spiritual support
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Author(s):  
Brennan Hodgson Kim ◽  
Jeanne Krick ◽  
Simone Schneider ◽  
Andres Montes ◽  
Uchenna E. Anani ◽  
...  

Objective The objective of this study was to better understand how neonatology (Neo) and maternal–fetal medicine (MFM) physicians approach the process of shared decision-making (SDM) with parents facing extremely premature (<25 weeks estimated gestational age) delivery during antenatal counseling. Study Design Attending physicians at U.S. centers with both Neo and MFM fellowships were invited to answer an original online survey about antenatal counseling for extremely early newborns. Preferences for conveying information are reported elsewhere. Here, we report clinicians' self-assessments of their ability to engage in deliberations and decision-making and perceptions of what is important to parents in the SDM process. Multivariable logistic regression analyzed respondents' views with respect to individual characteristics, such as specialty, gender, and years of clinical experience. Results In total, 74 MFMs and 167 Neos representing 94% of the 81 centers surveyed responded. Neos versus MFMs reported repeat visits with parents less often (<0.001) and agreed that parents were more likely to have made delivery room decisions before they counseled them less often (p < 0.001). Respondents reported regularly achieving most goals of SDM, with the exception of providing spiritual support. Most respondents reported that spiritual and religious views, risk to an infant's survival, and the infant's quality of life were important to parental decision-making, while a physician's own personal choice and family political views were reported as less important. While many barriers to SDM exist, respondents rated language barriers and family views that differ from those of a provider as the most difficult barriers to overcome. Conclusion This study provides insights into how consultants from different specialties and demographic groups facilitate SDM, thereby informing future efforts for improving counseling and engaging in SDM with parents facing extremely early deliveries and supporting evidence-based training for these complex communication skills. Key Points


2022 ◽  
pp. 026010602110576
Author(s):  
Mayumi Mizutani ◽  
Junko Tashiro ◽  
Heri Sugiarto ◽  
Maftuhah ◽  
Riyanto ◽  
...  

Background: In 2016, the World Health Organization recommended salt reduction strategies. In most low- and middle-income countries, little is known about what causes people to reduce their salt intake. Aim: In rural West Java, Indonesia, we conducted a cross-sectional survey to describe self-reported salt reduction practices among middle-aged Muslims with hypertension (n = 447) and to identify correlates of salt reduction. Methods: We developed a questionnaire with Likert scales to measure self-reported frequency of efforts to reduce salt intake, and degree of agreement/disagreement with 51 statements about variables hypothesized to influence salt reduction practices. We compared groups using t-tests and one-way ANOVAs. Through one-factor confirmatory factor analysis and structural equation modeling, we identified correlates of salt reduction practices. Results: About 45% of participants reported regularly reducing their salt intake; only 12.8% reported never attempting. Men reported higher social barriers, while women reported higher family support and spiritual support. Overall, we found that participants’ frequency of effort to reduce their salt intake was associated with a constellation of six correlates. Salt reduction practices were directly positively associated with prior health/illness experiences (β = 0.25), and by seeking health information (β = 0.24). Seeking health information was in turn positively associated with prior health/illness experiences (β = 0.34), receiving support from health professionals (β = 0.23) and Islamic spiritual practice (β = 0.24). Salt reduction practices were negatively associated with environmental barriers to healthful eating practices (β = -0.14). Conclusion: In this population, reinforcing positive correlates identified in this study and mitigating against negative correlates may foster salt reduction practices.


2022 ◽  
Author(s):  
Eranthi Weeratunga ◽  
Chandanie Senadheera ◽  
Manjula Hettiarachchi ◽  
Bilesha Perera

