Common Factors Contributing to the Adjustment Process of Mothers of Children Diagnosed With Down Syndrome: A Qualitative Study

2017 ◽  
Vol 28 (3) ◽  
pp. 193-204 ◽  
Author(s):  
Hannah Korkow-Moradi ◽  
Hye Jin Kim ◽  
Nicole P. Springer
Keyword(s):  
Down Syndrome ◽  
Qualitative Study ◽  
Common Factors ◽  
Adjustment Process

scholarly journals Termination of pregnancy following a prenatal diagnosis of Down syndrome: A qualitative study of the decision-making process of pregnant couples

2018 ◽  
Vol 97 (10) ◽  
pp. 1228-1236 ◽  
Author(s):  
Stina Lou ◽  
Kathrine Carstensen ◽  
Olav Bjørn Petersen ◽  
Camilla Palmhøj Nielsen ◽  
Lone Hvidman ◽  
...  
Keyword(s):  
Decision Making ◽  
Down Syndrome ◽  
Prenatal Diagnosis ◽  
Qualitative Study ◽  
Termination Of Pregnancy ◽  
Decision Making Process

scholarly journals O017 Parents’ experiences of having a child with Down Syndrome and sleep difficulties

2021 ◽  
Vol 2 (Supplement_1) ◽  
pp. A8-A8
Author(s):  
M Miguel ◽  
E Cooke ◽  
J Chawla
Keyword(s):  
Down Syndrome ◽  
Qualitative Study ◽  
Family Dynamics ◽  
Well Being ◽  
Time Function ◽  
Family Quality Of Life ◽  
Specific Information ◽  
Structured Interviews ◽  
Sleep Difficulties ◽  
Parents Experiences

Abstract Introduction This qualitative study that investigates parents’ experiences of having a child with Down Syndrome (DS) and sleep difficulties is a part of a broader mixed-method study entitled Sleep Difficulties in Children with Down Syndrome: An Evaluation of Parent/Carer and Family Quality of Life. Methods We conducted semi-structured interviews with 26 parents (fathers n = 4 and mothers n = 22), and reflexive Thematic Analysis (TA) was operationalised for data analysis. The interviews covered the following key topics: DS diagnosis; timeline of their child’s sleep patterns and difficulties; implications for parental sleep, day-time function, and well-being; family dynamics; and access to supports. Results Most participants described negative experiences at time of diagnosis, including not feeling listened to, and receiving inconsistent, insensitive and inadequate information and/or treatment. Most strikingly, no parents recall receiving sleep specific information. Most participants described their child’s sleep difficulties affecting their own sleep, day-time function and family dynamics, yet they commonly normalised these experiences. Such normalisation was a recurring theme across their experiences of having a child with DS and is contextualised by their accounts of resisting prejudiced attitudes towards their child since diagnosis. Discussion This is the first qualitative study to investigate parents’ experiences of having a child with DS and sleep difficulties. Implications include professional development for health care workers focusing on sleep as a significant comorbidity for these children, and awareness of families’ tendencies to normalise their experiences when delivering care.

scholarly journals Parental Perspectives on Pharmacological Clinical Trials: a Qualitative Study in Down Syndrome and Fragile X Syndrome

2017 ◽  
Vol 26 (6) ◽  
pp. 1333-1340 ◽  
Author(s):  
Victoria Reines ◽  
Krista Charen ◽  
Tracie Rosser ◽  
Arri Eisen ◽  
Stephanie L. Sherman ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Down Syndrome ◽  
Qualitative Study ◽  
Fragile X Syndrome ◽  
Fragile X ◽  
Parental Perspectives

scholarly journals Pregnant women’s views on how to promote the use of a decision aid for Down syndrome prenatal screening: a theory-informed qualitative study

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Titilayo Tatiana Agbadjé ◽  
Matthew Menear ◽  
Michèle Dugas ◽  
Marie-Pierre Gagnon ◽  
Samira Abbasgholizadeh Rahimi ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Qualitative Study ◽  
Decision Aid ◽  
Prenatal Screening ◽  
Women’S Views

Percepção das Mães Quanto à sexualidade de seu Filho Adolescente com Síndrome de Down / Perception of Mothers Who Have Children with Down Syndrome Regarding their Teenage Child’s Sexuality

1970 ◽  
Vol 6 (2) ◽  
pp. 53-64
Author(s):  
Daniele Cristina da Silva ◽  
Mariângela Gomes da Paixão ◽  
Débora Vitória Alexandrina Lisboa Vilella
Keyword(s):  
Down Syndrome ◽  
Sexual Orientation ◽  
Qualitative Study ◽  
Minas Gerais ◽  
Snowball Sampling ◽  
Children With Down Syndrome ◽  
New Vision ◽  
Teenage Sexuality ◽  
The Way

