonatal Unit ◽  
Thematic Content Analysis ◽  
Need Support ◽  
The Family ◽  
Care At Home ◽  
Preterm Born ◽  
The Relationship ◽  
At Home

Parents of preterm-born infants need support after returning to their homes with their baby. We studied the experience of certified paediatric nurses (CPNs) with the use of videoconferencing between the neonatal intensive care unit and the families' home. Families were given a home videoconferencing unit, which allowed them to contact staff at the neonatal unit, day and night. Over a period of 12 months, ten families used the videoconferencing equipment. Families made a median of 4 telemedicine calls each (range 2–30). Narrative interviews were performed with 10 CPNs after the study ended. Qualitative thematic content analysis was applied to the interview data and one theme was identified: smoothing the transition of infants from the neonatal unit to the families' home. The CPNs found that videoconferencing helped them to assess the overall situation at home and facilitated the relationship between parents and the infant. The CPNs felt that they were able to provide security to the family. The use of videoconferencing was considered as a generally positive experience and as a tool to improve nursing care at home.

Long-Term Care at Home

2014 ◽  
Author(s):  
Doron D. Goldman ◽  
Regina Khurin ◽  
Debora W. Tingley ◽  
Darlene Yee-Melichar
Keyword(s):  
Long Term Care ◽  
Term Care ◽  
Care At Home ◽  
At Home

Survey of bereavement care at home-visit nursing stations in Japan

2020 ◽  
Author(s):  
Miwa OZAWA ◽  
Seiko UCHINO ◽  
Jungetsu SEI ◽  
Kazuyoshi UEHARA
Keyword(s):  
Social Life ◽  
Home Visit ◽  
Statistical Processing ◽  
Nursing Facilities ◽  
Life Planning ◽  
Nursing Experience ◽  
The Family ◽  
Care At Home ◽  
Bereavement Care ◽  
At Home

Abstract BackgroundWith a rapidly aging population, the importance of promoting end-of-life care at home has been pointed out. Home-visit nurses play an important role as professionals in charge of home care, and pre- and post- bereavement care for bereaved families is included in home-visit nursing services. However, bereaved families are not always provided with care after bereavement in Japan. This present study aims to investigate the relationship between the provision rates of pre- and post-bereavement care for the patient family and the demographics of home-visit nurses through a survey of home-visit nurses, and to clarify the details of post-bereavement care and the reasons why the care is employed, exploratorily through a survey of the managers of home-visit nursing stations.MethodsA self-rating anonymous questionnaire survey was conducted with 2,400 facilities (including 2,200 facilities randomly selected from among the members of Home-Visit Nursing Stations of the National Nursing Business Association). For the analysis, simple aggregation was used and the statistical processing employed SPSS ver21.0.ResultsA total of 680 valid responses were analyzed. The mean length of home-visit nursing experience was 10.6 years and that of hospital nursing experience was 15.2 years. The provision rate of post-bereavement care was 90% or higher in most of the identified items, excluding “Provided continued support/life planning until the family fully recovers social life”. For the provision of post-bereavement care, most items exceeded 70%, but excluding “Provided continued support until the family fully recovers social life”, and “Involved in building a life after bereavement”.Compared to the participants with less than 5 years of home-visit nursing experience, those with 10 years or longer experience had statistically significantly higher rates of providing post-bereavement care in more than half of the identified items. Home-visit nursing facilities with 24-hour services had statistically significantly higher rates of providing care in more than half of the items of both of pre- and post-bereavement care, compared to the facilities without 24-hour services. About 70% of the managers think that bereaved families need follow-up, and visited the families as a post-bereavement care.

