User experiences, usability, and social presence of a peer-to-peer support app: survey of young adults affected by cancer

Author(s):  
C. Benedict ◽  
A. J. Lazard ◽  
S. M. Smith ◽  
A. Agrawal ◽  
M. K. R. Collins ◽  
...  
Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 660-P
Author(s):  
JESSICA FINNEY ◽  
DENISE CHARRON-PROCHOWNIK ◽  
JODI T. KRALL ◽  
ANA M. DIAZ ◽  
INGRID LIBMAN

2019 ◽  
Author(s):  
Katherine Kelly ◽  
Shelley Doucet ◽  
Alison Luke ◽  
Rima Azar ◽  
William Montelpare

BACKGROUND Individuals with health care needs and their caregivers require substantial informational and emotional support. Providing this support is a major challenge for care providers, who are often not able to adequately address barriers and may not be aware of available services and programs. Online P2P support offers an accessible and inexpensive source of support; however, the breadth of these supports on social media has not been previously documented. OBJECTIVE This study was a scoping review of research examining the use of peer-to-peer support on social media by individuals with health care needs and their caregivers. METHODS This review used the PRISMA-SR method to search for articles from 1997 to 2019. RESULTS A total of 94 articles were included. Patients and caregivers use many social media websites for P2P interaction, including: Facebook (n = 19), Twitter (n = 7), and YouTube (n = 6). Providing and receiving informational and emotional support were important uses of social media for P2P support; however, the specific needs and experiences of patients and caregivers appeared to change as knowledge regarding the condition(s) improved. Despite the many benefits associated with participating in online P2P groups, concerns related to ethics, privacy, and the potential to spread misinformation are outlined as risks associated with its use. CONCLUSIONS This study revealed that patients and caregivers engage in P2P support on social media to receive informational and emotional support from peers, despite known risks and limitations. Social networking websites were revealed to be particularly suited for P2P support communication.


2013 ◽  
Vol 3 (1) ◽  
pp. 61-70 ◽  
Author(s):  
David Simmons ◽  
Chris Bunn ◽  
Simon Cohn ◽  
Jonathan Graffy
Keyword(s):  

2020 ◽  
Vol 38 (10) ◽  
pp. 2433-2434 ◽  
Author(s):  
Markus W. Haun ◽  
Andreas Ihrig ◽  
Philipp Karschuck ◽  
Christian Thomas ◽  
Johannes Huber

2016 ◽  
Vol 34 (8) ◽  
pp. 1168-1185 ◽  
Author(s):  
Jason D. Jones ◽  
Katherine B. Ehrlich ◽  
Bonnie E. Brett ◽  
Jacquelyn T. Gross ◽  
Jonathan J. Mohr ◽  
...  

Within the field of relationship science there is increasing interest in the connections between close relationships and physical health. In the present study, we examined whether adolescents’ (∼12 years old) and young adults’ (∼20 years old) perceptions of their parents as a secure base prospectively predict C-reactive protein (CRP), a commonly used marker of inflammatory activity, at age 32 in a well-characterized sample of African Americans. We utilized existing data collected as part of the Maryland Adolescent Development in Context Study (MADICS) to construct measures of perceptions of parental secure base support (SBS), general parental support, and peer support in early adolescence and early adulthood. In the present study, SBS was operationalized as the perceived ability to depend on parents in times of need. Fifty-nine African American MADICS participants who reported on perceived support in early adolescence and early adulthood participated in a follow-up home visit at age 32 during which serum CRP was measured via a blood draw. After controlling for inflammation-related confounds (e.g., tobacco use, body mass index), adolescents’ perceptions of parental SBS, but not peer support or general parental support, predicted lower CRP values at age 32 ( b = −.92, SE = .34, p < .05). None of the support variables in early adulthood predicted CRP at 32 years. This study adds to a growing literature on relationships and health-related outcomes and provides the first evidence for a link between parental SBS in adolescence and a marker of inflammatory activity in adulthood.


2020 ◽  
Author(s):  
Dorien Smit ◽  
Janna Vrijsen ◽  
Bart Groeneweg ◽  
Amber Dings ◽  
Janneke Peelen ◽  
...  

BACKGROUND Despite their popularity, the efficacy of online peer support communities for individuals with depression remains unclear. Little is known about the working mechanisms of online communities in general and for depression specifically. The evidence for the efficacy of online peer support for depression is confounded by methodological issues and ambiguity of relevant outcome measures. OBJECTIVE This study aimed to evaluate the usefulness of an online peer support community for depression from a user perspective. By employing qualitative modes of inquiry, the aim was to generate hypotheses on the mechanisms of change and outcomes of online peer support usage in depression. METHODS Fifteen semi-structured interviews were conducted with users of the online peer support community Depression Connect [DC], in which experiences and outcomes of forum use in coping with depression were examined. To explore diverse perspectives of community usage, theoretical sampling was performed, and negative cases were included. RESULTS A complex set of factors seemed to influence the subjective usefulness of the online peer support community DC from a consumer perspective. The data revealed 4 distinctive user experiences: A sense of belonging, emotional growth, self-efficacy, and empowerment. Furthermore, losing oneself was the central negative aspect of forum use. The deployment and development of 3 differentiated user roles (e.g., reading, posting, responding) seemed to individually and interactively affect user experiences. Finally, the online peer support community seemed to serve as a digital realm to practice and reflect on coping with depression and was mainly used as a supplement to offline support for depression. CONCLUSIONS The DC online peer support community allowed individuals familiar with depression to learn how to cope (better) with depression and practice these newly gained insights/skills. It may serve as a supplement to formal care for depression.


Sign in / Sign up

Export Citation Format

Share Document