Objetivo: Identificar o conhecimento e a percepção das mães quanto à sexualidade de seu filho, portador da Síndrome de Down, nas cidades do Sul de Minas Gerais. Materiais e métodos: Estudo de abordagem qualitativa do tipo descritivo, exploratório e transversal. A amostra foi constituída de 20 participantes, que foram escolhidos pela amostragem bola de neve. Para tanto, foi necessário ampliar para as cidades ao redor de Itajubá, são elas: Delfim Moreira, Paraisópolis, Piranguinho e Santa Rita do Sapucaí. Foi utilizado o método do Discurso do Sujeito Coletivo (DSC), iniciando através da identificação das Expressões Chaves (ECH) onde revelaram as essências do depoimento e a partir delas foram formuladas as Ideias Centrais (IC), que revelaram e descreveram o sentido de cada um dos discursos analisados. Resultados:  A maior parte das mães está consciente da sexualidade de seu filho adolescente, portador de Síndrome de Down, porém não percebem no cotidiano. A segunda maior parte das mães não considera a sexualidade, assim seus filhos são reprimidos e não recebem orientação sexual apropriada.  Conclusão: Oportunizou uma nova visão de atendimento adequado a elas e consequentemente melhor compreensão das mesmas para com seu filho.Palavras-chave: Adolescentes, Sexualidade, Síndrome de Down.ABSTRACTObjective: Identify the knowledge and awareness of mothers who have children with Down syndrome about the sexuality of their children in  cities of southern Minas Gerais. Material and methods: Qualitative study, which uses a descriptive, exploratory and transversal methodology. The sample consisted of 20 participants who were chosen by the snowball sampling. Thereby, it was necessary to expand the study to others cities around Itajubá, such as Delfim Moreira, Paraisópolis, Piranguinho, and Santa Rita do Sapucaí. The Collective Subject Discourse (CSD) was the method used, starting with the identification of the Key Expressions (KE) which revealed the essence of the testimony. By these means, the Central Ideas (CI) were formulated and these central ideas revealed and described the meaning of each analyzed speech. Results: The majority of mothers are aware of the sexuality of their teenage child with Down syndrome, but they do not notice it in day-to-day life. Yet, some of the mothers do not consider sexuality; so, their children are repressed and do not receive appropriate sexual orientation. Conclusion: This new vision provides an opportunity to adequate a counseling treatment to the mothers changing, consequently, the way they understand their children.Keywords: Teenage, Sexuality, Down Syndrome.

scholarly journals Receiving the Initial Down Syndrome Diagnosis: A Comparison of Prenatal and Postnatal Parent Group Experiences

2013 ◽  
Vol 51 (6) ◽  
pp. 446-457 ◽  
Author(s):  
Briana S. Nelson Goff ◽  
Nicole Springer ◽  
Laura Cline Foote ◽  
Courtney Frantz ◽  
Madison Peak ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Medical Professionals ◽  
Adjustment Process ◽  
Grief And Loss ◽  
Web Based ◽  
Negative Experiences ◽  
Early Experiences ◽  
Group Experiences ◽  
Loss Experience ◽  
Participant Reactions

Abstract This study explored the preliminary experiences of parents upon learning of their child's diagnosis of Down syndrome. Qualitative data from a web-based, national survey were analyzed based on two groups: prenatal (n  =  46) or postnatal (n  =  115) diagnosis. Three primary categories emerged from the data analysis: prenatal screening/testing decisions by parents, the adjustment process for parents, and postdiagnosis resources and support for parents. Participants' rationale behind pursuing testing ranged from wanting to be better prepared to not pursuing testing because it was not a factor in continuing the pregnancy. Participant reactions to the diagnosis involved a range of intense preliminary emotions; participants described their extreme grief and loss experience at the initial news of the diagnosis, which also was ambiguous in nature and required differing timelines of adjustment. Finally, participants described experiences with medical professionals, information/education, and faith/religion as resources and areas of support, although not all were described as positive in nature. Participants in both groups identified having negative experiences with medical professionals during the diagnosis process. The results indicated the importance of these early experiences for parents of children with Down syndrome and emphasize providing effective education, resources, and practical information from reliable sources.

Self-initiated expatriate adjustment: South Korean workers in Vietnam

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Seok-Young Oh ◽  
Kyoungjin Jang
Keyword(s):  
Qualitative Study ◽  
Workplace Learning ◽  
Training Programs ◽  
Personal Characteristics ◽  
Work Adjustment ◽  
Adjustment Process ◽  
Content Type ◽  
Sociocultural Adjustment ◽  
South Korean ◽  
Adjustment Processes

PurposeThe purpose of this study is to identify how young South Korean self-initiated expatriates (SIEs) have adjusted to their work and to verify the role of workplace learning activities as work adjustment processes in the relationship between work adjustment resources and outcomes.Design/methodology/approachThe study adopted a mixed-method approach, beginning with a qualitative study, followed by a quantitative study.FindingsThe main findings of the qualitative study indicated two types of SIE personal characteristics (ability to embrace cultural differences and entrepreneurship), their participation in training programs and that a supportive work environment which facilitates their work adjustment. Workplace learning, which led to role clarification within their organizations, is also critical for adjustment. Based on these findings, the quantitative research study examined the effects of personal and contextual factors on workplace learning and adjustment (n = 120). The quantitative part of the study found cultural intelligence (CQ), entrepreneurship, training programs and supportive environments were positively related to sociocultural adjustment through the work adjustment process.Research limitations/implicationsAs work adjustment is an important predictor of increased sociocultural adjustment among SIEs, organizations should build learning-supportive climates to promote workplace learning and seek people with appropriate characteristics for expatriation. Further studies should expand participant sample sizes to represent a wider population of SIEs.Originality/valueExtant literature on SIEs mainly explored their performance and management. This study explores their adjustment processes through the perspective of workplace learning.

Sign in / Sign up

Export Citation Format

Share Document