Transition to Adulthood for Pediatric Moyamoya Patients

2020 ◽  
Vol 18 (06) ◽  
pp. 273-278
Author(s):  
R Michael Scott ◽  
Edward R. Smith
Keyword(s):  
Transition To Adulthood ◽  
Care Physician ◽  
Coordination Of Care ◽  
Surgical Revascularization ◽  
Term Care ◽  
Transition Care ◽  
Key Stakeholders ◽  
The Individual ◽  
Intracranial Vasculature

AbstractMoyamoya is a progressive arteriopathy of the intracranial vasculature, predominantly affecting the terminal branches of the internal carotid artery. Treatment is predicated on surgical revascularization to reduce the risk of stroke. For patients diagnosed and treated as children, it is important to recognize the long-term implications of the disease, for example, that moyamoya is treatable, but not curable. Pediatric moyamoya patients face unique challenges as they transition to adulthood as a consequence of the chronic nature of this disorder. Successful long-term care requires a strategy that incorporates ongoing longitudinal disease monitoring, coordination of care between physician teams, and anticipation of socioeconomic factors that change over time. This article provides an approach to transition care to adult caregivers for pediatric moyamoya patients with a specific focus on the three key stakeholders in the process: the neurosurgeon, the primary care physician, and the individual patient.

scholarly journals Title I: Modernizing Definitions and Programs Under the Administration on Aging

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 714-715
Author(s):  
Marie Gualtieri
Keyword(s):  
Title I ◽  
Adult Population ◽  
Term Care ◽  
Older Americans ◽  
Aging Society ◽  
Program Adaptation ◽  
Older Americans Act ◽  
The Individual ◽  
Older Adult Population

Abstract The recent reauthorization of the Older Americans Act adds language and definitions to current issues facing the aging population. Specifically, Title I includes definitions related to program adaptation and coordination, workforce and long-term care issues, nutrition and social isolation, as well as family caregivers. Different from the last authorization, these definitions span beyond the individual experience to include other entities impacted by an aging society, such as the workforce and families. Overall, the Title I reauthorization seeks to modernize policy to reflect the current influx of the older adult population and its consequences.

Quality Toolbox: Improving Coordination of Care in Long-Term Care—Through Residentsʼ Eyes

2003 ◽  
Vol 25 (2) ◽  
pp. 30-37
Author(s):  
Pamela A. Carroll-Solomon ◽  
Renee Bell ◽  
Kristin Butler ◽  
James G. Cannon ◽  
Victoria Christian ◽  
...  
Keyword(s):  
Long Term Care ◽  
Coordination Of Care ◽  
Term Care

scholarly journals Is Long-Term Care Person Centred? A Case Study

2021 ◽  
Author(s):  
Katarina Young
Keyword(s):  
Long Term Care ◽  
Direct Care ◽  
Care Providers ◽  
Term Care ◽  
Study Approach ◽  
Key Stakeholders ◽  
Direct Care Providers ◽  
Government Legislation

In Ontario long-term care (LTC) settings, person-centred care (PCC) is promoted by government legislation, accreditation organizations and professional practice guidelines aiming to integrate this approach. However, there is currently no standardized approach to providing PCC in LTC. The purpose of this study was to examine public policies on PCC in Ontario and explore how they are interpreted and translated into practice in LTC. A qualitative case study approach was used to examine the perspectives of key stakeholders at one LTC facility in Ontario. Focus groups were conducted with residents, family members, direct care providers and managers. Through content analysis, findings were organized into four categories showcasing both overlapping and differential understandings of PCC in practice: 1) conceptualization, 2) barriers, 3) facilitators, and 4) evaluation. Identified tensions between policy and the delivery of PCC highlight systemic issues that must be addressed to enable equitable person-centred LTC rooted in resident-identified priorities.

scholarly journals Recommended Common Data Elements for International Research in Long-Term Care Homes: Exploring the Workforce and Staffing Concepts of Staff Retention and Turnover

2019 ◽  
Vol 5 ◽  
pp. 233372141984434 ◽  
Author(s):  
Franziska Zúñiga ◽  
Charlene H. Chu ◽  
Veronique Boscart ◽  
Anette Fagertun ◽  
Montserrat Gea-Sánchez ◽  
...  
Keyword(s):  
Long Term Care ◽  
Intention To Leave ◽  
Rapid Review ◽  
Staff Retention ◽  
Common Data Element ◽  
Term Care ◽  
Common Data Elements ◽  
The Individual ◽  
Staff Level