Abstract Background: Religious and spiritual support (RSS) is considered a vital method of coping among patients with cancer and cancer survivors. Measuring religion and spiritual support received by cancer patients has very little evidence in Sri Lanka compared to the western countries. It would be affected on cancer care management and speedy recovery process of cancer patients; could be benefited to reduce long-term suffering of patients with cancer. This study aimed to develop and validate a tool to measure religion and spiritual support in patients with cancer. Methods: WHO guidelines were incorporated into the cross-cultural adaptation of the newly developed religious and spiritual support scale (RSSS). Internal consistency for the overall RSSS was investigated using Cronbach’s alpha. Intra-class correlation coefficient (ICC) was used to examine the test-retest reliability of the RSSS for the same sample. Validity was checked using convergent and divergent validity. Principal component analysis (PCA) was performed to test factorial/construct validity.Results: The Sinhalese version of RSSS showed a high internal consistency (Cronbach’s alpha-0.883). The scale revealed favourable test-retest reliability (ICC = 0.981). The overall RSSS score correlated negatively and positively with depressive symptoms (r= - 0.338, p<0.05) and quality of life scores; overall (r=0.421, p<0.001), physical (r=0.340, p<0.05), psychological (r=0.279, p=0.08), social (r=0.373, p<0.05) and environmental quality of life (r=0.429, p<0.001) confirming satisfactory divergent and convergent validity of the Sinhalese version of the RSSS. Factor analysis with PCA extracted two factors explaining 74.47% of the variance.Conclusions: The Sinhalese version of RSSS is a reliable and valid scale to assess the religious and spiritual support of patients with cancer in Sri Lanka.


2022 ◽  
Vol 16 (1) ◽  
pp. 26-31
Author(s):  
Chris Barber

The purpose of this series is to highlight a range of rare health conditions. Rare health conditions are those that affect no more and usually fewer than 1 person in every 2000 and many HCAs and nurses will encounter some of these conditions, given the high number of them. This 54th article will examine two of these conditions, arthrogryposis multiplex congenita and Edwards syndrome, along with an exploration of the idea of support staff offering spiritual support to those with rare health conditions and their families.


2021 ◽  
pp. 101-124
Author(s):  
Neal M. Krause

Spiritual support is defined as assistance that is provided by one church member to a fellow church member with the explicit purpose of bolstering and maintaining the faith of the recipient. Four issues are examined in this chapter: (1) a detailed theoretical explanation of the ways in which communities of faith promote spiritual support is provided; (2) issues in the measurement of spiritual support are discussed; (3) the scant empirical literature on communities of faith and spiritual support is reviewed; and (4) two submodels are presented that provide further insight into the nature of the relationship between communities of faith and spiritual support.


2021 ◽  
pp. 125-151
Author(s):  
Neal M. Krause

The virtue of forgiving others and the virtue of compassion occupy a pivotal position in the core study model because they provide an important point of departure for explaining how spiritual support affects health. This fundamental issue is explored in three sections: (1) a theoretical rationale for focusing specifically on forgiveness and compassion is provided—in the process the social underpinning of these virtues is highlighted; (2) studies on the relationship between forgiveness and health as well as compassion and health are reviewed; (3) a submodel is introduced that aims to flesh out the nature of the relationship between spiritual support and these two social virtues is provided.


2021 ◽  
Vol 0 ◽  
pp. 1-6
Author(s):  
Leeai Chong ◽  
Farah Khalid ◽  
Adina Abdullah

Objectives: Premature death of a child from a serious illness is probably one of the most painful experiences for a parent. This study examined the clinical experiences of bereaved parents of children with a life-limiting illness to provide recommendations for quality care. Materials and Methods: Data were collected using semi-structured in-depth interviews with bereaved parents whose children had died at least 3 months before the interview. Parents were purposively sampled from two institutions offering end-of-life care to children with life-limiting illnesses. Data were analysed using thematic analysis. Results: Data analysis revealed three main themes: (1) Clinical communication, (2) Healthcare infrastructure and (3) Non-physical aspects of healthcare. The seven subthemes uncovered were as follows: (1) Honesty and clarity, (2) empathy, (3) interdisciplinary communication, (4) inconveniences in hospital, (5) home palliative care, (6) financial burden of illness and (7) psychosocial and spiritual support. Conclusion: Strategies to improve healthcare for children and their families are multifold. Underlying the provision of quality care is compassion; a child and family-friendly healthcare system with compassionate providers and compassionate institutional policies are vital components to achieving quality healthcare. Culturally sensitive psychosocial, emotional and spiritual support will need to be integrated as standard care.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Enoch Acheampong ◽  
Alberta Nadutey ◽  
Peter Bredu-Darkwa ◽  
Peter Agyei-Baffuor ◽  
Anthony Kwaku Edusei

