“Unknown world of wheelchairs” A mixed methods study exploring experiences of wheelchair and seating assistive technology provision for people with spinal cord injury in an Irish context

Author(s):  
Andrea Gallagher ◽  
Geraldine Cleary ◽  
Amanda Clifford ◽  
Jennifer McKee ◽  
Kellie O’Farrell ◽  
...  
2017 ◽  
Vol 98 (5) ◽  
pp. 856-865 ◽  
Author(s):  
Eva Widerström-Noga ◽  
Kimberly D. Anderson ◽  
Salomé Perez ◽  
Judith P. Hunter ◽  
Alberto Martinez-Arizala ◽  
...  

10.2196/11069 ◽  
2018 ◽  
Vol 7 (11) ◽  
pp. e11069 ◽  
Author(s):  
W Ben Mortenson ◽  
Patricia Branco Mills ◽  
Jared Adams ◽  
Gurkaran Singh ◽  
Megan MacGillivray ◽  
...  

2021 ◽  
Author(s):  
Holly Reid ◽  
William Cameron Miller ◽  
Elham Esfandiari ◽  
Somayyeh Mohammadi ◽  
Isabelle Rash ◽  
...  

UNSTRUCTURED Introduction: The COVID-19 pandemic has led to wide-scale changes in societal organization. This has dramatically altered people’s daily activities, especially among families with young children, those living with disabilities such as spinal cord injury (SCI), those who have experienced a stroke, and older adults. We aim to 1) investigate how COVID restrictions influence daily activities 2) track the psychosocial effects of these restrictions over time; and 3) identify strategies to mitigate the potential negative effects of these restrictions. Methods and analysis: This project is a longitudinal concurrent mixed-methods study in British Columbia, Canada. Data collection occurred at four time points, between April 2020 and February 2021. The first three data collection time points occurred within phases 1-3 of the Province of British Columbia Restart Plan. The final data collection coincided with the initial distribution of the COVID-19 vaccines. At each time point, participants’ socio-demographics, depressive and anxiety symptoms, resilience, boredom, social support, instrumental activities of daily living, and social-media and technology use were collected in an online survey. These data supplemented qualitative videoconference interviews exploring participants’ COVID-19 related experiences. Participants were also asked to upload photos representing their experience during the restriction period, which facilitated discussion during the final interview. We recruited five groups of participants: 1) families with children under the age of 18, 2) adults who have a spinal cord injury (SCI), 3) experienced a stroke or 4) other types of disabilities, and 5) older adults (>64 years) with no self-reported disability. The total sample size is 82. We are limited in the number of participants we could recruit from each group, which may make some sub-group analyses challenging. Ethics and dissemination: Findings from our study will inform the development and recommendation of a new resource guide for the post-COVID period and for future public health emergencies.


10.2196/12272 ◽  
2019 ◽  
Vol 8 (2) ◽  
pp. e12272 ◽  
Author(s):  
Felicia Skelton ◽  
Lindsey Ann Martin ◽  
Charlesnika T Evans ◽  
Jennifer Kramer ◽  
Larissa Grigoryan ◽  
...  

2020 ◽  
Vol 2020 ◽  
pp. 1-10
Author(s):  
Daryl Patrick G. Yao ◽  
Kaoru Inoue ◽  
Michael P. Sy ◽  
Peter Bontje ◽  
Natsuka Suyama ◽  
...  

Assistive technology (AT) is often required to facilitate the performance of occupations and promote inclusion and reduction of dependency among persons with spinal cord injury (SCI). However, only 5-15% of individuals in developing countries have access to AT. This study is aimed at exploring the experience of Filipinos with SCI as they use AT and understand these from an occupational justice (OJ) perspective. This study utilised a hermeneutic phenomenological approach to explore the participants’ experiences with AT usage. Ten participants were recruited from a hospital and communities within Metro Manila, Philippines, and interviewed last January 2020. Hermeneutic analysis was done to interpret the shared meaning embedded within their experiences and was informed by an occupational justice perspective. Exploring the experience of the participants in using AT yielded four themes, namely, (1) engaging in occupations despite limited opportunities, (2) going to various locations amidst an inaccessible environment, (3) striving towards inclusion in spite of attitudinal barriers, and (4) securing needs in light of unfavourable life conditions. Filipinos with SCI deal with numerous structural and contextual factors in daily life. There has been partial enablement of OJ as they incorporate AT in their daily lives as occupational rights are far from being recognised and respected. In infusing an OJ perspective to understanding AT use, OT practitioners are bound to identify problems and courses of action that go beyond traditional service delivery.


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