Oncology to specialised palliative home care systematic transition: the Domus randomised trial

2020 ◽  
Vol 10 (3) ◽  
pp. 350-357
Author(s):  
Kirstine Benthien ◽  
Pernille Diasso ◽  
Annika von Heymann ◽  
Mie Nordly ◽  
Geana Kurita ◽  
...  
Keyword(s):  
Palliative Care ◽  
Fast Track ◽  
Symptom Burden ◽  
Assessment System ◽  
Place Of Death ◽  
Oncological Treatment ◽  
Care At Home ◽  
At Home

ObjectivesTo assess the effect of a systematic, fast-track transition from oncological treatment to specialised palliative care at home on symptom burden, to explore intervention mechanisms through patient and intervention provider characteristics and to assess long-term survival and place of death.MeasuresThe effect of a systematic, fast-track transition from oncological treatment to specialised palliative care at home on patient symptom burden was studied in the Domus randomised clinical trial. Participants had incurable cancer and limited treatment options. The intervention was provided by specialised palliative home teams (SPT) based in hospice or hospital and was enriched with a psychological intervention for patient and caregiver dyad. Symptom burden was measured with Edmonton Symptom Assessment System (ESAS-r) at baseline, 8 weeks and 6 months follow-up and analysed with mixed models. Survival and place of death was analysed with Kaplan-Meier and Fisher’s exact tests.ResultsThe study included 322 patients. Tiredness was significantly improved for the Domus intervention group at 6 months while the other nine symptom outcomes were not significantly different from the control group. Exploring the efficacy of intervention provider demonstrated significant differences in favour of the hospice SPT on four symptoms and total symptom score. Patients with children responded more favourably to the intervention. The long-term follow-up demonstrated no differences between the intervention and the control groups regarding survival or home deaths.ConclusionsThe Domus intervention may reduce tiredness. Moreover, the intervention provider and having children might play a role concerning intervention efficacy. The intervention did not affect survival or home deaths.Trial registration numberNCT01885637

scholarly journals INVOLUNTARY TREATMENT AMONG OLDER ADULTS WITH COGNITIVE IMPAIRMENT RECEIVING NURSING CARE AT HOME.

2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 981-981
Author(s):  
V Moermans ◽  
M Bleijlevens ◽  
H Verbeek ◽  
F Tan ◽  
K Milisen ◽  
...  
Keyword(s):  
Older Adults ◽  
Cognitive Impairment ◽  
Nursing Care ◽  
Involuntary Treatment ◽  
Care At Home ◽  
At Home

Psychiatry and the Artificial Kidney

1983 ◽  
Vol 143 (1) ◽  
pp. 87-88
Author(s):  
John Kogeorgos
Keyword(s):  
Renal Failure ◽  
Chronic Renal Failure ◽  
Standard Treatment ◽  
Artificial Kidney ◽  
Social Aspects ◽  
The Family ◽  
The Impact ◽  
At Home

Regular, long term haemodialysis is a standard treatment of patients in chronic renal failure. Its psychiatric implications have been dealt with in a number of studies, most of which concentrate on purely psychological or social aspects, for example patients' perception of and response to illness (Pritchard, 1974), the relevance to outcome of basic personality (Kaplan De-Nour and Czaczkes, 1976), or the impact on the family of dialysis carried out at home (Farmer et al, 1979). There are two distinct psychiatric syndromes of importance which can be clinically recognized.

„Respite care” as a significant instrument of support for carers of persons with disabilities

2019 ◽  
Vol 2 (XIX) ◽  
pp. 151-167
Author(s):  
Maciej Borski
Keyword(s):  
People With Disabilities ◽  
Respite Care ◽  
The State ◽  
European Countries ◽  
Public Authorities ◽  
Persons With Disabilities ◽  
The Family

Naturally, it is the family who is predestined to take care of people with disabilities. However, they cannot be left alone with all their problems. What turns out to be necessary is the support from the state. It seems that nowadays public authorities recognize the necessity, however, they are trying to achieve the goal with the least possible financial involvement. What might constitute a very good example confirming the thesis is the long-term negligence of the state in the area of assistance to carers of persons with disabilities in the form of the so-called respite care. The author’s objective was to set this institution in a broader context of support for carers of persons with disabilities. For this purpose, what will be elaborated on is not only the origins and current legal measures functioning in Poland, but also those in selected European countries.

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