scholarly journals An economic evaluation of eribulin for advanced breast cancer treatment based on the Southeast Netherlands advanced breast cancer registry

2020 ◽  
Vol 59 (9) ◽  
pp. 1123-1130
Author(s):  
Xavier G. L. V. Pouwels ◽  
Bram L. T. Ramaekers ◽  
Sandra M. E. Geurts ◽  
Frans Erdkamp ◽  
Birgit E. P. J. Vriens ◽  
...  
2017 ◽  
Vol 77 (08) ◽  
pp. 870-878 ◽  
Author(s):  
Markus Wallwiener ◽  
Felix Heindl ◽  
Sara Brucker ◽  
Florin-Andrei Taran ◽  
Andreas Hartkopf ◽  
...  

Abstract Purpose Patient-reported outcomes (PROs) have been incorporated into clinical trials for many symptoms and medical conditions. A transition from paper-based capture of PROs to electronic PROs (ePROs) has recently started. This study reports on the feasibility of ePRO assessment in a prospective registry including molecular data for patients with advanced breast cancer. Methods As part of the PRAEGNANT network, patients were invited by clinical trial staff, physicians, and nurses to complete three standardized Internet-based questionnaires (EQ 5D 5 L, CES-D and IPAQ). Feasibility was assessed by the staff members who assigned the user accounts by the patients. The completeness of the questionnaires was also assessed. Results Fifteen of 17 patients who were asked agreed to participate to complete the PRO questionnaires (EQ-5D-5L and CES-D). However, the IPAQ (physical activity) questionnaire was only validly completed by 9 patients. Feasibility was ranked better by the physicians and dedicated clinical trial staff than by the nursing staff. Conclusions Incorporating ePRO questionnaires into an advanced breast cancer registry is feasible, and no major hurdles were reported. Involving stakeholders from the start, the application is tailored to the capacities and abilities of both patients and clinical staff. The patientsʼ compliance was better with some questionnaires, but others may present difficulties.


Author(s):  
I Cavada Carranza ◽  
M Carrasco Gomariz ◽  
M Moreno Garcia ◽  
R Diez Fernandez ◽  
T Molina Garcia

2002 ◽  
Vol 63 (7) ◽  
pp. 1612-1615
Author(s):  
Yasuhiro TANI ◽  
Seiichi MINAMI ◽  
Hirofumi ADACHI ◽  
Katsuhito KONISHI ◽  
Masato TAKAHASHI ◽  
...  

2021 ◽  
Author(s):  
Paul Peter Schneider ◽  
Bram L. Ramaekers ◽  
Xavier Pouwels ◽  
Sandra Geurts ◽  
Khava Ibragimova ◽  
...  

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