Patients’ perspectives of multidisciplinary home-based e-Health service delivery for motor neurone disease

2018 ◽  
Vol 14 (7) ◽  
pp. 737-743 ◽  
Author(s):  
Natalie James ◽  
Emma Power ◽  
Anne Hogden ◽  
Steve Vucic
2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 176s-176s
Author(s):  
O. Mukeshimana ◽  
B. Uhagaze ◽  
C. Ntizimira

Background and context: Almost two-thirds of the 7.6 million deaths every year from cancer worldwide occur in low-income and middle income countries, making cancer a leading cause of mortality in these settings. In Rwanda, we are focused on the development of the tools needed to perform social and health service delivery in addition to policy research in resource-limited settings. There is a real need for qualified staff members who are able to ask appropriate questions, to make relevant hypotheses, develop research protocols, and conduct effective studies to identify innovative approaches in social and health service delivery. Cancer patients undergoing end-of-life care suffer from physical pain, mental illness and psychological trauma. Aim: The aims of this project are to identify cancer patients at end-of-life care at the community level without appropriate support through a mobile clinic, to mobilize existing resources to introduce home based care at the community level with participation of community health workers and to sensitize the population in cancer prevention and supportive care of patient using African socio-cultural perspectives. Strategy/Tactics: This project, the first kind in Rwanda, bring at home the same services cancer patients receive at the hospital level except for access to chemotherapy or radiotherapy. And it's where all those services provided and patients' family are counseled and reduce the burden and challenges they used to have going to hospital. Program/Policy process: During this project patients are visited in their homes and are treated mostly with pain management and their complaints are listened to together with other issues related to cancer, then their families are also approached to clearly explain to them the case of the patient and how to well console him/her and support in their sickness, all these are done periodically with assessment of past visits. Outcomes: Before this project, many people used to die early due to lack of pain management, counseling and follow-up, and also patient families used to abandon them at home or at health facilities. With this current project people have already started to understand that cancer can be treated like other diseases and this awareness helps in the advocacy for pain treatment and availability of pain killers for cancer patients. What was learned: The lessons learned from this project is that home based end of life care for oncology is an important tool to care for oncology patients and to reduce the burdens they have such as pain and depression and also the burdens for their families such as loss of money in the cost of treatment. This program can be expanded to reach as many as possible patients and their families.


2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Hannah Tappis ◽  
Sarah Elaraby ◽  
Shatha Elnakib ◽  
Nagiba A. Abdulghani AlShawafi ◽  
Huda BaSaleem ◽  
...  

2008 ◽  
Vol 17 (2) ◽  
pp. 149-165 ◽  
Author(s):  
Karen Eggleston ◽  
Li Ling ◽  
Meng Qingyue ◽  
Magnus Lindelow ◽  
Adam Wagstaff

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