Purpose The perceptions of disability conditions held by parents and immediate family members directly determine the types of treatments that are likely to opt for persons with disabilities whenever they are ill. Family level drivers of access to healthcare among persons with disabilities in the Bosomtwe district of Ghana. Design/methodology/approach A qualitative case study was conducted in which data were collected from 60 participants selected purposively. Face-to-face interviews were conducted, and the results were presented thematically. Findings The drivers identified have been categorized into positive and negative depending on how they influenced persons with disabilities’ access to health care. Payment of medical bills, physical access support, the narration of health condition to a health-care provider, spiritual support, care and love were the positives while perceived spiritual cause of disability, preference for alternative treatment centers, unwillingness to support reproductive and specialized health care. Research limitations/implications This study had some limitations, and one of such is the non-inclusion of disabled people who had not been registered by the department of social welfare but resided in the district who could have provided rich information to the study. However, their exclusion did not affect the quality of data obtained, as those who were registered and selected for the study gave adequate information about the issues that were considered during the study. Originality/value Family members of persons with disabilities play key roles in promoting their access to health care; therefore, there is the need for stakeholders to put in measures that will limit misconceptions about disability not only for the general public but also for individuals like parents and immediate family members of persons with disabilities.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 777-777
Author(s):  
Denise Kresevic ◽  
Barbara Heath ◽  
Muralidhar Pallaki

Abstract The impact of trauma on care at end of life and the social isolation of the COVID-19 pandemic highlighted a critical gap in care of terminally ill veterans. It is estimated that 30% of Vietnam Veterans suffer from PTSD, suicide rates are 49% higher in older veterans than nonveterans, and 41% of veterans surveyed report post traumatic guilt. A survey of non-VA hospice agencies revealed many do not screen for PTSD, but desired training in this area. The VA responded to these challenges implementing an initiative to educate community caregivers on PTSD, suicide, and moral injury with expanded tele mental health services. Several VA sites were supported to participate in training focusing on PTSD, suicide, and moral injury and Telemental health. In Northeast Ohio, from 2019-20, 11 community hospice agencies participated in training, including 283 providers,120 (42%) nurses, 100 (35%) social workers, 29 (10%) volunteers, and 34 (12%) other. A majority of participants post-training (n=160) (84%-94%) reported enhanced knowledge, skills, or attitudes related to resources, education, and communication. Participants rated changes for assessment skills lowest for moral injury (34%), PTSD (41%), and suicide (56%). An analysis of telemental health visits (N=50) revealed that, 56% addressed spiritual support, (22%) family support, (10%) resources/referrals, and (8%) confusion. The majority of telehealth visits were VA initiated (84%), and 10% were hospice initiated Continued education regarding PTSD, suicide, and moral injury assessment skills is still needed for hospice care providers of veterans. These findings support the use of telemental health for care and consultation.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Jyoti Savla ◽  
Karen Roberto ◽  
Jennifer Margrett

Abstract Dementia family caregivers often show deep devotion and a strong sense of purpose and duty toward their relatives needing care. The concept of grit, which includes aspects of commitment, purpose, perseverance, and resilience, is a novel theoretical approach to expanding understanding of dementia family caregiver strengths amidst the challenges they face. Multiple psychosocial and contextual factors are likely to interact with and influence grit among these caregivers. This symposium addresses commitment to the family dementia caregiver role, willingness to embrace the stressful work of caregiving, and perseverance in finding ways to sustain caregiving roles under typical and adverse circumstances. Blieszner focuses on associations between grit and stressors and strains that challenge caregiver well-being and jeopardize continued caregiving. Wilks considers the impact of spiritual support on sustaining resilience among Caucasian and African American dementia caregivers. McCann explores caregivers’ responses to changes in informal support and social interactions available to assist with home care tasks over the course of the COVID-19 pandemic. Albers examines the strengths and resources caregivers draw upon to manage the challenges of caring for and supporting a relative in long-term residential care during the pandemic. Collectively, these presentations provide new insights into the range of influences on aspects of grit and circumstances in which grit sustains caregiving. Discussant Margrett considers the value of the concept of grit for furthering understanding of caregivers’ abilities to manage typical and unique challenges in their caregiver roles and offers suggestions for future research and interventions to enhance grit among dementia family caregivers.


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