scholarly journals A spiritual care intervention for chaplains in home-based palliative care: design of a mixed-methods study investigating effects on patients’ spiritual wellbeing

2021 ◽  
pp. 1-14
Author(s):  
Anke I. Liefbroer ◽  
Iris R. Wierstra ◽  
Daisy J.A. Janssen ◽  
Renske Kruizinga ◽  
Ineke Nagel ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Spiritual Care ◽  
Mixed Methods Study ◽  
Spiritual Wellbeing ◽  
Care Intervention ◽  
Home Based

What Matters Most? A Mixed Methods Study of Critical Aspects of a Home-Based Palliative Program

2017 ◽  
Vol 35 (2) ◽  
pp. 236-243 ◽  
Author(s):  
Claire K. Ankuda ◽  
Kaileen Kersting ◽  
Timothy C. Guetterman ◽  
Jessica Haefner ◽  
Evan Fonger ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Social Services ◽  
Functional Disability ◽  
Symptom Burden ◽  
Mixed Methods Study ◽  
Spiritual Support ◽  
Medical Monitoring ◽  
Home Based ◽  
The Impact

Background: Home-based palliative care programs have shown value in improving quality of care and lowering costs for seriously ill patients. It is unknown what specific elements of these programs matter most to patients and caregivers. Aim: To identify what services are critical and why they matter to patients in a home-based palliative program. Setting/Participants: A mixed methods study of 18 participants in the At Home Support (AHS) program in Southeast Michigan. Measurements: Two semistructured interviews were conducted for each participant, one while enrolled in AHS and another 3 months after the program ended to elicit the impact of AHS on their care. Qualitative theme data were merged with quantitative data on demographics, social and financial resources, symptoms, medical conditions, functional status, and utilization of health care while in AHS. Results: Four major themes of critical services reported by distinct populations of participants were described—medical support, endorsed by nearly every participant; emotional and spiritual support, endorsed by those with serious illness and symptom burden; practical assistance, endorsed by those with functional disability and isolation; and social services, endorsed by those in poverty. Medical monitoring was also described as critical but only by healthier participants. Conclusion: This study presents a conceptual model of the critical services in home-based palliative care and why these services are important to high-risk patients. This model may be used to guide further research and evaluation work on the benefits of home-based palliative care.

scholarly journals Examining the course of transitions from hospital to home-based palliative care: A mixed methods study

2021 ◽  
pp. 026921632110236
Author(s):  
Stephanie Saunders ◽  
Marianne E Weiss ◽  
Chris Meaney ◽  
Tieghan Killackey ◽  
Jaymie Varenbut ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Future Research ◽  
Healthcare Needs ◽  
Palliative Care Consultation ◽  
Home Based ◽  
Patient Reported ◽  
Discharge Readiness ◽  
Hospital To Home

Background: Hospital-to-home transitions in palliative care are fraught with challenges. To assess transitions researchers have used patient reported outcome measures and qualitative data to give unique insights into a phenomenon. Few measures examine care setting transitions in palliative care, yet domains identified in other populations are likely relevant for patients receiving palliative care. Aim: Gain insight into how patients experience three domains, discharge readiness, transition quality, and discharge-coping, during hospital-to-home transitions. Design: Longitudinal, convergent parallel mixed methods study design with two data collection visits: in-hospital before and 3–4 weeks after discharge. Participants completed scales assessing discharge readiness, transition quality, and post discharge-coping. A qualitative interview was conducted at both visits. Data were analyzed separately and integrated using a merged transformative methodology, allowing us to compare and contrast the data. Setting and participants: Study was set in two tertiary hospitals in Toronto, Canada. Adult inpatients ( n = 25) and their caregivers ( n = 14) were eligible if they received a palliative care consultation and transitioned to home-based palliative care. Results: Results were organized aligning with the scales; finding low discharge readiness (5.8; IQR: 1.9), moderate transition quality (66.7; IQR: 33.33), and poor discharge-coping (5.0; IQR: 2.6), respectively. Positive transitions involved feeling well supported, managing medications, feeling well, and having healthcare needs met. Challenges in transitions were feeling unwell, confusion over medications, unclear healthcare responsibilities, and emotional distress. Conclusions: We identified aspects of these three domains that may be targeted to improve transitions through intervention development. Identified discrepancies between the data types should be considered for future research exploration.