The aim of this review is to develop a common data element for the concept of staff retention and turnover within the domain of workforce and staffing. This domain is one of four core domains identified by the WE-THRIVE ( Worldwide Elements to Harmonize Research in Long-Term Care Li ving Environments) group in an effort to establish an international, person-centered long-term care research infrastructure. A rapid review identified different measurement methods to assess either turnover or retention at facility level or intention to leave or stay at the individual staff level. The selection of a recommended measurement was guided by the WE-THRIVE group’s focus on capacity rather than deficits, the expected availability of internationally comparable data, and the goal to provide a short, ecologically viable measurement. We therefore recommend to measure staff’s intention to stay with a single item, at the individual staff level. This element, we argue, is an indicator of staff stability, which is important for reduced organizational cost and improved productivity, positive work environment, and better resident–staff relationships and quality of care.

scholarly journals Addressing the Pension Decumulation Phase of Employee Retirement Planning

2020 ◽  
Author(s):  
Jorge Miguel Ventura Bravo
Keyword(s):  
Mortality Data ◽  
Term Care ◽  
Individual Level ◽  
Bequest Motives ◽  
Care Services ◽  
Life Annuity ◽  
Financial Options ◽  
Income Stream ◽  
The Individual

Longevity increases and population ageing create challenges for all societal institutions, particularly those providing retirement income, healthcare, and long-term care services. At the individual level, an obvious question is how to ensure all retirees have an adequate, secure, stable, and predictable lifelong income stream that will allow them to maintain a target standard of living for, however, long the individual lives. In this chapter, we review and discuss the main pension decumulation options by explicitly modelling consumers’ behaviour and objectives though an objective function based on utility theory accounting for consumption and bequest motives and different risk preferences. Using a Monte-Carlo simulation approach calibrated to US financial market and mortality data, our results suggest that purchasing a capped participating longevity-linked life annuity at retirement including embedded longevity and financial options that allow the annuity provider to periodically revise annuity payments if observed survivorship and portfolio outcomes deviate from expected (or guaranteed) values at contract initiation deliver superior welfare results when compared with classical annuitization and non-annuitization decumulation strategies.

CHANGES OF THE ORGANIZATIONS, PROVIDING SOCIAL SERVICES, IN THE CONTEXT OF DEINSTITUTIONALIZATION

2018 ◽  
Vol 1 ◽  
Author(s):  
Janina Čižikienė ◽  
Audronė Urmanavičienė
Keyword(s):  
Social Services ◽  
Inpatient Care ◽  
Institutional Care ◽  
Developed Countries ◽  
Community Based ◽  
Term Care ◽  
Expert Interview ◽  
The Individual ◽  
Community Based Services

The challenges of globalization are the reason why the EU countries are looking for the ways to make the provision of social services most effective and best fitted to the customer’s needs. In 1960s, deinstitutionalization processes started to take place in many developed countries with the aim to reduce the inpatient care and to develop the community-based services. Deinstitutionalization is replacement of inpatient care with the services that are more in line with the individual interests of each customer. Currently, it is essential in Lithuania, where institutional care is widespread, and the services, provided in the institutions, are ineffective due to their depersonalization, strict procedure, and work with a group of the customers. They are not adapted to individual needs of a person, however, the main services that have no alternatives and are required for long-term care of the persons with intellectual disabilities, mental disorders, and for children, left without parental care, remain. The following research methods were applied: analysis of scientific literature and documents, expert interview, analysis and interpretation of the research results. The review of literature and the research data, presented in the article, reveal the issues of deinstitutionalization process of the organizations, providing social services, as well as the challenges faced in reorganization of children’s care homes.

scholarly journals “Preventing the Pain” When Working with Family and Sexual Violence in Primary Care

2013 ◽  
Vol 2013 ◽  
pp. 1-7 ◽  
Author(s):  
Jan Coles ◽  
Elizabeth Dartnall ◽  
Jill Astbury
Keyword(s):  
Primary Care ◽  
Sexual Violence ◽  
Family Violence ◽  
Traumatic Stress ◽  
Secondary Traumatic Stress ◽  
Discussion Paper ◽  
Term Care ◽  
Professional Stress ◽  
The Individual

Primary care professionals (PCPs) are increasingly being expected to identify and respond to family and sexual violence as the chronic nature and severity of the long-term health impacts are increasingly recognized. This discussion paper reports the authors’ expert opinion from their experiences running international workshops to prevent trauma among those who work and research sexual violence. It describes the burnout and secondary traumatic stress literature which provides the evidence supporting their work. Implications for practicing basic training in response to trauma and ongoing education are a key area for responding to family violence and preventing professional stress. A professional culture that supports and values caring well for those who have experienced family violence as well as “caring for the carer” is needed. Working in teams and having more support systems in place are likely to protect PCPs from secondary traumatic stress and burnout. Undergraduate and postgraduate training of PCPs to develop trauma knowledge and the skills to ask about and respond to family violence safely are essential. In addition, the healthcare system, workplace, and the individual practitioner support structures need to be in place to enable PCPs to provide safe and effective long-term care and access to other appropriate services for those who have experienced family violence.

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