Assessing the Impact of Provider Training and Perceived Barriers on the Provision of Spiritual Care: a Mixed Methods Study

2021 ◽  
Author(s):  
Julia McGee ◽  
Elizabeth Palmer Kelly ◽  
Joseph Kelly-Brown ◽  
Erin Stevens ◽  
Brittany L. Waterman ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Spiritual Care ◽  
Mixed Methods Study ◽  
Perceived Barriers ◽  
Provider Training ◽  
The Impact

How, when, and why individuals with stage IV cancer seen in an outpatient setting are referred to palliative care: a mixed methods study

2020 ◽  
Vol 29 (2) ◽  
pp. 669-678 ◽  
Author(s):  
Ellis C. Dillon ◽  
Amy Meehan ◽  
Jinnan Li ◽  
Su-Ying Liang ◽  
Steve Lai ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Stage Iv ◽  
Outpatient Setting ◽  
Mixed Methods Study ◽  
Stage Iv Cancer

17 Key information summary (KIS) generation for people who died in scotland in 2017: a mixed methods study

2018 ◽  
Vol 8 (3) ◽  
pp. 366.1-366
Author(s):  
Anne M Finucane ◽  
Deborah Davydaitis ◽  
Emma Carduff ◽  
Zoe Horseman ◽  
Paul Baughan ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Care Plan ◽  
List Type ◽  
Electronic Patient Records ◽  
Essential Information ◽  
Out Of Hours ◽  
Essential Components ◽  
Out Of Hours Care

IntroductionThe percentage of people with a key information summary (KIS) or an anticipatory care plan (ACP) at the time of death can act as an indicator of access to palliative care. Key information summaries (KIS) introduced throughout Scotland in 2013, are shared electronic patient records which contain essential information relevant to a patient’s care including palliative care. There is now a need to examine current levels of KIS generation and ACP documentation in the last months of life to assess progress and review barriers and facilitators to sharing patient information across settings and to inform out-of-hours care.AimsTo estimate the extent and timing of KIS and ACP generation for people who die with an advanced progressive condition and to compare with our previous study (Tapsfield et al. 2016).To explore GP experiences of commencing and updating a KIS; and their perspectives on what works well and what can be improved in supporting this process.MethodsA mixed methods study consisting of a retrospective review of the electronic records of all patients who died in 16 Scottish general practices in 2017 and semi-structured interviews with 16 GPs.ResultsQuantitative and qualitative data collection is in progress.ConclusionFindings will describe current levels of KIS and ACP documentation for people who die in Scotland. We will synthesize GP experiences of KIS use and describe the essential components of an ACP that need to be documented to enable good palliative care across settings including emergency and out-of-hours care.Reference. Tapsfield J, Hall C, Lunan C, McCutheon H, McLoughlin P, Rhee J, Rus A, Spiller J, Finucane AM, Murray SA. Many people in Scotland now benefit from anticipatory care before they die: An after death analysis and interviews with general practitioners. BMJ Supportive and Palliative Care2016. doi:10.1136/bmjspcare-2015-001014

scholarly journals Improving primary palliative care in Scotland: lessons from a mixed methods study

2015 ◽  
Vol 16 (1) ◽  
Author(s):  
Bruce Mason ◽  
Susan Buckingham ◽  
Anne Finucane ◽  
Peter Hutchison ◽  
Marilyn Kendall ◽  
...  
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Mixed Methods Study
Sign in / Sign up

Export Citation Format

Share Document